When Myth becomes Medical Fact People suffer unnecessarily The Case of Mistaken Identity of How Pellagra Sine Pellagra now thought to be a rare disease became known as Celiac Disease today A Grey Paper
Entry posted by Posterboy in Misdiagnosis of Pellagra Sine Pellagra as Celiac Disease aka Related Issues and Disorders
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When Myth becomes Medical Fact people suffer unnecessarily; the case of mistaken Identity: How Pellagra now thought to be rare today
Celiac.com Sponsor (A13):
became known as Celiac Disease — A White Paper better said as a Grey paper or ahead of Print Paper
To Who Ever might read this......may it be a blessing to you......this is the Capstone blog post to more than 12 Plus years of research.
May it bless you to read it. Blessed are those who read it and understand and put into practice in their lives, I pray!
I called this a grey paper and or white paper because it is the first time I know this conclusion/hypothesis has appeared in print in any form
(note: this is a REPOST from a former blog post) and 2) it has not been proofed by other medical reviewers). These thoughts are my own and
do not reflect the opinions of Celiac.com. and should not be considered an endorsement by them.....but is for use only as education on the part
of the reader......but hopefully after you have read it all (or other Posterboy blog post) you will not have any remaining questions.....
Getting a Peer review paper published requires you agree with the previously published papers and since this is “A New Thinking’ in Celiac disease
it is rejected and thus can’t be published by Peer review journals……thus making it a Grey Paper…..kind of like MedRxiv.org etc. and
preprint editions on COVID-19 papers etc.…….the results are NO less valid but not approved (as of yet) by their peers.
See this article about this topic of Grey Papers or Prepint findings not medically reviewed…..
https://newatlas.com/medical/anti-inflammatory-drugs-risk-chronic-back-pain/
Quoting their results
“The researchers are aware their findings will likely be controversial as treating acute pain with anti-inflammatory drugs
has been standard practice for decades. Speaking to STATnews Mogil said the research team faced challenges getting
the new study published in a journal as peer-reviewers were concerned at the radical implications of the findings.”
Medical researchers don’t like surprises…..it means they have been wrong about their conclusions all this time…..and that makes them look bad……
and they don’t like that…..so they won’t print any “New and Original” thinking that contradicts their established Dogma (teaching) about the topic.
Now begins the Posterboy blog that is modified to show that when Pellagra Sine Pellagra showed up in Wheat based “Food stuffs”…..
it was not properly understood as a lesser form of Pellagra that showed up almost exclusively in Corn based “Food Stuffs”
and was mistakenly given a new and trendy diagnosis of Celiac disease and/or NCGS instead thus passing into history as Medical Fact
too this day a Case of Mistaken Medical Myth.
Note: For simplicity this Posterboy blog mentions Pellagra and not Pellagra Sine Pellagra, though Pellagra is also Pellagra Sine Pellagra
plus Skin issues etc. Really in most cases 2/3 of the time only Pellagra Sine Pellagra ever develops……unless you also develop Skin issues
like DH, Acne, Psoriasis, LUPUS or Sjorgen’s disease etc……then you have developed full blown Pellagra going misdiagnosed……
otherwise the information contained below is accurate as I can make it…..keeping in mind I wrote this originally from the viewpoint
that Wheat (IE Gluten) was triggering Pellagra (aka Low or NO Stomach Acid) where before it was being triggered by Corn and this confused
the medical (and still does) to this day. If you want to see other Posterboy blog posts on Celiac.com just search for the Posterboy
of both Pellagra Sine Pellagra and Celiac disease.
Pellagra is/was first identified as occurring in Corn based feed stuffs it is/was only natural that when STRESS (WWII) triggered it.....
(Celiac Disease/Pellagra by another name) in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was
being described/created to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken
for Pellagra if the diet was Corn based.
So this medical myth became medical fact in the 50’s and it has not been challenged really until the functional medicine doctor Prousky
conclusively proved Niacin treats digestive problems just as Pellagra Preventive Factor Vitamin B-3 did then protect (cause remission) people
from Diarrhea, IBS, and other GI problems not yet classified in the early 20th century so too can/does Niacin(amide) (I believe) now treat
Celiac disease today because Celiac disease was the first time Pellagra was described in a wheat based diet. The One (Pellagra faded away)
and is replaced now by Celiac disease.
