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Diagnosis


G-Free

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I have to say it's been interesting, as well as painful. This is not the worst thing that could happen to a person, but it is oddly inconvenient as I'm frequently on the road. Because of this being gluten free will be a challenge.

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I have had the most common syptoms for aproximately six years, but I suspect that I have had celiac disease for a much longer period of time. Frequent childhood illnesses, vaque allergies lack of energy. I have been trying to maintain a gluten-free diet since being diagnosed about a week ago and I have to say that I feel so different that it blows my mind. I had a bad bout with the disease a couple of years ago, which actually put me in the hospital for a week. The doctors were baffled at the cause of my apparent lack of vitamins and minerals and were all set to chalk it up to excessive drinking. (I really don't drink much at all) They said my liver was showing signs of malfunctioning and I guess it was convenient to pin it on a bad lifestyle. They did however suggest that I stay on a regimen of vitamins, which I did and it helped me get through the next couple of years. After a while I began to get tired of the symptoms I had which had never completely disappeared. So I went to another Doctor who sent me to another Doctor who sent me to another Doctor who......???? Finally suggested that I have the test for celiac disease. I was somewhat relieved to have found someone who could give a name to what was bothering me. The test came back positive and I began doing some research on the net. That's how I found this website. I have found that I am not alone, also that the disease I had feared can be managed. So here we are! I am looking forward to working through this and also hoping that something I say will help someone else to be able to deal with celiac disease. I count my blessings that it wasn't something more serious and even though I know it will be hard at times I'll be fighting all the way. Here's to a good battle!

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Mosaics

Posted

Congratulations on your diagnosis. ;)

From what I've read, it takes an average of 10 years of going from doctor to doctor for most celiac sufferers to get a diagnosis.

I was lucky in that regard. I didn't have any noticeable symptoms when I found out that my uncle had celiac disease. Since I already knew about the disease from a family friend, and I knew it was genetic, I had myself and both of my children tested, fully expecting the tests to come back negative. I was wrong, all three of us came back positive. We immediately went on a gluten-free diet and have been ever since. Hopefully, we will stave off the worst effects of the disease by finding out early before we really started to suffer.

G-Free

Posted

Very glad to hear you caught it before having serious problems. Keep up the good work in being gluten free. I know your children will appreciate it. It is hard work looking at all the ingredient labels and such. I have made a decision to try to go to as natural a diet as possible. Lots of fruits and vegetables etc. I still crave a good sandwich or slice of bread, but I do not give in. Good luck to you and yours, stay well.

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