Does Fluttering or Twitching In Lower Abdomen Mean Celiac Disease?

2 hours ago, trents said:

I'm not clear on what it is you want to convey to the doctors. Do you refer to the fluttering sensation or a desire to broach the idea with them of possibly having celiac disease and wanting to be tested for it?

A number of people on this forum have complained about fluttering in the upper abdomen, usually around the bottom of the rib cage. I do not think this would be considered a classic celiac disease symptom, however. Stomach pain would be.

When your endoscopy was done, do you know if the took a biopsy of the small bowel lining to check for damaged villi in the lining of the SB? Damage to the villi would be solid evidence of celiac disease. There are also blood antibody tests for celiac disease which is usually done before an endoscopy/biosy of the small bowel. Elevated antibodies are indicators of damage to the small bowel lining. The most important antibody test for celiac disease is the TTG_IGA test. There are also home tests kits available for around $100 where you take a stool sample and send it off to a lab.

I am wanting all the doctor visits and tests to come to an end result.  The fluttering is a new symptom that led me to this discussion forum but I havent had a TTG_IGA test.  I am looking for advice on how to approach doctors with these symptoms and get the right testing done.  I was prior military where I avoided doctors because the solution was always ibuprofen and go back to work so I have no real reference point on how or what to say to my docs.  I tell them these symptoms and they do more blood tests and tell me I am fine.  Its getting annoying.  At least in the military, being told I was fine was free.

2 hours ago, trents said:

I'm not clear on what it is you want to convey to the doctors. Do you refer to the fluttering sensation or a desire to broach the idea with them of possibly having celiac disease and wanting to be tested for it?

A number of people on this forum have complained about fluttering in the upper abdomen, usually around the bottom of the rib cage. I do not think this would be considered a classic celiac disease symptom, however. Stomach pain would be.

When your endoscopy was done, do you know if the took a biopsy of the small bowel lining to check for damaged villi in the lining of the SB? Damage to the villi would be solid evidence of celiac disease. There are also blood antibody tests for celiac disease which is usually done before an endoscopy/biosy of the small bowel. Elevated antibodies are indicators of damage to the small bowel lining. The most important antibody test for celiac disease is the TTG_IGA test. There are also home tests kits available for around $100 where you take a stool sample and send it off to a lab.

As for my endoscopy, I was not informed of any damage to the villi but there was excess mucosa that was biopsied.  That biopsy didn't have any abnormal test results though.

I would just go to your physician and say, "I have stomach pain and I haven't been checked for celiac disease that I know of. Could we do that?" Print this out, circle the part about TTG IGA and hand it to the doc: Open Original Shared Link

12 hours ago, trents said:

I would just go to your physician and say, "I have stomach pain and I haven't been checked for celiac disease that I know of. Could we do that?" Print this out, circle the part about TTG IGA and hand it to the doc: Open Original Shared Link

Thank you very much Trent.  I scheduled a follow up with my primary doc and will do this.

 'I've been experiencing the same fluttering feeling within the last 2 days.  I know i'm not pregnant and I had  part of my colon removed as a result of a flat  cancerous polyp 2 years ago.  I also notice  it seems to  occur after I eat. Could exercising  help  relieve this feeling?

I've been having flutters, and feeling like my abdomen is knotting and twisting into itself whenever I eat/drink anything. I have to tilt my head sideways sometimes to swallow, and I often have to stop eating after 5 bites to restart again later. I tested negative for Celiac, but has anyone ever had this? 

Although you may test negative for celiac disease, the test would not rule out gluten sensitivity...there is currently no test for GS.