Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Scott Adams
    Scott Adams

    Additional Recommendations to Help You Make a Full Recovery from Celiac Disease

    Reviewed and edited by a celiac disease expert.
    Celiac.com 01/11/2005 - After being diagnosed with celiac disease and going on a 100% gluten-free diet, make sure your doctor:
    • Tests your bone density (osteoporosis is more likely in those with untreated celiac disease);
    • Tests your blood for iron and folate deficiencies;
    • Vaccinates you for pneumococcal disease (serious infections are common in immune-stressed individuals. This step will vary with your overall condition upon diagnosis and may not be necessary).

    Other recommendations for initial management of celiac disease:

    • Referral to a dietitian and support group;
    • Ensure all regular medications are gluten-free;
    • If osteoporosis is found, assess vitamin D and parathyroid hormone concentrations;
    • Blood screening of your parents, children, brothers and sisters for celiac disease.
    • Check the Diseases and Disorders Associated with Celiac Disease section of Celiac.com and if you have any other health problems listed in that section be sure to discuss this with your doctor.

    Many people with celiac disease have additional food intolerance, and therefore never fully recover on a gluten-free diet alone. If you fall into this category try the following:

    • Re-check your diet and make sure it is 100% gluten-free;
    • Food allergy testing (finger-stick or ELISA);
    • An elimination diet;
    • Keep a food diary;
    • Try a rotation diet--only eating the top food allergens once every few days. The most common additional food intolerance are: Cows milk, corn, soy and eggs.

    Celiac.com Sponsor (A12):
    Many people who have had difficulty recovering from celiac disease have found that maintaining a "paleo" perspective which favors unprocessed meats, vegetables, and fruits while avoiding all grains, is the final step necessary for a complete recovery.



    User Feedback

    Recommended Comments

    Guest Valerie Kluss

    Posted

    I am SO glad to see something about the paleolithic diet on your website. My celiac disease did improve with eliminating wheat, barley, rye, and oats, but I was still pretty sick. Next went milk and eggs. Still sick. Next went corn and rice. Still sick. Finally, ALL legumes and potatoes. Great breakthrough. Celiac disease takes 3-5 years to recover from and I'm 1 1/2 years in. My comfort level is much higher on the paleolithic diet.

    Link to comment
    Share on other sites
    Guest Dav

    I have had celiac disease for 8 1/2 years. At 1st I was vomiting and running to the toilet when I ate something containing gluten. I've been following a gluten free diet since. But in the last couple of weeks I've been having cravings for gluten foods.

    It started off with some fresh doughnuts when my husband took me to Blackpool a couple of weeks ago, then some crispy creams, followed by jam dough nuts, chocolate éclairs - not all on the same day! Today I've had a double cheese burger meal from McDonald's. I've not been sick yet, or the runs!

     

    Does that mean I've not got celiac disease any more?

     

    I've made a doctors appointment for next week to be on the safe side.

    Link to comment
    Share on other sites
    Guest admin
    I have had celiac disease for 8 1/2 years. At 1st I was vomiting and running to the toilet when I ate something containing gluten. I've been following a gluten free diet since. But in the last couple of weeks I've been having cravings for gluten foods.

    It started off with some fresh doughnuts when my husband took me to Blackpool a couple of weeks ago, then some crispy creams, followed by jam dough nuts, chocolate éclairs - not all on the same day! Today I've had a double cheese burger meal from McDonald's. I've not been sick yet, or the runs!

     

    Does that mean I've not got celiac disease any more?

     

    I've made a doctors appointment for next week to be on the safe side.

    Hello Dav,

     

    This is fairly normal, but it does not mean that you no longer have celiac disease. If you continue down this path it is likely that you could end up with intestinal damage or other more serious health issues which could take years to heal, or worse...more permanent issues.

    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Dr. Scot Lewey
    Ten Facts About Celiac Disease Genetic Testing
    Celiac.com 04/16/2019 (originally published 04/24/2008) - Genetic tests for celiac disease and gluten sensitivity are readily available. Testing can be performed on either blood and mouth swab samples. Tests can be done at home and mailed to the lab for analysis.
    A good testing laboratory will provide an accurate prediction of celiac disease risk, and will also provide information about the statistical risk to your children, your likelihood of developing more severe celiac disease, whether one or both of your parents had the risk gene, and for some laboratories, you may determine your risk of gluten sensitivity without celiac disease.
    DQ2 & DQ8 Not the Whole Story
    About 95% of celiacs carry HLA-DQ2; while about 25% carry HLA-DQ8. If any part of the high risk gene ...


    Scott Adams
    The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
    Celiac.com 11/10/2022 - If you're new to this whole celiac disease and gluten-free eating thing, then this is your welcome-to-the-club pack of sorts from Celiac.com.
    While eating gluten-free can improve your health, I must emphasize that it is not recommended to attempt a gluten-free diet without a doctor's supervision, as there are many potential health risks involved with making drastic changes to your diet. Talking beforehand with a qualified doctor and/or nutritionist can help you make a smoother transition to a gluten-free diet.
    Whether you've been officially diagnosed or diagnosed yourself, welcome. You made it to the best most comprehensive source of information about celiac disease and living gluten-free. You are among a friendly and well-informed community that is ...


  • Recent Activity

    1. - gregoryC replied to gregoryC's topic in Traveling with Celiac Disease
      7

      Celebrity Cruise for Gluten Free

    2. - trents replied to ABP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 year old- questionable results

    3. - ABP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 year old- questionable results

    4. - Scott Adams replied to Gluten is bad's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten Free ADHD medications

    5. - trents replied to gemknorodo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Help with blood test result


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,880
    • Most Online (within 30 mins)
      7,748

    schussb
    Newest Member
    schussb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • gemknorodo
      5
    • Patrick-Tyler
      5
    • Pua
      9
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...