Celiac.com 03/27/2020 - Benjamin Lebwohl, MD MS (Adult Gastroenterologist, Columbia University Irving Medical Center) has opened an online, confidential, de-identified secure registry for doctors worldwide to report cases of those with celiac disease who get Covid-19.
Note that this is a doctors only registry: "Registry entry should be done by health care practitioners only, not patients," and is designed to allow physicians to report such cases, so that patient outcomes can be tracked.
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The goal of the registry it to study whether those with celiac disease and Covid-19 infection will have different outcomes than those without CD.
Below is his invitation to doctors worldwide to participate in the registry:
QuoteDear Friends,
Greetings from New York, where we are struggling but doing everything we can.
The web-based registry for patients with celiac disease and Covid-19 infection is now live.
This is a secure, online, de-identified Personal Health Identifier (PHI)-free reporting registry. We encourage clinicians worldwide to report ALL cases of Covid-19 in their patients with celiac disease, regardless of severity (including asymptomatic patients detected through public health screening).
If you have a patient with celiac disease and Covid-19, please participate in the registry by going to www.covidceliac.org. The process should take approximately 5 minutes.
- As of today, the registry is open to all countries but approval for submitting cases from the European Economic Area is pending further review. We hope to have clarification on this in a matter of days, as our goal is to gather information on patients around the globe.
- Registry entry should be done by health care practitioners only, not patients.
- Please report only laboratory-confirmed Covid-19 cases.
- Cases should be reported after a minimum of 7 days or until sufficient time has passed to observe the disease course through resolution of acute illness or death.
Please consider participating, as this will add to our limited knowledge about the intersection of these conditions.
Covid-19 Topics on Celiac.com Forums
Keep up with the conversation or share information about coronavirus (Covid-19) and celiac disease on the Celiac.com Forum:
Covid-19
Coronavirus More Susceptible to Celiacs?
Covid-19 Resources
Center for Disease Control
UK Health Advice on Social Distancing
This is a developing story. Please share any information in our comments below, or on our forums above.
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