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Being Compared


Melissa Mandrick

3,016 views

Once my celiac disease was compared to a person with a peanut allergy! They have nothing to do with each other.😠

4 Comments


Recommended Comments

Scott Adams

Posted

They are different things, but before general celiac awareness many people just said I have a "wheat allergy" when going to restaurants because it was a lot easier than trying to give a lecture to a waiter about celiac disease. For better or worse, this approach sometimes worked better, especially back in the 90's, because then the waiter took it far more seriously. Now most people know about celiac disease, but not all take it seriously.

Melissa Mandrick

Posted

2 hours ago, Scott Adams said:

They are different things, but before general celiac awareness many people just said I have a "wheat allergy" when going to restaurants because it was a lot easier than trying to give a lecture to a waiter about celiac disease. For better or worse, this approach sometimes worked better, especially back in the 90's, because then the waiter took it far more seriously. Now most people know about celiac disease, but not all take it seriously.

I get it but, Is it right for the schools general manager food services to say that used because he thought it was to bothersome to take my safety inconsideration when I told him that the lunch ladies were cross-containing a newly diagnosed patient and the lunch ladies lied about the whole situation of uncooked noodles hard as a hockey puck banging of the table hamburger and more. My family gets free reduced lunches but my parents had to send a lunch to school with me because no one in the school cared for my safely for 4 years of highschool. Thousand of dollars just so I can eat lunch at school. Is that ok in your eyes?       

Scott Adams

Posted

Definitely not ok, and this should really be a forum thread, instead of a personal blog post. Consider starting a thread on this topic here:

https://www.celiac.com/forums/

Awol cast iron stomach

Posted

20 hours ago, Melissa Mandrick said:

I get it but, Is it right for the schools general manager food services to say that used because he thought it was to bothersome to take my safety inconsideration when I told him that the lunch ladies were cross-containing a newly diagnosed patient and the lunch ladies lied about the whole situation of uncooked noodles hard as a hockey puck banging of the table hamburger and more. My family gets free reduced lunches but my parents had to send a lunch to school with me because no one in the school cared for my safely for 4 years of highschool. Thousand of dollars just so I can eat lunch at school. Is that ok in your eyes?       

It is unfortunate this happened to you. Now years later your frustration and anger comes through. How challenging and hurtful to you. From you description they were quite dismissive to you.

I commend the love your parents have/had for you to sacrifice to insure your safety during high school by sending a safe meal. I know some school districts have a nutritionist on staff. This does not sound to be a factor in your case. It sounds like  the staffing in the food services dept in your case did not understand your condition and lacked training. 

May I suggest for you future blog readers (your posts may help) that in addition to sending a lunch like your wise parents did, they ask to speak to the nutritionist of the district (who maybe at an administration building not in the lunchroom). As she or he would be more likely to know what celiac is and train / oversee the service food prep staff.I

However even if this occurred for you (which it didn't) it is likely your parents still would have sent your lunch to ensure your safety, not knowing if the lunchroom staff could keep you safe.

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