See Dr. Alessio Fasano’s 5 myths about (of) Gluten in the Washington Post a founder and director of the Center for Celiac Research
at Massachusetts General and Author of Gluten Freedom.
I want to talk about his 5th myth today. 5) If you have Celiac disease as a child, you will outgrow it.
In the same point he contradicts himself (as people often do when they don’t understand the cause of something) when he says to close his point
quoting Fasano “Another milestone was when we determined that people can develop celiac disease at any time in their lives, even into old age.
Now we know it is a permanent condition, and the best medical intervention we have is a gluten-free diet.”
Which is it Doc? You don’t grow out of it but you can grow into it?
Is it a genetically triggered disease which patients can’t outgrow? Or is it a disease triggered in time
If you doc are saying your chance of Celiac disease increases with time as you cite then clearly genetics is not the trigger?
Clearly doctor you don’t understand the trigger.
It makes more sense to say if as child you encountered something in your environment that triggered Celiac disease then you could get better
if the trigger (STRESS) was removed just as in older individuals who had not YET encountered stress in their live HAVE not yet triggered
Celiac disease genes in their life.
One has been substituted for the other. A myth has become (medical) fact. It happens a lot more than you think.
See Dr. Dana Myatt’s seven-not-surprising-health-updates-from-2015 she call’s them kindly calls them “updates” but they were really myths.
Something told as truth/fact but still persists though proven untrue.
If Dr. Fasano is still telling people it is genetic (only) disease but in the same post says you can develop it in old age ONE is wrong?
OR it doesn’t well explain what is actually happening.
To investigate further his comments in point 5 Dr. Fasano cites Dr. Dicke’s work in the 1950’s
“After watching the mortality rate of children with Celiac disease drop during World War II,
Dicke suspected that the decline might be related to the scarcity of bread at that time.
Still, it would be decades before the notion that you can outgrow Celiac disease was challenged.”
Let’s consider our environment here for a second – WWII. I would say that is a pretty STRESSFUL environment to say the least.
Any war is stressful but a world war could/might trigger any number of syndromes. So the further we get away (in time)
from that stress it only makes sense these children’s health would improve tremendously.
And while there was a scarcity of wheat and any food stuffs to a degree (specifically high quality meat proteins known to hold Pellagra at bay)
what was not taken into account when considering the possible causes of Celiac disease was you guessed environment (STRESS).
Have you experience a lot of stress in your life. Then you are experiencing what researchers are now discovering (again)
Lifestyle is risk factor for Celiac Disease
and you can develop Celiac Disease at any age (see citation above “Celiac disease risk increases as you grow older
(again at ANY AGE) as Fasano himself has proven (again not genetics only) there is a trigger he is still missing because
he doesn’t understand completely why this is happening.
Now if stress was the only trigger then Celiac disease would of/have shown up in other theaters’ of war presumably
the pacific theater as well. But here it is silent.
Let’s see if we can’t figure out why?
The answer lies in food fortification?
I quote “In the U.S., only 40 percent of the nation’s manufactured flour was enriched, because smaller companies continued
to produce cheaper unenriched flour to compete with larger manufactures. In 1942, the U.S. Army decided it
would purchase only enriched flour.” Which lead to all (100 percent) of the flour being enriched with what was
called the Pellagra Preventive Factor at the time the newly discovered third Vitamin or
what we know today as Vitamin B-3 Niacin.
See this article entitled "Food fortification spurred by military purchases" https://www.eurekalert.org/news-releases/634050 for a great summary.
And while flour as a rule was scarce in Europe during WWII especially in latter years what is often overlooked is that the flour
that did arrive now had Pellagra Preventive Factor enriched in it aka Vitamin B-3 or Niacin today put the Celiac crisis in remission.
