Debado

Is there a particular reason you created a blog for this topic rather than posting your question in one of the regular forum topic sections where it will get more eyes?

I am new here. Don't know how to do that

Go to the main web site home page: celiac.com. You can type "celiac.com" into the internet browser address window and hit enter. That will take you to the web site home page. Then click on the "Forums" tab (I have circled it for you in the attached pic). Scroll down the page and choose a topic appropriate for your issue and click on it. You can create a new topic post in that section. I think when you get there it will be obvious how to do it.

Welcome to Celiac.com, @Debado,

Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines.

Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.  

Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.  

Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.  

Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.  

Riboflavin B2 is very helpful for relieving migraines.  

Have you been diagnosed with Celiac Disease or suspect you have it?  

Happy Holidays!

Thank you for that information.  I had no idea about that. I have not been diagnosed with Celiac the Dr says I have gluten intolerance.  I don't have any symptoms other than migranes from gluten and from coconut oil.  I hate the medicine they gave me for migranes.  It makes my blood pressure go up, is a diaretic so I am up all night then feel dehydrated the next day. I want to stop the migranes without medicine. I want to go natural. Dr doesn't know why I only get the migranes at night. So was hoping others may have the same problem. 

How did your doctor arrive at the gluten intolerance diagnosis?   You may want to consider finding a different doctor, one who is more familiar with Celiac disease.  

To be properly tested you will be asked to undergo a gluten challenge.  I'm attaching an article below.  Also consider getting a DNA test to look for the genes needed for Celiac disease to develop.  

Yes, I hated my migraine meds, too.  Diuretics are bad news.  I have Celiac disease.  I follow the Autoimmune Paleo diet, all natural.  I do supplement vitamins and minerals to ensure I can easily absorb them since Celiac disease inflammation can affect nutrient absorption.  Since going gluten free and taking vitamins, I don't get migraines.  

What medicine did they give you for migraines? Does it help much? I also suffer from migraines and am on one med for prevention and another for relief after onset. Many times, my headaches start during the night when I'm sleeping but not always.

Have you cut back on gluten consumption of late? As knitty kitty explained, you must have been eating generous amounts of gluten for at least a period of weeks for celiac testing to be valid. Many make the mistake of seeking testing and diagnosis after already experimenting with the gluten free diet.

One thing to realize is that reactions to foods don't necessarily happen immediately after eating. There can be a delay of 24 hr. So, when you say you don't get the migraine after eating gluten that may not be true.

Interesting....my Dr says since migranes are my only symptom she says I have gluten intolerance.  I have stopped eating gluten.  However, it seems to sneak in from time to time. Example: I ate canned mushrooms! Never thought canned mushrooms could have gluten, but they did. I had a migrane for 3 nights straight. Or I eat out, I think I am getting gluten free food, as they say it is, then bam I am sick! So I guess I am still learning.  Lol. Really socks.  Everything I read about this nowhere does anybody say they get migranes at night. So just trying to understand what is happening with me

I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance?

But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different medical problems connected with gluten.

As I said, there are two medical conditions associated with these terms. The proper term for one is "celiac disease". For a person with celiac disease, gluten consumption causes an autoimmune reaction in the lining of the small intestine that creates inflammation and, over time, damages the lining. 

The proper term for the other medical condition condition connected to gluten ingestion is Non Celiac Gluten Sensitivity or NCGS. It shares many of the same symptoms with celiac disease, is 10x more common than celiac disease, but does not cause damage to the lining of the small intestine.

There are specific blood tests that have been developed to detect celiac disease. The inflammation it causes produces "antibodies" that can be detected in the blood with these tests. Another diagnostic measure when celiac disease is suspected involves a biopsy of the small bowel lining to check for damage.

Since NCGS does not produce inflammation of the small bowel lining and, therefore, no antibodies, there are no tests for NCGS. Celiac disease must first be ruled out to arrive at a formal diagnosis of celiac disease.

Now, I am assuming, since you say you have no symptoms other than migraines, your doctor is implying he things you have NCGS when he uses the term "gluten intolerance". 

How long have you been suffering from migraines? If they are of recent onset it is still possible you could be in the early stages of celiac disease with other symptoms to follow if you were to continue to consume normal amounts of gluten. But it sounds like you are attempting to eliminate gluten but having mixed success.