You're Prescribing Me WHAT!?!

I feel for what you've been through, and live with, especially as a teenager. If I may ask, who has determined your celiacs is unresponsive? I was given that same label, and while I do have intestinal damage that will not fully heal, I am not unresponsive. In my case, oats were the problem. No oats, my antibodies started coming down. And no, doctors did not figure it out, I pursued allergy testing as a last resort. Just a thought for you. Stay persistent, and keep advocating for yourself!

My current GI Doctor did. They have done several panels and I've done tond of food logs. She has done a wonderful job ruling out all possible food. My scope and MRI will determine what immune suppressor she will advise for me to take. It took me a while to find a doctor who has taken me seriously and is will to try from different angles.

Im glad to hear they found the root of your problem. It bring confidants knowing I'm not alone it comes to health concerns. 

So sorry to hear that you have these problems. I'm not sure they found the root of my problem, it's been 2 years and my antibody counts are still not quite in the normal range, but 3 months post diagnoses my numbers more than doubled from my gluten eating days and I was eating a lot of gluten-free oats. Like you, I still have chronic pain, unexplained problems and symptoms, and various other issues including lymphocytic colitis, neuropathy, autonomic dysfunction, etc. I empathize with you having continuous problems. It seems like many people have this miraculous turnaround on the diet that we have somehow missed out on. Glad you finally found a good GI doc. Stay positive and good luck with all your upcoming tests!

I feel for you and your plight with the doctors. I had an incident with a pain doctor when i needed a nerve root block because I have a Sciatica and had really bad shoulder and low back problems from a car accident. The doctor had a God complex and he said I was addicted to Opiates when I took 3 - 325/5 mg tabs of Vicodin per day for 3 months. He said I was faking my pain  This made me very angry. He even put on my record that I drink 3 drinks per day! We never discussed drinking and I do not drink 3 drinks per day! My roommate was there with me and was horrified when I ordered the record and could not believe what the doctor had written. He thought I wanted pain medicine. I wanted help and I needed surgery. This doctor put it on my record and I am going to get it removed. Fortunately my Family Physician continued the Vicodin and another Pain Specialist did the surgery.  My Pain Specialist put down that I was disabled. When my pain started to go away I quit Opiates and Lyrica by titrating down. All the meds like Diclofenac, Various muscle relaxers, Gabapentin etc. I could make a huge list but they tried all the non opiate ones first. I seriously think that the doctors helped my stomach get worse! I like you have been through a whole list of prescription medicines in the last 4 years. I think they even helped eat away at my stomach lining and made my Celiac worse. But I wasn't even aware that I had Celiac Disease until it became so severe that I had to quit my job. 

I suffered from severe mood swings, depression, Osteoarthritis, frail bones (broke both my ankles less than 10 years apart at a pretty young age), have arthritis, terrible PMDD (a severe form of PMS), and what the doctor's thought was Fibromyalgia, GERD or IBS. I couldn't keep food down and was having the runs almost every day. I wasn't able to sleep because of the Nausea.  I lost a lot of weight, had severe headaches and felt so bloated. My nerves would act up and my hand would start shaking uncontrollably. I also suffer with Bipolar II, PTSD, and panic attacks. My white blood cell count was high too. I couldn't concentrate on my job and ended up with a manic episode at work. I just walked out after having to work 10.5 hour shifts. I couldn't breathe. I quit because my health was more important than overtime at work which was making me miserable. I thought I was diabetic or something and I don't even eat a lot of carbs or sugar. I thought I was eating the good carbs and I could not understand why I felt sick almost every time I ate. 

I am still taking my  two medications for my mood problems and Anxiety.  I use a Lidocaine patch occasionally for severe muscle soreness. This is only because I am starting to exercise.

Good for you that you were able to figure this out at such a young age.

Big Pharma / Doctors can sometimes do more harm than good. I suffered many uncomfortable side effects from most of the medications I was put on. Some doctors get kickbacks for prescribing us this crap when there are natural solutions. I am not saying that people don't need medication but like you said, be selective and educate yourself before taking medicine. Some medicines can be hard to come off of. Like Gabapentin. A seizure can ensue if someone abruptly stops taking medicine. So I would encourage anyone to talk about slowly reducing dosages before coming off of medicines. Our body can build up a tolerance for anything and then lose that tolerance. That was a huge lesson I learned. 

My suffering is ending too. I now pray, meditate, dance to music, exercise, stretch, do yoga. I am going back to work for a friend. Its not as many hours as my other job, but I feel that I need a few months to get to feeling more healthy. A friend said my skin has its glow back. 

Good luck to you!