Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • entries
    2
  • comments
    3
  • views
    4,407

Gi Update And Christmas News


jen2be2

656 views

Update from the GI from last week....

Celiac.com Sponsor (A13):
 

Shaylin~ She is now in the 50% for height and the 70% for weight(30 lbs. That is up from 18 at this time last year ). The Dr is not so pleased that her IgG is still elavated so we get to do another endoscophy with biopsy after the holidays. She is thinking that Shaylin may not be healing correctly.

 

Then she wants us to see a celiac disease nutritional specialist at UCSD research division after our appt with the food allergist. If Shaylin does have the suspected corn allergy as well, getting enough of the daily nutritional vit.s will be hard. The suckie thing about this is that it is all the way in SD, over an hour drive from here. It is also not covered by insurance~ but they are a resarch facility~ so they ask for $100 donation and then we get to see them anytime we want for nothing else. We also found out that UCSD is getting in a Ped. Specialist who is just for celiac disease! I am going to get more info about it in Jan to see how we can get in to see this person, as this does have to go through insurance.( Hardly any GI's are specialists in celiac disease, but they are the division of Dr's who cover this disease.)

 

We also found out from stool work that Jiselle is consipated and this could be causing her tummy pain. So she also needs to see the nutritionalist to figure out what she can eat or take to help her not be as consitpated.

 

Then Jiselle was prescribed to have weight bearing exersize 2x a week( that is one more class than now)for her low bone density.

 

The good thing is that I can now count off tumbeling and soon to be cheerleading classes on our taxes as a medical RX~ that is of course that we spend more than 7% of DH annual income on medical expenses~which I have no doubt that we do.

 

The Dr also said that since the Ortho department did not have any ideas about the leg pain that we needed to take up the quest for what is causing the chronic leg pain with her primary dr.

 

I was a little shocked that the news was not what I had expected it to be. I had expected to get an all good for Shaylin, until we saw the food allergist and I had expected a referral to another dr for Jiselle's leg pain.

---------------------------------------------------------------------------------------------------------------------

 

Our Christmas

 

We had a great Christmas.

 

My parents made it down on the 24th just fine. We had a nice dinner and went to bed early.

 

The kids got up at 5:30 and we all headed downstairs to open the gifts. The kids really made out like bandits. I got a lot of socks and underwear. Troy also got me some perfume.

 

Later on that night, we took the kids to see Disney Princesses on Ice. It was incredible! Would you believe that they even found a way to set off fireworks inside the arena?

 

The next day, I woke up early and got ready to go to Disneyland.I opened my gifts, which was a really nice bottle of perfume from my parents, Rush Hour 3~Harry Potter and the Maroon Five celiac disease and some Disney Dollars from Troy and the kids.

 

We left here at 8:00 and got there by 9:30.I knew that it was going to be crowded when we had to park in Pumba.

 

And boy, was I right. It was the most croweded I have ever seen, so we did not get to go on any rides.But it still was great to shop.

 

I got a very cute cream tinkerbell sweat yoga type pants and a matching zip jacket, a very pretty watch, mickey "diamond" earrings, a tinkerbell magnet and a licence plate frame.To make it even better, I got 20% off with a cupon.

 

We had lunch at the Blue Byau(sp?), the resturant inside Pirates. We had a table right by the water front. It was wonderful!

 

Afterwards, I went to my jewelry store and tried on jewerly~ which was a lot of fun.

 

At downtown Disney I got some copper colored glitter candles for my bedroom.

 

We left at 3:30 but did not get home until 5:50. We had Chick-fil-A on the way home and it was good.

 

That night, I played UNO with the kids until it was bedtime and I finnished the day by watching Rush Hour 3(I thought it sucked ). Overall, it was a wonderful day.

 

Yesterday we went to Armstrongs and picked out plants for the backyard and went to Target.

 

When I got home, I checked my e-mail for the first time in 2 days and I found out that Disney approved the purchase of the DVC on my birthday~ so we are able to continue with Escrow!

 

On Friday we went to the mall to have Jiselle's birthday picture taken. Then we came home. I baked her Ariel cake for her birthday. She really injoyed it.

 

I can hardly believe that she is 6. It is going by way too fast.

 

___________________________________________________________________________________

 

I am so sick of chores. Yesterday I cleaned the shower (with a toothbrush~ I might add)while the kids were watching Rattatuli(sp?). While I was cleaning the rest of the bathroom, Hayden found the toothbrush and put it in his mouth. Yup~ that's my son. Then I went on to clean the kids bathroom and tried to unclog the kids tub drain.

 

Then I came downstairs and washed Katie's bed, did dishes, cleaned the kitchen.

 

Whoo, I sure know how to have fun.

 

I have to make an appt for Katie. She is doing the butt skoot~ so I am afraid she might have worms. I guess there can't be a part of my life that does not concern poop.

 

I got an Celiac.com update and I printed off some articles. Mainly they are about the gluten-free diet and the change in behavior of kids with ADD/ADHD/Autism. They mentioned the specific carbohydrate diet and a book. It is a gluten-free diet and it is even more restrictive, but I am looking into it to see if it might help Hayden even more than a gluten-free diet. I ordered the book that the article recommended.

 

Oh, I forgot to add that I went through all of Shaylin's baby clothes last night and got them ready to give to someone else. It was so sad. I wish that this was not the end of my child bearing years.

 

Today we plan on taking the kids out to see Alivin and the Chipmunks. Nothing else exciting going on.

0 Comments


Recommended Comments

There are no comments to display.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




×
×
  • Create New...