A Pellagra outbreak was already successfully quelled once with fortified food stuffs when the Red Cross reversed its incidence during
the great flood of 1927 by following Goldberg’s directive of distributing yeast a good nutritional source of Vitamin B-3. See this link
http://www.encyclopediaofarkansas.net/encyclopedia/entry-detail.aspx?entryID=2230
Remember Celiac Disease was not classified as a definable disease until the 1950’s when Dicke hypothized that the lack of wheat in the diet
improved what was then also known as Gee-Herter’s disease when really it was the presence of Pellagra Preventive Factor as correctly
hypothized by Goldberg in the 20’s that caused Pellagra to go into remission in the European theater.
I note again for emphasis “After watching the mortality rate of children with Celiac disease drop during World War II,
Dicke suspected that the decline might be related to the scarcity of bread at that time”
If stress is a trigger for disease and it is. WWII should of increased Celiac disease UNLESS enriched bread with Pellagra Preventive Factor
became MORE common and it did halfway through/during WWII in 1942 exactly when we might suspect improvement in Pellagra patients
if indeed Celiac disease (Pellagra misdiagnosed) was now being diagnosed in patients who primary dietary staple was wheat and not Corn Maize
where/when it was first described/diagnosed in the “War on Pellagra” as summarized well by Dr. Heaney here
http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/
Because Pellagra is/was first identified as occurring in Corn based feed stuffs it is only natural that when STRESS (WWII)
triggered it in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was being described/created
to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken
for Pellagra if the diet was Corn based. But we got lucky in a way. The US Army knowing the old adage “an army marches on its stomach”
got smart and begin requiring all its flour to be enriched thus not only reversing a developing epidemic
(Pellagra confused for Celiac disease in Europe) but the US Army not only fighting/keeping in remission Pellagra in its own soldiers
but the whole country and continental Europe benefited.
For when the Army required enriched flour the country went from 40 percent enriched flour to 100% enriched flours and this
new developing epidemic of Celiac disease went into REMISSION too (just as Pellagra too was beaten in the poor South) indicating
an environmental trigger 70+ years ago and still (confused) experts in the field saying things like myth #5 not only can you not grow out
of it as a child but YOU can grow in to it as an adult. Stop the Madness!
How much longer must people suffer before we relearn histories lesson’s that STRESS triggers sickness and Vitamin’s make us healthy?
I sometime think we have been hit with this “genetic stick” so much if we don’t understand something well it must be genetic then.
We don’t understand it so it must be genetics.
Some researchers’ are finally waking up and saying NO Lifestyle is risk factor for Celiac Disease you can get Celiac disease at ANY age.
But even doctor’ Fasano doesn’t understand STRESS is the trigger!
Why else quoting Fasano again would you say “The fact that about 1 percent of the population is affected by Celiac disease,
while almost 100 percent of humankind is exposed to gluten-containing grains, is evidence that these grains are safe for most people”
and in the same article say “ Another milestone was when we determined that people can develop Celiac disease at
any time in their lives, even into old age.”
IT IS NOT GENETICS’ ALONE if you can increase your risk at ANY age. Their might be a pregenetic disposition if STRESS is high enough.
Then after saying that we “determined that people can develop Celiac disease at any time” he says exactly the OPPOSITE thing.
Quoting Fasano again in his VERY next statement “Now we know it is a permanent condition, and the best medical intervention
we have is a gluten-free diet. “
NO doctor it is not permanent or you could not develop it at ANY age. The best medical intervention is vitamins specifically
Pellagra Preventive Factor now known as Niacin(amide) Vitamin B-3 as Prousky proved over almost 15 years ago Niacin
treats digestive problems.
See this Italian Study on Pregnant women prove this summarized by Very Well health that I have subtitled
“First Comes Baby, then Comes Celiac Disease”
https://www.verywell.com/can-pregnancy-trigger-celiac-disease-562302
I could go on . . . all the inconsistencies trying to fit a round peg into a square hole. EVEN though he say’s and research (HIS) bares it out
that it NOT genetic’s alone he (Fasano) can’t let go of his genetic paradigm . . . you want to say . . .
wait a minute this disease develops at any age but you still say it is permanent.
No your argument has holes in it that doesn’t fit the disease patterns. But Epigenetics (Environment/Stress) triggering this disease does.
