Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Jefferson Adams
    Jefferson Adams

    Did President John F. Kennedy Suffer Undiagnosed Celiac Disease?

    Reviewed and edited by a celiac disease expert.
    Did President John F. Kennedy Suffer Undiagnosed Celiac Disease? - Photo: Wikimadiea Commons--White House Press Office
    Caption: Photo: Wikimadiea Commons--White House Press Office

    Celiac.com 03/28/2014 - Did John F. Kennedy suffer from symptoms of undiagnosed celiac disease? Celiac disease expert Dr. Peter H. R. Green says Kennedy's known symptoms and family history make it likely that America's 35th president did in fact have celiac disease, which remained undetected in his lifetime.

    Dr. Green is the director of the Celiac Disease Center at Columbia University, professor of clinical medicine at the College of Physicians and Surgeons, Columbia University and attending physician at the Columbia University Medical Center.

    Celiac.com Sponsor (A12):
    He writes that: “John F. Kennedy’s long-standing medical problems started in childhood. In Kennedy’s adolescence, gastrointestinal symptoms, weight and growth problems as well as fatigue were described. Later in life, he suffered from abdominal pain, diarrhea, weight loss, osteoporosis, migraine and Addison’s disease. Chronic back problems, due to osteoporosis, resulted in several operations and required medications for chronic pain."

    Greene adds that Kennedy’s Irish heritage, history of gastrointestinal complaints since childhood, diagnosis of irritable bowel syndrome and migraine, presence of severe osteoporosis, and the development of Addison’s disease all point to celiac disease.

    Kennedy was given steroids for his problems. Steroid use is associated with the development of osteoporosis and Addison’s disease.

    The occurrence of Addison’s disease in his sister, however, argues for a familial [genetic] cause of his Addison’s disease, rather than an iatrogenic one.

    Source:

    • Open Original Shared Link


    User Feedback

    Recommended Comments

    Guest Jeff

    I consider myself an expert on JFK's medical issues having read the Dallek Neobiogrophy of JFK "An Unfinished Life" and having celiac myself. Giving this a medium rating due to the following: 1) It has been as disproved as one can possibly get that JFK had "Addison's Disease" due to: a) his never being tested and found low in lab cortisol; B) his adrenals were examined at autopsy following his Assassination at Bethesda Naval Hospital and found to be perfectly normal in appearance; c) his cortisol levels were tested under the physiologic stress of a back operation in 1955 and found to be absolutely normal--thus no indication of "Addisonian Crisis" as would be expected had the presumptive diagnosis been accurate. That pretty much puts the nail in the coffin of the thesis of "Addison's Disease", which was of course raised by the Nixon campaign in 1960 and denied by the Kennedy campaign (and accurately, despite the neo-critics that claim otherwise). 2) The osteoporosis JFK experienced was due to two factors: 1) His celiac sprue; 2) His daily usage of Corticosteroids from his early twenties until the day he was assassinated at age 46. Now clearly there is a "yin and yang" factor in that:1) The daily steroid usage placed his celiac and other related autoimmune conditions in, more or less, remission, but the side effects worsened his osteoporosis, something well recognized today as a side effect but not in JFK's day, so had he followed a strict gluten free diet instead of taken daily steroids those side effect issues would never have come into play;2) He left some of his corticosteroids home on a trip to England once and thus he was without this for a few days, which merely tripped a destabilzation of the homeostatic mechanism that resulted in underproduction of cortisol from the adrenals as a normal consequence of adjusting by the body to daily steroid use--yet in no way did this, as is commonly presumed and incorrectly so, reflect "Addison's Disease". Now, the current consensus medically is (thankfully, because Addison's theory is BUNK)he suffered something called Autoimmune Polyendocrine Syndrome Type II, which can encompass Celiac by definition(albeit that designation rather puts the Celiac on the back burner, which is in my judgment a disservice to medical history). That was designated to explain and focus on pain syndromes and his treatment by contemporary physicians of his day who treated him, notably Dr. Janet Travell. In this manner, medicine can now say something to the effect of "what a brilliant job it did in managing JFK's pain syndromes", yet what clearly WAS iatrogenic was his back pain and the extent of that from surgeries that did more harm than good and the daily steroid use is something that was experimental in his day, knocked back his autoimmune diseases, yet produced some side effects such that no physician today would ever believe in prescribing for that length of time for anything other than an immediate life-threatening emergency. The Addison's Disease thesis provided a basis upon which to BELIEVE he always had a life threatening emergency but this clearly was not the case, although celiac is nothing to sneeze at and clearly led to malnutritive conditions including the osteomalacia and bone loss associated therewith. The bottom line here is that many articles attempting to describe JFK's medical conditions fall short by falling into common pitfalls in delivering maximum elucidation to his obvious autoimmune syndromes which included celiac and Hashimoto's and likely ulcerative colitis, and the complications created thereto by his medical treatment. Yes, I do think we can reasonably add the treatment of pain having some skill involved in this, but of course this would not have been needed had the celiac sprue education series been inculcated into his medical treatment and understanding, and thus, would have saved him much pain, and might, as one physician put it, have enabled him to survive the assassination at the hands of Oswald shooting a rifle had he not have been wearing a back brace as a result. We will never know this of course, but what we can note is that the complications of the medical misunderstandings of his day led to a specific course of care that walked down a road that was unnecessary and painful in terms of surgeries, and to this day the medical profession has not come clean as to exactly why and where it goofed on his medical care, as if the medical profession is almost like the Kennedy family itself, reluctant at best to admit failures in care and reluctant at best to admit gaps in knowledge related to its own longstanding avoidance of understanding, coming to grips with, and relating professionally to the issue of celiac disease especially with respect to deliverance of maximum patient service.

