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Need Some Help?


Alilbratty

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Hello everyone..I am suffering right now and all confused as to what is going on with me.I have been diagnosed with celiac and Fibromyalgia and Hypothyroid disease among other things like arthritis and tons of tummy troubles.My main concern right this moment is that I am losing my hair rapidly.All women out there know this is one of the most horrifying things for us to have happen.I can not seem to get any Dr to listen to me about this.I feel like I am dying slowly and no one will listen to me about how I feel.I am having great difficulty with the celiac diet.It is expensive and I am disabled on SSI .I do the best I can but I know it is not good enough.My Gastro Dr put me on a High potency vitiman and moneral supplement called Glutofac ZX and this seems to do nothing for hair regrowth in fact I am losing it even more.He thinks I am not getting any nutrition from my foods and when I started the diet my body went into shock? I am so confused and I feel so alone here that I am ready to just give up.No one here around me < meaning my home area >cares or understands what I am going through.My scalp is sore to the touch and my hair is fraile and thin.I feel horrible every single day.Does anyone out there share this plight?

Celiac.com Sponsor (A13):
thanks for letting me vent...Cyn

3 Comments


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Mosaics

Posted

I'm sorry you're having such a hard time. Don't be discouraged, though. For many people, going on the gluten-free diet usually helps many symptoms go away. My sister was diagnosed with RA, but her symptoms went away when she went on the diet. They return if she cheats, though. If you need to take vitamins, look for sublingual ones. They dissolve quickly in your mouth and are absorbed immediately into your body rather than going through your damaged intestines, which aren't likely to absorb the nutrients. My daughter takes a sublingual B12 because her levels were outrageously low.

In my experience, the gluten-free diet is only expensive if you feel you must have the speciality items like bread, pasta, gluten-free flours, and prepackaged foods. It's fairly easy to eat healthy and gluten-free without added expense if you stick to things like fresh veggies and cuts of meat from the grocery butcher. I've found that gluten-free brands of packaged cereals are about the same price as the mainstream brands. If you can't afford the gluten-free pastas, sometimes rice is a good replacement and it's cheap.

I don't know anything about losing hair, but I remember someone else writing about it in their blog a few months ago. Go to the forums on this site and read what people have to say. There is a wealth of information there and a lot of people with the same problems you have described. I'm sure they can be helpful and you'll more, and quicker response than on the blogs.

https://www.celiac.com/ 

I have a lot of good gluten-free recipes if you need some help with that. Where do you live? There are celiac support groups all over the country. It might be a good idea for you to get involved with them.

greendog

Posted

Not an expert but the hair loss could be associated with the thyroid problem or it could be a scalp infection caused by the gluten problem. Also, make sure you don't have a yeast (fungus) infection which can lead to scalp infections. A dermatoligist should be able to help isolate the cause. If your body needs some quick nutrition you might want to consider adding some gluten free nutritional shakes to your menu. I use soy or whey protein, pure yogurt, fat free milk, bananas and/or peaches, sometimes gluten free peanut butter to make a quick blender supplement.
Guest

Posted

:rolleyes: seems like there is to end to the problems that come up. I'm so sorry about your hair, maybe a dermatologist? I don't know, Keep looking at the stories and maybe someone else has had the same problem. It must be a celiac thing and lack of a vitamin. Mjhere

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