Dermatitis Herpetiformis Summary

It took over a year of blisters and splinters and 4 doctors, before I was diagnosed with Dermatitis Herpetaformis.

I have a skin condition that seems to act as a barometer. When my skin itches I find a product that I am consuming that is tainted.

I am taking this article to my dermatologist with me, my 4 year old daughter has what I believe to be Dermatitis Herpetaformis and a count of 77 on her tTG. I am hoping that they can biopsy correctly. No one seems to take this seriously, unfortunately. Any great doctors in North Jersey?

I am a fifty-seven year old male who has had symptoms of celiac disease since birth. When I was ten I began having symptoms of dermatitis herpetaformis but it wasn't until I was twenty-one and in the USAF that a service doctor diagnosed DH and prescribed Dapsone for it. The Dapsone was like a miracle for me at the time but I have now been on a gluten-free diet (thanks to my wife) for the last 25 years and I haven't taken Dapsone or had DH since. I have three children, one of whom shows signs of gluten intolerance. Thanks for the great website and all the good info. I wish there had been knowledge like this in 1960!

I like this web site a lot.

I am a fifty-seven year old male who has had symptoms of celiac disease since birth. When I was ten I began having symptoms of dermatitis herpetaformis but it wasn't until I was twenty-one and in the USAF that a service doctor diagnosed DH and prescribed Dapsone for it. The Dapsone was like a miracle for me at the time but I have now been on a gluten-free diet (thanks to my wife) for the last 25 years and I haven't taken Dapsone or had DH since. I have three children, one of whom shows signs of gluten intolerance. Thanks for the great website and all the good info. I wish there had been knowledge like this in 1960!

What kind of gluten we should avoid and how? What do you eat mostly? Do we keep the skin moisturized or dry to avoid this skin problem to spread?

I was diagnosed with the herpes virus in 1999 when an enormous rash and blisters developed on the back of my thigh. The culture was taken directly from the blisters. I have since discovered I have celiac and do my best to avoid any gluten, but when I do, the lesions always appear. I have always thought it was a misdiagnosis but I couldn't find any documentation to back up my theory. Thank you for this post, I can take this to my doctor and have the lesions properly diagnosed.

I suffered from an extremely itchy rash for 3 months and after 4 biopsies by a deramtologist that said I had anything from scabies to drug reactions I finally switched dermatologists and did some research of my own. I found this site and references to dermatitis herpetiformis, so I printed all of the information and went to my PCP asking to be tested for celiac. The nurse practitioner there literally laughed at me and said I shouldn't be trying to diagnose myself. I then took the information to the new dermatologist and the PA laughed at me. I requested the physician to come look at my rash and he immediately said I think you have dermatitis herpetiformis. I started on dapsone two days ago and have seen a great improvement in my rash. Being proactive about my care is the ONLY thing that provided me with the answer I was looking for. If you feel you have dermatitis herpetiformis, I would definitely urge you to do your research and keep looking until you an find someone to listen to you!