Gluten Busters: Gluten-Free Product Alerts by Celiac.com

Several years ago I was extremely sick with diarrhea and stomach problems one test indicated was about 90% gluten sensitive. Because of everything that was wrong with my stomach with no answers I did not think too much about it, but I did cut out wheat bread. I now eat only potato bread and that does not bother me. I am also a vegan vegetarian but do cheese and soy milk. If I would be a little more careful I am sure I would feel better. The doctors never seemed that concern about it.

Thank you all for your input.

Elaine

I was diagnosed with celiac disease when I was a year old. I am 36 now at the time the doctors didn't know what was wrong with me. I was so sick at time. In time I thought I would get over it. But once you are diagnosed with it you never grow out of it. I still find it hard to stick to the diet but when I feel very low and I sometimes can't understand why I am so low in energy and when I hear of other celiacs' stories it helps me. I do feel lots better on my diet. I have been in denial thinking I could eat anything I WANTED but it didn't help, listening to other peoples stories helps me the most. I do a lot of my own cooking now and since I was a kid there wasn't much at all out in shops that could be bought, now there is a much wider range of foods out there and I am still learning and I am a very happy person with or without being celiac.

I'm newly diagnosed, and am still learning. Seems that most of you healed fairly quickly! I spent months getting sicker and sicker until I had to go out of work. I was fortunate in that my endoscopy was a last minute 'why don't we add this' test, and the gastro specialist was fairly familiar with Celiac. Anyway, I have been on the diet about 3 months and am still having problems. I've had so many symptoms, it's hard to figure out what is Celiac and what is not. Am still doing the medical merry to round of tests to eliminate 'other'. I find lists of the most common symptoms, but everything I read goes on to just say that there are hundreds of manifestations. Does anyone know of any comprehensive lists for me to fret over?

Good luck to all of you. Keep your chins up and keep plugging. I'm sure that the lifestyle becomes habit and not such a hassle after a while.

Hi! My name is Amelia and I am 8 years old. I was diagnosed at 3 1/2 years old and have been Gluten Free ever since. I hate having Celiac Disease. I like to bake Gluten Free foods with my Mom. Whenever someone has something to eat that I cannot eat, it is very frustrating. Even if I have the same thing in Gluten Free I still feel a little weird. I am looking for other kids to talk to like me. Thanks, Amelia.

Hi! Good to read all your comments I've been diagnosed for over 2 years now. I still find it hard to cope!!! Take care.

I am a 63 year old woman with self-diagnosed Celiac Disease which I call a body condition, rather than a disease. No doctor ever attempted to find out why a marshmallow made me deathly ill or why I developed flu symptoms when I drank Mug root beer. I found my symptoms by accident while searching the Merc Manual for something else. An elimination diet set me free from chronic illness early enough to prevent me from developing the end of life symptoms/diseases related to bones and nerves and muscles. I was in touch with Ron Hoggan when I developed Trigeminal Neuralgia after an accidental consumption of gluten and lost touch with him. After the small intestine healed, it was no longer necessary to take the anti-seizure medicine, just as I promised the Neurologist. It has been about 8 years since that episode and I only keep a sample of the medicine on hand in case of another accidental exposure. Experimentally, there is a direct relationship between the gluten and the nerve disorder. I am not at all deprived because there is one tree in my Garden of Eden that I can't eat from because, in the day I eat thereof, I will die. Thanks for reading, Yvonne

Okay for all of you fellow celiacs out there. What does a person do when they are not only diagnosed with celiacs but have other restrictions such as sugar, dairy, eggs, yeast , soy and the list goes on.