    Link to comment
    Share on other sites
    Guest Maria

    Posted

    President John F. Kennedy did not have celiac disease even though some people were trying to give it to him before he was killed. making themselves look like what?

    Link to comment
    Share on other sites
    Guest Jeff

    Before I reply directly to Maria's comment (and I hope this is not Maria Shriver, who was related to the Kennedy Clan and married for awhile to the longtime Governor of "Cullyfornia", the ex-bodybuilder/ex-actor Arnold Schwarzenegger--in which case we have some family bias going on here), I will point out that Maria's comment here reflects the frenzical mythology surrounding the life of JFK. JFK was merely a man--but we seem to want to either reduce him to a philandering pervert or a Godly Mythical figure. And there is really no serious doubt he had celiac sprue at this point---view pictures of him as a child and young man and the emaciation is readily apparent. The steroids put some spark in his sex life he otherwise would never have experienced. And how is it with celiac men today, who do not have the benefit of long term treatment with steroids? Don't make me comment on THIS!! The "Cullyfornians" in particular would go Priestly and Cardinally and Bishoply and Nunly WILD!! Thank you!! As for former Governor S, I can only say on here....."I'll be BECK!!"

    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Jefferson Adams
    Celiac.com 09/22/2011 - Serbian Tennis star Novak Djokovic has gone on a major victory streak since going gluten-free late last year, winning 62 matches, including the Wimbledon championship, and losing just two in 2011.
    Most recently, Djokovic earned his first-ever U.S. Open tennis championship with a grueling  6-2, 6-4, 6-7 (3), 6-1 victory over Rafael Nadal that took 4 hours and 10 minutes to complete.
    Djokovic, who had been hovering near the top of the men's world tennis rankings for several years, credits his most recent break through to a gluten-free diet. Djokovic adopted the gluten-free diet after testing by his nutritionist showed him to be gluten intolerant.
    Because Djokovic cannot process the carbohydrates that were his most common fuel source, and he was forced to ...


    Jefferson Adams
    Celiac.com 10/28/2011 - The world's largest gluten-free cake, weighing nearly a ton, debuted in Washington, DC. Gluten-free labeling advocate John Forberger presented the 9-layer gluten-free behemoth as part of his efforts to push the FDA to deliver long-promised gluten-free labeling standards.
    The cake debuted as part of an effort to promote the Gluten Free Food Labeling Summit in Washington DC. The event included a representative of the FDA and Congresswoman Nita Lowey, who sponsored the original Food Allergen Labeling and Consumer Protection Act, as well as the world’s largest gluten-free cake, all nine layers of it.
    In addition to raising general awareness of gluten-free issues, the giant cake was a reaction to failure on the part of the FDA to issue labeling standard for gluten-f...


    Jefferson Adams
    Introducing Gluten Gradually During Breastfeeding Can Lower Risk of Childhood Celiac Disease
    Celiac.com 04/12/2013 - A number of studies have suggested a connection between infant feeding patterns and the development or clinical expression of celiac disease. However, until recently, it remained unclear whether infant feeding actually affects the occurrence and/or the clinical presentation of celiac disease.
    A recent study that shows important differences in celiac disease rates between two groups of 12-year-olds indicates a possible strategy for preventing celiac disease.
    The notable difference between the two groups was simple infant feeding practices. The study findings suggest that gradual introduction of gluten in small amounts during ongoing breastfeeding provides protection against celiac disease.
    The study was conducted by Anneli Ivarsson, MD, PhD; Anna Myléus,...


    Jefferson Adams
    Celiac.com 01/22/2014 - With many major grocery brands struggling to generate sales growth, and with top gluten-free brands Udi's and Glutino racking up combined net sales growth of 53% last quarter, the writing is on the wall: More and more wheat based brands will be looking to break into the gluten-free market in the next three to five years.
    Boulder Brands CEO Steve Hughes told analysts on the firm's Q3 earnings call that Boulder is seeing "strong, consistent velocity in distribution builds across all channels" for gluten-free products.
    According to Hughes, 5-10% of all wheat-based product categories will be gluten-free in the next three to five years, or else they will disappear from the market.
    Again, as many wheat-based brands struggle for market share, Udi’s remains the f...


  • Recent Activity

    1. - knitty kitty replied to jmiller93's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      What do my test results mean?

    2. - knitty kitty replied to HWB's topic in Related Issues & Disorders
      16

      strange symptoms/ diagnosis accuracy

    3. - Wheatwacked replied to HWB's topic in Related Issues & Disorders
      16

      strange symptoms/ diagnosis accuracy

    4. - sh00148 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Nighttime Soiling (5 year old)

    5. - captaincrab55 posted a topic in Publications & Publicity
      0

      Scientists have discovered a cause of inflammatory bowel disease. They said it's a 'holy grail' discovery that could transform other autoimmune treatments.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,728
    • Most Online (within 30 mins)
      7,748

    Jessmn
    Newest Member
    Jessmn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • jmiller93
      5
    • MomofGF
    • Louise Broughton
      4
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...