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    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



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    1. Scott Adams

      Scott Adams

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  • About Me

    Janet Blenner, Professor

    Janet Blenner is a nursing professor at San Diego State University School of Nursing. She is currently developing a new celiac disease quality of life scale (CQOL). She educates all of the nursing students, physicians, practicing nurses, and patients with certain diseases such as Crohn’s to get tested for celiac disease. Although she already has tenure and a full professorship (she no longer needs to do research), living with celiac disease has made her want to study the quality of life issues that surround living a gluten-free life. She has developed a Celiac Disease Quality of Life Scale (CQOL), to enable health professionals, researchers and others to better study and document the quality of life issues in those with celiac disease. In addition, all the celiac research has had to rely on generic measures of quality of life, and these scales don’t begin to captivate our unique needs.

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  • Related Articles

    Scott Adams
    Scand J Caring Sci. 2003 Sep;17(3):301-7
    Celiac.com 09/03/2003 - A recent study published in the Scandinavian Journal of Caring Sciences looked at the differences in how men and women cope with celiac disease. The study concludes that gender should be taken into account in the treatment of celiac disease to improve its outcome. The biggest flaw in this study is with the number of people in it—only 10. I think that it is difficult to draw such conclusions using such a small sample of people, and that a larger study of this type needs to be done to draw more solid conclusions. Additionally, the poorer outcome for women in this study may be due to the fact that they experienced more bowel-related symptoms than did the men, which may not be due at all to their "emotionally oriented s...
    Jefferson Adams
    Adult Celiac Disease: Psychosocial Factors Affect Patient Symptoms and Health More Than Disease Itself
    Celiac.com 09/15/2010 - Until the present study, no clinical research had been published regarding the relative effects of clinical and psychosocial variables on outcome in celiac disease.
    A team of researchers examined psychosocial factors that may influence disease activity in celiac patients, such as relationships among demographics, psychosocial factors, and disease activity with health-related quality of life (HRQOL), health care utilization, and symptoms.
    The research team included Spencer D. Dorn, Lincoln Hernandez, Maria T. Minaya, Carolyn B. Morris, Yuming Hu, Suzanne Lewis, Jane Leserman, Shrikant I. Bangdiwala, Peter H. R. Green and Douglas A. Drossman of the Center for Functional GI and Motility Disorders at the University of North Carolina, Chapel Hill, USA.
    The...
    Jefferson Adams
    Celiac Disease Autoimmunity Has Real Impacts on Kids' Psychology
    Celiac.com 02/28/2017 - It's no secret that psychological symptoms can be associated with celiac disease, but until recently, no one had really done a solid prospective study on children.
    A research team has now done just that. In this case, they looked at a group of children with celiac disease autoimmunity (CDA), which is defined as persistently positive celiac disease–associated tissue transglutaminase autoantibodies (tTGA). As part of their study, the researchers looked at a screening population of genetically at-risk children. They assessed psychological functioning in children as reported by mothers, and then compared the results with a comparable group of children without celiac disease autoimmunity.
    They also investigated differences in psychological symptoms based on mothers' ...
    Kit Kellison
    The Psychological Impact of Celiac Disease
    Celiac.com 05/03/2019 (Originally published 10/08/2010) - Through some intriguing recent studies, we are learning that celiac patients share some worrisome emotional experiences that will impact their quality of life.  
    When I queried the ICOR Celiac listserv about how people there coped with celiac disease, I got reflections of many of my own experiences in navigating the illness before and after diagnosis.
    From the answers sent and the research I’ve done on the topic, I’ve found that the celiac patient must contend with three major types of challenges.  
    The first issue is directly relevant to more than a third of the celiac population.  According to a 2009 study published in the journal Movement Disorders, 35% of celiac patients report a history of depression, perso...
    Katherine Daly, Ph.D.
    The Psychology of Celiac Disease: Understanding the Psychological Challenges of Celiac Disease and Strategies for Overcoming these Barriers
    Celiac.com 06/13/2019 (originally published 07/12/2010) - Celiac disease, also known as celiac sprue or gluten-sensitive enteropathy, is a condition characterized by chronic malabsorption and damage to the small intestine mucosa when gluten is consumed.  Once diagnosed with this disease, a person must adhere to a life-long diet free of gluten.  Symptoms that may occur when a person with celiac disease ingests gluten include gastrointestinal discomfort such as pain, vomiting, bloating, diarrhea, inflammatory skin rashes, fatigue, hair loss, mouth sores, and loss of dental enamel.  Long-term complications may include decreased bone density, infertility, and lymphoma of the small intestine (Ciclitira & Lamont, 2009).  There is a documented association between celiac disease and other cond...

  • Recent Activity

    1. cristiana
      - cristiana replied to DayaInTheSun's topic in Coping with Celiac Disease
      11

      Being a burden to family/friends

      Looked this up. Yes, forgiveness and bearing with people is people is vital.
    2. cristiana
      - cristiana replied to DayaInTheSun's topic in Coping with Celiac Disease
      11

      Being a burden to family/friends

      I must admit I've been on both sides. Before my diagnosis, and in my ignorance, I thought all the special diets we see around us today were unnecessary and people were making a big fuss over nothing. There is a shop in the small town where I live that sells organic and gluten free food and I used to see people walking in and buying things and thought they...
    3. trents
      - trents replied to DayaInTheSun's topic in Coping with Celiac Disease
      11

      Being a burden to family/friends

      Matthew 18:21-35
    4. CatS
      - CatS replied to DayaInTheSun's topic in Coping with Celiac Disease
      11

      Being a burden to family/friends

      I understand your frustration about socializing while having celiac disease. I also have allergies to nuts, dairy, all forms of gluten including oats, strawberries and MSG. I get anxiety while grocery shopping and really take my time to read all labels. I always carry a magnifying glass with me wherever I go to read labels. Many products are labelled Gluten...
    5. Kwinkle
      - Kwinkle replied to trents's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Update on Gaviscon

      Thank you, Trents- are there any safe alternatives?
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