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  • Hayley Repton
    Hayley Repton

    Glutened: A Rhythmic Short Film Which Expresses the Impact Everyday Life Has On A Newly Diagnosed Celiac, and How She Discovers Her Own Tempo

    Reviewed and edited by a celiac disease expert.

    The aim is to help people with celiac disease who sometimes feel misunderstood by making something which people without the disease can connect with in an insightful and enjoyable way.

    Glutened: A Rhythmic Short Film Which Expresses the Impact Everyday Life Has On A Newly Diagnosed Celiac, and How She Discovers Her Own Tempo - Image: Hayley Repton
    Caption: Image: Hayley Repton

    Celiac.com 01/19/2021 - I’ve produced a short film around celiac disease as I wanted to put my diagnosis to good use and raise awareness in another way.

    “A rhythmic short film which expresses the impact everyday life has on a newly diagnosed coeliac, and how she discovers her own tempo.”  

    Celiac.com Sponsor (A12):
    So far it has been extremely well received with people with coeliac disease, and those who did not know much about it before. It has also been accepted into some film festivals worldwide which will take place throughout the next year and beyond. 

    The aim is to help people with celiac disease who sometimes feel misunderstood by making something which people without the disease can connect with in an insightful and enjoyable way. Feel free to share the link if you think it may be of benefit to anyone.

    I welcome your comments below.

    Here it is in case it may be of interest to you or anyone in your community living with celiac disease: 

     

     

    Source: vimeo.com

    Edited by Scott Adams


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    Recommended Comments



    Guest Maggie O

    Posted

    As some diagnosed with Celiac this film really resonated and shows how isolating it can be in some social situations. And how so many don’t understand you can’t have just some and how eating out is stressful you just never know for sure when you go out! I would love to be able to post this to share! Thank you a great upbeat film about a frustrating topic.

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    trents

    I have some age-related hearing loss and found the audio to be very muddled. Only caught a word here and there. However, the broad themes of the message were still easily discernable through the acting and the cinematography. It does a good job of conveying the huge adjustments the newly diagnosed celiac must undergo - learning to shop and cook all over again; learning to gracefully take control in a restaurant situation in order to protect your health; learning to accept a new reality that will be with you for a lifetime; learning that your feeling of being the odd man (woman) out comes more from your own self-perception than from how your friends see you. I wish someone would make a similar short video depicting strategies for dealing gracefully with those (especially family members it seems) who scoff at you as a person who is trying to eat gluten free and who deny the reality of it.

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    Guest Fantastic Representation

    Posted

    I have lived with celiac disease since 2008. Your video captures the experience of getting diagnosed and learning to live gluten free perfectly. Social situations will forever be a challenge, as you illustrate, but a positive attitude goes a long way. I feel so much stronger and healthier since going gluten (and dairy and soy) free that I wouldn't go back even if I could. Thank you for creating this excellent film!

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    Guest D N-B

    Being diagnosed in late 80s while working in California, USA, it was difficult to obtain a wide gluten free selection as there is today. Quite often there would be X contamination and at one stage I was hospitalized and put on a drip.

    People do not understand or experience what a Celiac goes through, not feeling quite well, mood swings, painful cramps, diarrhea, achy joints, headaches, unable to think clearly and a feeling like being slowly poisoned.   

    Added to this is the emotional trauma of friends thinking you are being silly and difficult. I am 67 years old and am so excited to see this video, I felt a bit more could have been included regarding, after effects of ingesting, even what a tiny amount of gluten does.

    All in all good film, kudos to the film maker, thank you.

    D N-B from Cambridge, UK

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    Guest Andy

    Very good topic, but I think that filmography is very fuzzy and could have been done keeping the camera still. Also the film could have been made focussed and to the point and editing done to remove lots of side bits of info.

    I have Celiac for over 10 years and can understand the pain, but I would find it hard to send the current film to others. Please consider the edits and make it too the point.

    Thanks

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    Guest can relate

    Posted

    the film was exact and to the point, I love  the ending when she realizes that she was "poisoned" (if I am not mistaken), I have had those experiences in restaurants, they accommodate you but in reality the majority of restaurants have no clue on how real the cross contamination actually is.

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    yogajc
    On 1/20/2021 at 8:01 PM, Guest Maggie O said:

    As some diagnosed with Celiac this film really resonated and shows how isolating it can be in some social situations. And how so many don’t understand you can’t have just some and how eating out is stressful you just never know for sure when you go out! I would love to be able to post this to share! Thank you a great upbeat film about a frustrating topic.

    You can find the link on the video in the upper right corner, where there is an arrow. If you click on it, it gives you the URL to share.

    Edited by yogajc
    typo
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    trents

    I think critics of this short production need to realize that many of their misgivings target characteristics that were intentionally built into the film. The design of the film is not so much to communicate information but to convey an experience through depiction of mood and feelings.

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    Scott Adams

    Most films I've seen on this topic don't exactly resonate with younger people, and tend to be on the boring side. I think the cinematography, editing, and the style the director used sends a powerful message, and one that will also resonate well with younger people. Great job!

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    sc'Que?
    On 1/20/2021 at 11:01 PM, Guest Maggie O said:

    I would love to be able to post this to share! 

    You can!  Click on the Vimeo link in the video itself... or click the link in Scott's original post (OP, as the kids say)... and then SHARE the URL. 

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    sc'Que?
    On 1/21/2021 at 12:52 AM, trents said:

    I have some age-related hearing loss and found the audio to be very muddled. Only caught a word here and there. 

    That was actually an intentional part of the sound-design--and artistic choice, mostly.  The film is designed to make you feel isolated... that you're not fully "present". 

    Sorry if my reply sounds pompous; I don't mean to!   But these were the techniques we studied in film school. And when done correctly, they can be very effective. When they're not (or when they don't take into consideration accommodating all the possible audiences--which is impossible, mind you) they can sometimes fall flat.  

    Still, I think this film does an astounding job of demonstrating the emotional impact of the Celiac experience. 

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    sc'Que?
    On 1/27/2021 at 10:34 AM, Guest Andy said:

    Very good topic, but I think that filmography is very fuzzy and could have been done keeping the camera still. Also the film could have been made focussed and to the point and editing done to remove lots of side bits of info.

    I have Celiac for over 10 years and can understand the pain, but I would find it hard to send the current film to others. Please consider the edits and make it too the point.

    Thanks

    MON DIEU!  You are RUINING their ART!  🤣

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  • About Me

    Hayley Repton

    I'm a filmmaker based in Manchester, UK. In April 2019 I was diagnosed with coeliac disease. The day I was told, I felt like I’d been slapped around the face with a wet fish. I immediately knew that I just had to put my coeliac diagnosis to good use and try to raise as much awareness as possible by making a short film! The aim is to help the people with celiac disease that sometimes feel misunderstood by making something which people without the disease can connect with in an insightful and enjoyable way.  

    The character, a newly diagnosed coeliac, has to say goodbye to all things gluten and embark on lifestyle change which takes her on a turbulent journey. The short film 'glutened' highlights the social aspect and the importance of taking cross-contamination seriously. More info about me is at linkedin and instagram.


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