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My Poor Son!


Guth 101

988 views

I took both of my kids to the doctor the other day. I told her that my GI doctor highly suggested that I get them tested for Celiac since it is hereditary. I was thinking if either of my 2 boys were positive, it would be my youngest.

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My oldest son's tests were all within normal range.

My youngest son's tests were:

IGA 176 (Greater than 31 positive)

IGG 107 (Greater than 31 positive)

Endomysial titer 1:320 (Normal none detected to <1:10)

TGG AB IGA 26.3 (Greater than 7 positive)

 

Waiting to hear what the doctor suggests that we do. Not sure if they do the endoscopy/ biopsy for kids or not. Also not sure if he should have some basic labs done for a baseline. He will be 8 next month.

I think this will be a struggle for me for a while... just thinking about having to make cold lunch everyday and being able to give him a variety seems like it will be difficult.

Interested in any suggestions...Thanks!

3 Comments


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mom with gf toddler

Posted

Hi, I have a 2 year old 7 months out from celiac diag and at that time had the whole fam tested. My husband was postive and almost fell off his chair. I wonder about my 6 year old who was neg, but the more I read and found out about celiac disease the more I seem to attribute any stomach or eating problems with this. I will get him tested again, but as for having to change his diet if that were the case it seems like it would be the hardest thing since this child will not eat any meat or veggies, but can consume 2-3 doughnuts if given the chance. As for my 2 year old I was horrified at the thought of limiting his diet since he already has allergies to milk, egg and peanuts, but now that we have been doing gluten-free for 7 months I can say that the gluten-free is not as anxiety causing for me than the food allergies and I am hoping he will outgrow the allergies and just have to deal with gluten-free. What kind of symptoms does your child have? I never realized how much any school function/holiday/sport involved food!
Guth 101

Posted

Thanks for the reply. Sounds like we are on the same page. My son's only symptoms are excessive gas, foul smelling mucousy stool, frequent abdominal discomfort, and small stature. His pediatrician set him up with a GI doctor this Thursday (pending my insurance approval... the doc is not covered by my insurance, but there is no peds GI in our plan and the adult GI's who are in my plan do not take kids under 18). His doctor said he needs to have a biopsy done and she thinks he will take off growing when he goes gluten-free. We both attended a local Celiac meeting today and he was able to taste a few different foods. Some he liked, others he didn't. All of the things they had were "junk" type food though. He does love meat, fruit, and veggies thank God! Hard to send fresh meat in a lunch box though. Can't use the processed meats that the stores sell. Hopefully the GI doc will have some suggestions for that type of stuff.
P.S. My son loves doughnuts too!! 🙂 (And poptarts, cereal, etc.) That will be hard for him!!

baileesmomma1

Posted

Hi,
My daughter is 8, she was diagnosed with type 1 diabetes when she was 2, and celiac at the age of 5. My son is 11 and has been tested for celiac as well but all of his blood work came back in the normal range. I have always made cold lunch for my kids for school, but for my daughter she was a challange at first. I have found that she really loves Hormel brand turkey pepperoni, I also pack her gluten free rice crackers, or tortilla chips, all natrual juice, a fresh fruit, and gluten free cookies. Most of our local stores now offer a great selection of gluten free product that children will love. Another tip is to get a new toaster that is just for gluten free bread, it tastes better toasted. Also you will be able to find gluten free waffles that taste great toasted. For your son's craving for doughnuts, go to www.sunnyvalleywheatfree.com, this is a store that my husband and I just found. Our daughter was able to eat a glazed doughnut with rainbow sprinkles for the first time in 4 years just yesturday. She was very extremely excited. Birthday's can also be a challange, but I have found many different gluten free cake, brownie & cookie mixes. They are very easy to make and they taste really good as well.

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