How Common is Dermatitis Herpetiformis in Celiac Disease Patients?

I had DH for about 7 years before someone figured out it was related to celiac disease. Currently have it on both elbows and scalp. Thank God I have thick dark hair! Disgusting.

My gut is as good as ever.eating well.no weight gain though..rash always causes edema.that is a problem. Skin gets tight on feet and calves. Stretches the skin rash and thats real pain and very depressing. Usually all goes away in five days if im careful.. Perhaps its ginger tea looking after gut? 3+ mugs a day. Love it...

On 11/7/2018 at 3:38 PM, mmcauntie said:

I had DH for about 7 years before someone figured out it was related to celiac disease. Currently have it on both elbows and scalp. Thank God I have thick dark hair! Disgusting.

I, too, had DH for many years before I was diagnosed with Celiac and then it was another 7 years before I figured out the itchy blisters on my scalp were not ingrown hairs, but DH. I had to change all of my topicals; shampoo and conditioner because they had ingredients that were causing the problem and also I found that Iodine greatly compounded the problem from just my scalp to my back, arms and chest. Here is a list of some of the ingredients;

Avena sativa (oats)

Beta glucan (frequently derived from wheat)

Colloidal oatmeal

Dextrin palmitate (starch, possibly gluten-based)

Vitamin E (frequently derived from wheat)

Hordeum vulgare (barley)

Hydrolyzed vegetable protein (may contain wheat)

Hydrolyzed wheat protein

Laurdimonium hydroxypropyl (hydrolyzed wheat protein)

Malt extract (usually barley)

Secale cereale (rye)

Stearyl dimonium hydroxypropyl (hydrolyzed wheat protein)

Triticum vulgare (wheat)

Vegetable protein (may contain wheat, barley, rye and/or oats)

Wheat germ oil

I am now grain free and things are much better. But, being in a household of 7, with 2 of us being Celiac does have its challenges.

I have celiac and dh have been gluten-free since 2008. Also celiac is on both sides of my family.  I had horrible dh all my life...I remember being 3 and eating white bread and breaking out. I'm 47 now. It wasn't until I went totally gluten-free with all my personal care products that I beat DH. I know people say if you don't eat it that it doesn't matter but I totally use gluten free shampoo conditioner makeup lotion soap...everything....no more DH

Hope that helps

My dad had bad DH too and did the same thing

On this issue, statistics are mostly meaningless to me.  I've coded this diagnosis for dozens of children since the 2000's.  In an attempt to feed the nations thru grain hybridization, the end result has been human pain and injured lives.