To "App" or Not to "App": The Use of Gluten Free Product List Computer Applications

I read your article and found it very helpful. My granddaughter was diagnosed last week. She is 2 1/2. I have been thinking a lot about school lunches since I was a k5 teacher and know all about what kind of hardships that can bring. She had 2 birthday parties to go to today and my daughter was making her her 1st gluten free cake (wacky cake). I don't know how that turned out. My daughter is very very proactive and is taking this on as a great challenge. She is a self proclaimed nutritionist and has taught classes on it.

Back to my grandbaby. She is totally not herself. She is on her moms hip 24/7.

Now, her Dr. looked at her and then to me and said 'Get tested. You probably both have it. I have had lifelong tummy issues.

Here's to looking forward. It is something treatable we know and very glad it is celiac instead of anything else.

Thanks again for your article.

I have been on the computer trying to research how to start a ROCK support group in Colorado Springs, Colorado. I came upon your post and identified with it in so many ways that I cried. My daughter is almost 7 years old and although so much better I am grieving today that Grandma gave her the sausage and cheese off of a pizza last night while I was at work and today she was a crabby zombie-just total not the fun-loving child she can be. I need help!!! I'm tired of people not taking this disease seriously!! I am reading Elizabeth Hasselbeck's new gluten-free diet book and it is giving me some empowerment to do more. But, like she said the drug companies do not benefit from this disease so there is little research and Doctor's who diagnose it. Any advice for me?

Thanks for listening!!!

Tina, I realize your post was last year, so you may not even receive my response. My 14 year old daughter was just diagnosed last week, after 5 years of the onset of her symptoms.

Our 11 year old son has just been diagnosed with celiac disease. I just need to talk to other moms who have "been there". The gastrointestinal doctor said there was someone to talk to but they moved to another state. I am thinking, "really, just one other person to talk to? I thought 3 million people had this disease?" I am in a state of confusion, anger and helplessness right now. Thanks for any help.

It all sounds so poetic, but to me it is just completely overwhelming. My 11 year old and six months later my 13 year old, both diagnosed with type 1 diabetes, and now celiac disease. It feels impossible. People are telling me "it's not that big of a deal", and maybe it isn't to some people, but if it isn't, why do I feel like it is?

Just read your article and I could relate to every single word you wrote (minus having an exchange student). My 7 year old was diagnosed with lactose intolerance last week, so I feel like I'm starting all over again and very overwhelmed. It feels nice to read your blog and not feel alone. I'm still searching for a local support group. Thank you or sharing.