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Welcome To My Journal


jen2be2

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Ok, it has been a long while since I have attempeted to journal and I figured that it was about time that I tried it again.

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So much of my life has changed in the last couple of years and months that I will try to sum it up in bullet points and get to the daily grind stuff pretty fast.

 

1. Dh and I met in 1995, got married 1999.

2. Had Serena in 6/2000

Serena had heart surgery 7/2000

3. Had Jiselle in 12/2001

4. Had m/c in 1/2003

5. Had Hayden in 10/2003

6. Had m/c in 2/2004

7. Had Shaylin in 5/2005

8. DH got V in 9/2005

9. Moved to GA in 12/2005

10.Shaylin digonosed with Celiac 12/2006

11. Jiselle got digonosed with Celiac 1/2007

12. DH and I are carriers for Celiac, Hayden is a carrier for Celiac~ 1/2007

13. April '07 we moved back to CA.

14.August '07 Hayden is dignosed with receptive/expressive language delay with severe articluation. Starts speech therapy. We are told that we have to wait until he enters school before they will dignose him with ADHD as they think he is "too young" to make a dignosis. <_<

15. Nov '07 Jiselle's DEXA scan shows that she has low bone density. Still trying to find out why she has chronic leg pain. On to the next dr...

16. Dec. '07 Hayden reacts strongly to the gluten challenge. We pull him off the challenge for the celiac disease test due to his reverting completly back to a full blown ADHD child behavior.

16. We are in the process of getting the Disney Vacation Club!

3 Comments


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Mosaics

Posted

"Carrier" for celiac disease? Never heard of that. As far as I know, if you have the gene, you have celiac disease whether or not you have noticeable symptoms. And you can pass that gene on to all or some of your children. My mother has celiac disease and 3 of her 4 children have it.

Both of my kids have celiac disease and I have celiac disease, but weren't diagnosed until they were in their teens and I was in my 40's. Both of my children had terrible leg pains. I had them when I was a kid. All doctors said they were "growing pains". No, they are a symptom of celiac disease.

I'm pretty sure there are some articles on this site about the link between gluten and developmental delays/autism/ADD, etc.
jen2be2

Posted

When we found out about Shaylin and Jiselle, we had everyone who was not + by bloodwork to the test to see if we were carriers of celiac disease. As it turns out, Serena is not a carrier, but both my husband and I are. Hayden's genetic test showed on the DQ2 gene that he has the pre-disposition for celiac disease from both me and my husband.

This is taken from the article that our GI gave us prior to us having our genetic testing done. This is from an article published by the University of Chicago Celiac Disease Center.
 

Quote

If I have a gene for celiac disease, does that mean I have celiac disease?[/b]
The gene test does not diagnose celiac disease. It places an individual into an "at-risk" group for celiac disease, which indicates the individual should be closely monitored with antibody testing in the future. When the genetic predisposition for celiac disease was detected researchers noted that the genes were a necessary but not sufficient condition for the disease to develop. In fact, up to one third of the U.S. population has the genes for celiac disease. This means that people with DQ2 or DQ8 can develop celiac disease at any time.

We are doing some further research on to what is causing the leg pain. Hopefully we will have an answer to that real soon.

Mosaics

Posted

Hmm, interesting. My mother's doctor told her that if she has the gene, she has celiac disease. But...what do doctors know? :D

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