At-Home Celiac Disease Test by imaware™ - A Product Review with Video

To prevent false negatives for celiac disease, maybe you should consider a DNA test to determine if you have the variant.  This is how I deducted celiac disease after a diagnosis of IBS, countless tests, and uncontrollable symptoms for 27 years.    I used 23&Me, which has a health report sharing genetic variants that can cause diseases.  While it's not a diagnosis, if you carry the variant your chances increase for the disease.  This is just another tool in the tool box that I find it helpful.

My PCP had me tested and it came up negative as well.  She then told me, you are not Celiac, its all in your head, you need to start eating Gluten! 

I then spoke to my gastroenterologist and he asked how long I had been on a gluten-free diet prior to taking the test. I told him about 9 months, to which he stated it should have come up negative.  According to him, the blood test checks for a particular enzyme which people who are celiac have and if you are not actively eating Gluten it will not show up in the test.  He concluded I have two choices:

1 - start actively eating Gluten and in a month retake the test.

2 - If I feel better then when I was eating Gluten, why change and continue a gluten-free Diet and continue feeling better.

I chose # 2.

2 hours ago, FitnessPro said:

My PCP had me tested and it came up negative as well.  She then told me, you are not Celiac, its all in your head, you need to start eating Gluten! 

I then spoke to my gastroenterologist and he asked how long I had been on a gluten-free diet prior to taking the test. I told him about 9 months, to which he stated it should have come up negative.  According to him, the blood test checks for a particular enzyme which people who are celiac have and if you are not actively eating Gluten it will not show up in the test.  He concluded I have two choices:

1 - start actively eating Gluten and in a month retake the test.

2 - If I feel better then when I was eating Gluten, why change and continue a gluten-free Diet and continue feeling better.

I chose # 2.

Too bad your GP was not aware that all celiac testing requires you to be on a full gluten diet.  Your GI seems to be misinformed as well.  A gluten challenge requires a patient to go back on gluten for six to 12 weeks.  It can take that long for antibodies to show up in the blood stream.  

Good luck on your continued journey towards good health.  Keep in mind that other autoimmune disorders can develop over time.  This is one reason that obtaining celiac diagnosis can be beneficial.  Another reason is that celiac disease is genetic.  All first degree relatives should be tested even if symptom free.  You can have celiac disease and be asymptomatic.  

Thanks for your comments, I have had a lot of issues with my GP recently. Both of my daughters have issues with Gluten, as does my nephew and niece (she has issues with yeast infections when taking in Gluten).

Two of my children were diagnosed about 7 years ago and the yearly blood draws were quite traumatic for one of them. I did order this test and it was a much nicer experience for the younger one. The other preferred the blood draw because she picked on the wound and it bothered her so I guess, it is a matter of preference but it was great for our younger one. The fact that the head of the University of Chicago Celiac Center is on the advisory board of that company is also reassuring that the test does what it is supposed to do.