COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk

Welcome to the forum. Did you have covid that you believe may have been a trigger? Have you been tested for celiac disease? Does anyone else in your family have issues with gluten?

3 hours ago, Scott Adams said:

Welcome to the forum. Did you have covid that you believe may have been a trigger? Have you been tested for celiac disease? Does anyone else in your family have issues with gluten?

Hello. Thank you. I may have had Covid in May of 2020 (2 days high fever), but since my behavior would have been the same either way (precautions) and tests are not accurate I had no reason to get tested. A year ago I got the single J & J vax. The pharmacist who gave it to me said I had a much higher chance of blood clot if I had a history of taking a lot of birth control, but I don't so I did not think much about that. No tests, so I do not know if its celiac or just wheat allergy but I do know if I avoid wheat I do not feel brain-fog and woozy and tired and strong metal taste in my mouth. I can't afford doctors but at least I figured out that eating wheat was making me fall apart. It was especially worrisome driving an 18-wheeler. I am interested in reading others' experience and any articles about studies in this regard. I appreciate this forum.

It sounds like you may have non-celiac gluten sensitivity, or even celiac disease. Since you are already gluten-free it probably doesn't make sense to go through a gluten challenge to get tested for celiac disease, and there currently isn't a test to screen for NCGS, which is ~10x more common than celiac disease. As a truck driver your biggest challenge will probably be if you have to eat out in restaurants, as that is a common source of cross contamination. 

17 minutes ago, Scott Adams said:

It sounds like you may have non-celiac gluten sensitivity, or even celiac disease. Since you are already gluten-free it probably doesn't make sense to go through a gluten challenge to get tested for celiac disease, and there currently isn't a test to screen for NCGS, which is ~10x more common than celiac disease. As a truck driver your biggest challenge will probably be if you have to eat out in restaurants, as that is a common source of cross contamination. 

Yes. It was already a challenge to eat healthy before. Haha! I am only out one night at a time, so if I plan ahead I do not need to buy from restaurants. I got 3 hard tacos from the bell yesterday with no beans and chicken instead of the dubious ground beef slurry of unknown contents (No help from buzy manager, "I have no clue what's in that!") and while I had no reaction, the food was not very satisfying. I have never been able to figure out the trick to eat hard tacos without most of it falling to table, lap & floor. Definite learning curve to all this. Thanks for the 10x more likely to just be just sensitive info. I think a lot of sensitivities are toxic overload, when the body just can't take anymore. Strong clothing detergents, ridiculous fragrances in perfumes, soaps, air fresheners, etc. all irritate me. Definitely no lack of taste & smell here. LOL. I think I had an episode (felt like being on a rocking boat in the fog) with acrylamide a couple years ago after eating darkly roasted almonds, several servings of french fries the night before, prune juice earlier that week and of course daily dark roast coffee. It was interesting to learn that in Europe, pregnant women are advised to limit or eliminate fries and hashbrowns due to the possible accumulation of acrylamide possibly harming the fetus. I am glad we have forums like this one so that people can communicate outside the censoring effects of profit minded businesses.

On 7/7/2021 at 7:03 PM, trents said:

Could be coincidence. 

I have had a gluten allergy since 2 weeks after I had my 2nd jab, I ate pasta and bread without a problem ever and now it makes me Ill  for days.

I have been searching for information of anyone else because yes it may be coincedience but I really think that 2nd dose of vaccine triggered it.

1 hour ago, Guest Claire said:

I have had a gluten allergy since 2 weeks after I had my 2nd jab, I ate pasta and bread without a problem ever and now it makes me Ill  for days.

I have been searching for information of anyone else because yes it may be coincedience but I really think that 2nd dose of vaccine triggered it.

I hear you.

1 hour ago, Guest Claire said:

I have had a gluten allergy since 2 weeks after I had my 2nd jab, I ate pasta and bread without a problem ever and now it makes me Ill  for days.

I have been searching for information of anyone else because yes it may be coincedience but I really think that 2nd dose of vaccine triggered it.

