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Celiac Blood Work Negative. Should I Have Endoscopy Done?

Mia'smommy

Entry posted by Mia'smommy

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I was diagnosed with IBS when I was 12 years old. I am 37 now. I have what I call "IBS episodes" of diarrhea, SEVERE pain, sweating, chills when I eat certain foods. I can't pinpoint it to wheat alone. It doesn't happen all the time, but I suffer from these "episodes" at least 4-5 times a week.

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My 4-year-old was just diagnosed with Celiac. She was asymptomatic. She has a genetic disorder that we were about to start HGI in her. One of the tests they run before starting HGI is a celiac panel. Her numbers came back as a "weak positive." Had the endoscopy done. Showed early stages of celiac. Her gene test also came back as the highest, 31x, and he said she had the gene also. She has been gluten-free since January now.

 

I got tested when we got her diagnosis. Mine tests were negative. I know he tested the Iga (I think that is what it was) to make sure I was producing enough for the test to be valid, something like that. I don't have the values. Now he wants to do a colonoscopy to check for other things, and says he wants to do an endoscopy also since I will be under anyway.

 

Question is could I possibly have celiac if blood work was negative?

 

Thank you for all your help and advice.

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1desperateladysaved

1desperateladysaved 105

Posted

Some people test negative to the blood tests but have a positive endoscopy. I would suggest you look at the Newbie thread incase you may be missing gluten which causes your symptoms. You should be healed after so long on the diet which means that your endoscopy may be negative if you are not getting enough gluten.

You might try moving this to the coping or Diagnosing section of the forum which may get you more responses than the blog section will.

I hope you will get a definative diagnosis, and will be over those awful symptoms soon.

D

Mia'smommy

Mia'smommy 0

Posted

Some people test negative to the blood tests but have a positive endoscopy. I would suggest you look at the Newbie thread incase you may be missing gluten which causes your symptoms. You should be healed after so long on the diet which means that your endoscopy may be negative if you are not getting enough gluten.

You might try moving this to the coping or Diagnosing section of the forum which may get you more responses than the blog section will.

I hope you will get a definative diagnosis, and will be over those awful symptoms soon.

D

Thank you for your response. I am new to the site, so just learning my way around. I just re-posted in the "testing, pre-diagnosis" forum. I appreciate your advice and help :)

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