And Epigenetics is reversible just as Fasano research bares out IS triggerable at any age.
And other researchers agree Researchers have not been able to explain why Celiac Disease develops until now;
Part 2 Epigenetics (STRESS) discovered as the cause of Celiac Disease/NCGS by the Celiac Posterboy.
“According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which
we’ve never understood…[t]here is an environmental trigger.“
To summarize I will quote for emphasis me The Celiac Posterboy what I said earlier in this blog post because
“Pellagra is/was first identified as occurring in Corn based feed stuffs it is/was only natural that when STRESS (WWII) triggered it
(Celiac Disease/Pellagra by another name) in wheat based grain diets that doctor’s didn’t see the similarities. So a new disease was
being described/created to explain why wheat consuming people developed a malabsorption syndrome that could/would be mistaken
for Pellagra if the diet was Corn based.”
So this medical myth became medical fact in the 1950’s and it has not been challenged really until the functional medicine doctor Prousky
conclusively proved Niacin treats digestive problems see above citation just as Pellagra Preventive Factor Vitamin B-3 did then protect
(cause remission) people from Diarrhea, IBS, and other GI problems not yet classified in the early 20th century so too can/does Niacin(amide)
(I believe) now treat Celiac disease today because Celiac disease was the first time Pellagra was described in a wheat based diet.
The One (Pellagra faded away) and is replaced now by Celiac disease.
See my earlier post where I quote Dr. Heaney of Creighton University and he says as much “Pellagra is a disease of the past”
see this link for the whole article Dr. Heaney does correctly state” it is doubtful today that most health professionals (doctors)
would recognize it if a case (of Pellagra) happened to come to their attention.”
http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/
And why should they when Celiac disease has replaced it (Pellagra) today!
Well it is not as in the past as people/doctor’s think it just known (goes) now as Celiac disease TODAY! unless your an alcoholic and homeless.....
then the doctor's can spot it.....but only if you are also a drinker etc.....it is affluent confirmation basis.....or as Dr. Derrick Lonsdale call's it...
High Calorie Malnutrition.....but we know from the Russian Japanese War Circa 1904 to 1905 and the Japanese Navy/Army Beri Beri
can still develop even in well fed troops if their Carbs to Protein ratio exceeds 15 to 1 Carbs to Protein ratio etc...
See this article about it....https://medium.com/war-is-boring/eating-too-much-rice-almost-sank-the-japanese-navy-f985772c81a6
And is a precedent for how Pellagra Sine Pellagra and/or Pellagra showed up in the middle of WWII in Wheat Based Food Stuffs
and the doctor's after the war..... created a new disease from the symptom's......and it has been wrong ever since IMHO.
I called this a white/grey paper because it is the first time I know this conclusion/hypothesis has appeared in print in any form.
How do we know this is true? We can’t really UNLESS we are willing to try The Niacin (Niacinamide) Challenge and
see if your digestive problems don’t’ go into remission as Prousky proved almost 15 years ago this year.
You can find the Niacinamide Challenge by Googling for it and you should see it by the Celiac and Pellagra Posterboy.....
What have you got to loose.....it is a water soluble Vitamin shown to help GI problems....
We can’t really prove this until medical trials are performed. “Keys” as I call them. Or can we....see the Addendum at the
end of the blog post.....I think we can and I have found the research that show 50+ years old Celiac's were shown to
have trouble with Tryptophan metabolism.....showing at least Metabolically Pellagra is occurring in Celiac's and it
has been over looked by modern medicine in this genetic age when it is/was Epigenetics all along!
See my blog post To Educate is to Free by the Celiac Posterboy if you want to read more about this.
There are reason’s the doctor’s don’t find Pellagra instead of Celiac disease it is partly because they are commonly
taught that “Pellagra is a disease of the Past” to quote Dr. Heaney.
But we can “buzz” the doctor’s with this information till they submit to either let you take the Vitamin see my post
Who’s Afraid of a B Vitamin or through your improvement/remission assent to do “key” studies proving (again) what the Canadian research
Prousky discovered 15 years ago this year that “Niacin(amide) treats digestive problems”
And what’s worse 35+ years ago researchers proved that Celiac disease happens when we get low in stomach acid
or have NO stomach acid to protect us against the proteins in our diet we are eating…….
