Thiamine Thiamine Thiamine

Knitty Kitty,

Thank you for starting a blog post about this information.

Test(s) often marginalize a deficiency even when taking a B-Vitamin/complex can help many people even when the cut-off for the test show a marginal deficiency.

See this research that shows over a 1/3 of women in the UK  has a marginal Riboflavin deficiency and nearly a 1/2 of men have marginal Riboflavin deficiency depending on EGRAC score/method used to determine the deficiency.

They have thus argued another cut-off level for a Riboflavin deficiency needs to be established to recognize the true rate of Riboflavin deficiency.

See this research entitled "Effects of methodological variation on assessment of riboflavin status using the erythrocyte glutathione reductase activation coefficient assay"

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We know this is happening on regular basis because "marginal Riboflavin" status IE a normal test.....for Riboflavin status using the current EGRAC standard helps young women with their Iron abnormalities....

And Riboflavin is a common(ly) over looked cause of Anemia in women proven by it's ability to shield woman from developing low iron (anemic levels) while and after Riboflavin supplementation.

See this article about this issue with Low (Marginal) Riboflavin after supplementation helped Iron status in young women in the UK. 

Here is the research about this issue entiled..."Correcting a marginal riboflavin deficiency improves hematologic status in young women in the United Kingdom (RIBOFEM)"

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It a (marginal Riboflavin deficiency) is also been shown to be occurring in other affluent countries as well not thought to be caused by poor nutritional status....

See this study about women in Canada having the same issues with "Sub-Optimal levels" of Riboflavi and higher rates of Anemia...

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And Note: this is in tests that within in accepted normal ranges....depending on what cut-off EGRAC value is used to determine the deficiency....

And remember this is worse in men....men have a worse/higher levels of marginal/low Riboflavin status than women.

I had this happen to me!  I had low T before taken Riboflavin and the beginnings of a thyroid problem due to my low (undiagnosed) Riboflavin levels.....

Except I had Angular Cheilitis too!  A classic sign of a Riboflavin deficiency!

And the Doctor still missed my undiagnosd Vitamin deficiency.

As always I hope this is helpful to the next person in line....but it is not medical advise.

Ignorance of Vitamin deficiencies  is killing people IMO....at least it was in my case...

And all my doctor could tell me was to stop licking my lips (so much) because it was the reason for my Angular Cheilitis (Leaky Lips) that crusted over with sores!

As always, 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things”included.

Stay Safe!

Posterboy by the grace of God,

Posterboy,

Lol, I had low T, too, and I'm a girl! And the angular chelitis, chapped lips, and a waxy, flaky rash around my mouth, nose, chin area!  

The doctor wanted to do an implant for the testosterone levels, but I didn't get it.  He couldn't explain why the testosterone was low in the first place, so I knew it would be just a bandaid without getting to the root of the problem. That doctor was just one of the many doctors who completely missed  my vitamin deficiencies.

I agree, doctors and people in general overlook vitamin deficiency symptoms.  Ignorance about vitamin deficiencies nearly killed me, too.  

Thiamine, Riboflavin, Niacin and Vitamin C should be taken every day.  Especially with the CoVid virus around because these help your immune system so much!

Thanks for sharing!

Knitty Kitty

Knitty Kitty,

I think you have probably read this before but it is worth sharing for others who might run across this thread for others' still searching for a cause of their co-existing issues not directly related to their Celiac diagnosis like horrible fatigue.

See this Hormones Matters article about how Vitamin deficiencies like a Thiamine deficiency must reach a "Tipping Point" before doctor's begin to diagnose a Thiamine deficiency as Beri Beri....

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quoting from the article....

"Neurological symptoms become apparent when cerebral thiamine concentrations reach 20% of normal.  Recovery begins when those concentrations climb to 26% of normal. At least in rodents, one has to deplete 80% of the brain thiamine stores before overt neurological symptoms become apparent; 80% – that is a huge deficit.  Similarly, it doesn’t appear to take much to right that deficit, only a 6% increase in thiamine concentration set the course for improvement."

And sadly that is why 80% of Beri Beri being diagnosed mostly as Wernicke's encephalopathy or WE and only in Alcholic's....is missed!

I know I was one of those 80% they missed because I didn't wasn't drinking alcohol they automatic assumed I couldn't have a Thiamine deficiency.

The problems is a Thiamine Deficiency will Thin Villi long before Neurlogical symptom's ever show up!

See this Posterboy article that argues that it is just such a Thiamine deficiency that is thinning Villi in Celiac's before the doctor's ever realize Celiac's have developed a Thiamine deficiency.

I hope it helps whoever else stumbles upon your wonder Knitty Kitty blog post about Vitamin Deficiency (ies) in Celiac's.

Here is where at least another or one other researcher has figured it out that many of the GI problems one develops can be  a "Forme Fruste"  of Beri Beri calling the GI problems Gastro Beri Beri instead....

See this research entitled " Gastrointestinal beriberi: a forme fruste of Wernicke's encephalopathy?"

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I hope this is helpful but it is not medical advise.

Posterboy by the grace of God,

I overdose on B6, B12, take a little of Biotin. Increase energy for the body and mind.

But also add in Amino Acid deficiency testing is needed for Celiacs. 

Anonyous Cda,

If you want to increase energy for your mind, try Lipothiamine.  It's a form of thiamine that will cross the blood brain barrier.  It's available on Amazon.com.  

6 hours ago, AnonyousCda said:

I overdose on B6, B12, take a little of Biotin. Increase energy for the body and mind.

But also add in Amino Acid deficiency testing is needed for Celiacs. 

I'm trying out Berberine in helping healthy gut flora.  That in return proper digestion and increasing nutrients. 750mg to 1000mg a day.  I hoping to loose weight around the belly as well. lol

So far Berberine two thumbs up.

I feel more full after eating. Losing weight little by little without working out. More energy. Bladder is on extreme but that has been going on since after recovering from covid. I always had a little to much water retention and water weight. Zero blotting, a bit of constipation, no diarrhea proper number 2. 

Going for 3 Pills 500mg each = 1,500mg a day.