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Answers At Last!

healthygirl

Entry posted by healthygirl

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I got a call from the GI the other day indicating that I had not tested positive for either gene that would predispose me to Celiac disease...I requested a copy of the results be mailed to me and I am so glad that I did...and they arrived so quickly.

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Turns out I don't have the HLA DQB1 08 or 02 which are the 2 main celiac genes. However, what the GI didn't tell me is what I did have which is HLA DQB1 05 and 06, which I have discovered are two of the genes implicated in gluten intolerance... So having double genes for gluten intolerance gives me enough answer. I am off gluten for good and don't need to worry about whether this was all in my mind...I consider myself a pretty grounded person, but it is nice to have the answers. I think I would have stuck it out gluten free regardless as I just felt better and knew it was the right thing to do, but human nature kicked in and it just feels good to know that I am justified by the results.

 

So for anyone out there with unanswered questions, keep pushing until you get your answer if an answer is what you need. If you can go forward without conclusive data to back up your decision, then even better for you!!!

 

:)

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    1. - cristiana commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
    2. - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different...
    3. - Debado commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      Interesting....my Dr says since migranes are my only symptom she says I have gluten intolerance. I have stopped eating gluten. However, it seems to sneak in from time to time. Example: I ate canned mushrooms! Never thought canned mushrooms could have gluten, but they did. I had a migrane for 3 nights straight. Or I eat out, I think I am getting gluten free...
    4. - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      What medicine did they give you for migraines? Does it help much? I also suffer from migraines and am on one med for prevention and another for relief after onset. Many times, my headaches start during the night when I'm sleeping but not always. Have you cut back on gluten consumption of late? As knitty kitty explained, you must have been eating generous...
    5. - knitty kitty commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      How did your doctor arrive at the gluten intolerance diagnosis? You may want to consider finding a different doctor, one who is more familiar with Celiac disease. To be properly tested you will be asked to undergo a gluten challenge. I'm attaching an article below. Also consider getting a DNA test to look for the genes needed for Celiac disease...
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