Kim

Hi Kait,

You'll probably get more responses in the forum than a blog.  Post diagnosis or the Coping With Celiac forum sections would be good to post in.

https://www.celiac.com/forums/forum/12-celiac-disease-post-diagnosis-recoverytreatments/

gluten-free in DC is right about posting in our forum section, but I would like to address your question.  Your daughter is ill.  She has an AI issue and not an allergy.  A gluten exposure triggers an autoimmune response (like lupus or RA) that can last for days, weeks or months).  Removing all gluten is great, but it takes time for the body to heal.  Most often it takes most of us a year to heal, but children tend to heal much faster.  So, give the diet a good six weeks to see improvement (hopefully sooner).  Learn all you can about being gluten free.  There is a steep learning curve and you can expect a few set-backs.  

Read our Newbie 101 thread under "Coping" for great tips.  

We are here to help!  

I could see the damage to my stomach from the photos I  had at my endo besides what I felt.  I am sorry your young one is going through this, but I am glad she has you as her loving advocate to be her support. I have gone decades misdiagnosed with other issues for my rag tag revolving symptoms that run the gamut of the 300 possible symptoms. My son at 10 is on this journey with me. My daughter I keep my fingers crossed on but our whole home is gluten-free since my symptoms of CC are trigger sensitive and include neurological, GI, Joint, muscles, mood etc. My sone and I are also corn and milk intolerant.

If her stomach is a bear- I find on this journey comfort in fresh ginger minced or juiced in hot water. I don't suggest processed tea unless they specifically list gluten free and the tea can sit on shelves for some time. Fresh is best. If she doesn't like the taste perhaps a bit of pure real unaltered honey will assist.

Best wishes on her healing process and your journey.