To # 31 eat sushi, all kidding aside, see a good nutritionist, who would never advise anyone to eat sushi. I've had celiac since 1996 and when I moved from NY to FL in 2000, I found a doctor there who told me I could introduce gluten back into my system after 7 years, so I did, no problems immediately, it took 3 years and me moving back to NY to find out how wrong that doctor was, ugh! Anyway, I am trying to get a new business off the ground, It's a cupcake small pasty shoppe that offers gluten free products as well as regular stuff. I look around at other people eating pizza and then I see people in wheelchairs breathing through a tube. I don't feel sorry for myself at all, I'm an adult, but I think if you have kids, you and you alone need to educate their school. Look, they took peanut butter out of most schools because of all of the kids with allergies to them--because they were educated. Stand up for your kids, spread the word so that when you say you have celiac people know what the heck you are talking about!!!

Being born with celiac in 1950 and diagnosed in 1998 I would like to share my diet, being Italian you can imagine how much I miss pasta, pizza, etc., etc.. The closest product I find that is similar to pasta Glutano Tagliatelle, for pan cakes 'Fast & Fresh' corn bread, and for desert 'Cause You're Special Golden Pound Cake Mix. These products are the closest to the real thing. Hope I help someone.

I am pretty convinced I have Celiac. I have had GI issues for as long as I can remember. I think I have been tested for everything out there! Nothing has turned up yet but I am still miserable. My pants don't fit. I have pains in my small intestine, I am in the bathroom every five minutes. My moods are completely erratic and I feel like I have the flu (achey). I am a second year nursing student with a previous degree in biology so I am pretty educated on many of the diseases that I have been tested for and I have a hard time swallowing what the doctor's tell me; 'Its IBS, Its stress, You don't handle your emotions well'. Can I really be a hypochondriac? Can my 'head' really make me feel this bad? I am seeing a gastroenterologist next week. I am nervous because when I bring Celiac up to my doctors, they scoff at me. How do I approach this doctor? It also scares me that so many have said that the tests can come back negative. I don't want to be misdiagnosed again. Thank you for your help

Dear Gwen, I felt the same way you do! was I really anxious, unable to handle stress? No, but my body was always betraying me. Go gluten free, not just half way, jump in with both feet! wasted precious time wading in. Not to say it perfect now. I still get sick off and on but at least I can stay awake! No more of that drugged feeling!! Good luck.

My son was diagnosed with celiac disease at age 6, after suffering for years from sporadic stomach pains and diarrhea. He is also diabetic, so mealtimes were a challenge at first. Now he is 19, and healthy as can be. It was hard for me to watch him go to university in another city, as I worried about his gluten-free diet. I remembered, though, that he could order food on-line if he got low on supplies. I just order him a care parcel to put my mind at ease.

My test came back negative, and I tried to continue to eat wheat, and I only got sicker. My body did NOT care that my test came back negative. I found that even the slightest amount of wheat on fried chicken or a jo jo would make me sick for days, the more wheat, like a sandwich would give me days of diarrhea, a spastic colon, asthma, acid reflux, and such a sore painful body that felt like someone had stuck me in the washer on heavy duty cycle for a week. I could barely walk after eating it. No matter what the tests say, my body will not tolerate me eating wheat. My co workers are so supportive. I have given in on occasion and always regret it. When I come to work, my co workers know, as I will cough and I might be a little sad or a little cranky. If I ate wheat every day, people would hate me as I would be a 'B' word type of lady, and I would have asthma every single day, and be mentally ill with panic attacks, depression, etc., along with eczema and other skin conditions. I may have never figured it out, if I hadn't gone on Atkins. I felt 30 years younger when I was on Atkins. It wasn't until I had pasta that I became very ill, all over again. I think I've had it all my life, and it just progressed rapidly once my appendix was removed. I am lucky because my co workers try to help me stay off wheat, and they come up with recipes for me to try and food. They really are sweet about it.

It's time restaurants start to think of us. It's not right that we can't go have a sandwich or pizza or French toast that's wheat free. It is possible to make it, and it should be offered to us.

I'm slowly seeing a difference in some restaurants, and Red Robin is one of them, and they deserve high praise for that.

I was diagnosed 3 weeks ago at age 46. I have not had many of the stomach or intestinal symptoms but 'fybromyalgia' symptoms and brain chemical issues.