Claire, you may have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is not an allergy. It is an autoimmune response to the ingestion of gluten. This autoimmune response causes inflammation and damage to the small bowel lining. You need to request a blood antibody test for celiac disease from your physician: Open Original Shared Link

Though they share many of the same symptoms, there are tests for celiac disease but not for NCGS. For a diagnosis of NCGS, Celiac disease must first be ruled out. NCGS is 10x more common than celiac disease.

We conclude that the vaccination response, measured as SARS-CoV-2 IgG concentration, does not depend on 25(OH)D status in healthy adults with moderate vitamin D status.   Open Original Shared Link

Does not seem like anyone has looked at its effect on people with low or deficient vitamin D status who are vaccinated. 

3 hours ago, Guest Claire said:

yes it may be coincedience but I really think that 2nd dose of vaccine triggered it.

Do you know your vitamin D plasma status. Are you taking vitamin D supplement? Low vitamin D may trigger Celiac Disease. Open Original Shared Link

4 hours ago, Guest Claire said:

I have had a gluten allergy since 2 weeks after I had my 2nd jab, I ate pasta and bread without a problem ever and now it makes me Ill  for days.

I have been searching for information of anyone else because yes it may be coincedience but I really think that 2nd dose of vaccine triggered it.

Imo not a coincidence. Sorry your having to go through what myself and others are after receiving the vaccine.  It does get easier x

I've found these articles to be most helpful.

If we give our bodies what they need, they can effectively fight off infection.

Be well: A potential role for vitamin B in COVID-19

Open Original Shared Link

"As antibodies, and importantly T-cells, are required to eliminate the SARS-CoV-2 virus, thiamine deficiency can potentially result in inadequate antibody responses, and subsequently more severe symptoms. Hence, adequate thiamine levels are likely to aid in the proper immune responses during SARS-CoV-2 infection."

And...

Role of vitamins and minerals as immunity boosters in COVID-19

Open Original Shared Link

"It was documented that thiamine plays a significant role in eliminating the SARS-CoV-2 virus by triggering humoral and cell-mediated immunity. Hence, sufficient levels of thiamine help in building immunity against SARS-CoV-2 patients."

And almost forgot this one...

15 hours ago, trents said:

Claire, you may have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is not an allergy. It is an autoimmune response to the ingestion of gluten. This autoimmune response causes inflammation and damage to the small bowel lining. You need to request a blood antibody test for celiac disease from your physician: Open Original Shared Link

Though they share many of the same symptoms, there are tests for celiac disease but not for NCGS. For a diagnosis of NCGS, Celiac disease must first be ruled out. NCGS is 10x more common than celiac disease.

I will make a doctors appointment on Monday, it will be a year in May I have been suffering, I visited the dr only once after having chronic diarrhoea for a 6 weeks, they did blood tests but all came back Okay, the diarrhoea is ongoing still but due to covid and the pressures on NHS I haven’t been back to the drs.

I am 46 years old and never before have I had any digestive or bowel issues, nor any gluten sensitivities, it feels like such a large range of things it could be and I read with a lot of things the cause is never discovered  but now I have something to go to the dr with I will because for the last year I can count the days I have felt well on 1 hand, I know these issues are due to the 2nd vaccine though but doctors will hear nothing bad said against the vaccine so it’s hard to know where to start when you feel you aren’t believed.

for the test I read I would need to eat gluten again but I can’t do that as it literally makes me ill  for days, it’s so bad that it actually feels like I have done damage to my insides, even not eating gluten I still have symptoms but they are manageable for the most part.

It is actually a relief to read I am not the only one because I have been going crazy thinking all these people have the vaccine why am I the only person to be Ill from it but I see now there are more people out there suffering as I am right now.

I thank all that took the time to reply x

I was diagnosed with COVID last month (June 2022) and have since tested negative and am symptom free. Since then, though maintaining a gluten-free diet, my gut pain (associated with my initial celiac diagnosis in April 2021) has increased this summer.

I am wondering if COVID may have exacerbated my celiac pain?