See this research that show NCGS and Celiac disease start with Low and/or NO Stomach Acid in the case of DH especially.
Entitled “Gastric morphology and function in dermatitis herpetiformis and in Celiac disease”
https://pubmed.ncbi.nlm.nih.gov/3992169/
Where they note quoting
“The frequency of achlorhydria (aka NO stomach acid) was significantly higher in patients with dermatitis herpetiformis
than in 69 patients with celiac disease.”
And it is worth noting……this study was in ACTIVE Celiacs ……not in candidates….so we can say with Certainty……
this is happening in Celiac’s and continues to --- TOOOOOO! this day!
Because we can say with certainty (above 90+ percent) in DH patients and Celiac’s will have little to NO stomach acid.
Quoting again….
“Antrum-sparing chronic atrophic gastritis was present in 92% of the achlorhydric patients, (remember this is in ACTIVE Celiac disease)
and hypergastrinaemia and serum parietal cell antibodies were found in most of them.”
And yet the doctor’s toooooo this day are still groping in the dark still looking for answers in all the wrong places…….
I said it here first healing for Celiac’s begin in the STOMACH because it protects us from the (now) harmful proteins IE food allergen
like CASEIN and GLUTEN that are still passing into our (your) small intestines UNDIGESTED.
I always say share – share what you learned here today! (Class/reader) because a lot of people are suffering unnecessarily
while the doctor’s find the right (keys’) disease.
Tell someone (share) is all I ask Are You a Starfish (Part 2 – of a Former Sufferer’s Journey) tell others is all I ask –
when you are BURPING for the first time in years or (EVER) – tell a friend about this blog is all I ask but don’t let the chain break with you.
There a lot of starfish (sufferers’) who need help.
See my Celiac Posterboy WordPress blog entry To Educate is to Free Part Two: A Physician’s Guide
If you want to try and educate your doctor and think he will listen.
I argue (maintain) theorize that based on triggers in our environment we get low in stomach acid and THEN develop Celiac disease
and if you want to read more about how there are two Types of Celiac disease please see and read this Posterboy blog posts
that explains how there are two types of Celiac disease today a Type I (one you are born with) and Type II (one triggered by the stresses of life
and is reversible for any thing triggered is reversible once you understand it).
Blessed is everyone who reads and understands it…..because then healing and recovery can take place.
And before everyone gets all upset…..this what even modern medical science has confirmed today!
That Tryptophan heals Villi in Celiac’s proving in IMHO that Pellagra is going undiagnosed in Celiac’s and especially Dermatitis Herpetiformis
patients aka DH in Celiac’s and other skin diseases in Non-Celiac’s.......I say it is about TIME! ......they are 50+ Years late according to the research!
Sadly it will take another 20+ years (a generation) for medical practice to catch up to medical science (IF then Sadly)…..
remember the research on Low (really) NO Stomach acid in Celiac’s and DH patients is over 35+ years old……
and they (doctor’s) still don’t get it today!
*** Remember: This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes
to your medical regimen. But mine has taken The Niacinamide Challenge and his digestive/GI problems are in remission.
The Celiac and Pellagra Posterboy by the Grace of God,
2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;
4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith
we ourselves are comforted of God.”
2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.
ADDENDUM
Found this research this week that confirms the same thing 50+ years ago that modern medical science has forgotten.
That Abnormal Tryptophan Metabolism is Occurring in Celiac disease confirming a diagnosis of Pellagra at worst and Pellagra Sine Pellagra at best!
https://pubmed.ncbi.nlm.nih.gov/14169518/
It is worth noting that this is BEFORE Celiac disease was known as a “Genetic Disease” and we have been wrong EVER Since IMHO!
Those who don’t learn from history are doomed to repeat it!
To whom ever has read down to the end of this Celiac Posterboy "Magnum Opus" blog post may God be with you in your continued journeys in life!
And God Speed as you continue in your recovery. If this blog post has helped you in anyway......check back in and let other knows it was helpful
to you....... PTL!
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