Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Molly Hallström
    Molly Hallström

    How Medical Marijuana Helped Treat My Ongoing Celiac Disease Symptoms

    Reviewed and edited by a celiac disease expert.
    How Medical Marijuana Helped Treat My Ongoing Celiac Disease Symptoms - Image: CC--Brett Levin
    Caption: Image: CC--Brett Levin

    Celiac.com 01/04/2017 - Ever since I was a young girl I have always had a bad stomach. Last year, when I was 16, I decided to move to London. Circumstances became difficult, and I ended up becoming physically and mentally ill, which included anorexia nervosa and then onset depression and trauma, as well as almost crippling anxiety. Things led to me getting so ill that I went to a doctor who noticed that I had serious mouth ulcers—and this is what finally led them to diagnose me with celiac disease, after what seemed to be months of suffering.

    At the time my diagnosis seemed to make a lot of sense because of the stomach pains I had, especially after eating certain foods. My symptoms included much confusion, dire pains, and resulted in my having a phobia of food. As most celiacs know, currently there is no medicine available to treat celiac disease, and the only treatment is a strict gluten-free diet.

    Celiac.com Sponsor (A12):
    I got diagnosed in late January 2016, and have been on a strict gluten-free diet ever since, and although I believe this has helped me a lot, more than nine months later, I still often have the same symptoms. They vary in levels and are sometimes uncomfortable and very painful. Sometimes I have migraines, stomach bloating, churning, etc., all of which are not very nice.

    Let me explain a little about what celiac is. It is an autoimmune disease where the immune system kills off tissue in the small intestine in response to ingesting gluten. This can make eating more difficult, and a lot of the time I am left in pain with nothing to do but sit in agony and wait for it to stop.

    But what if there was something else out there that could help with ongoing symptoms? I recently discovered that thousands are being helped by using cannabis to treat their celiac disease symptoms. Marijuana is gluten-free and for some, can ease the painful symptoms. Special note: This approach is NOT meant as a substitution for a guten-free diet, but for some people, like myself, it can offer additional symptom relief for those who need it.

    Reset.me has this posted:
    "Marijuana 'cools the gut,' in which it slows down the muscle contractions that move food through the stomach and intestines and reduces the secretion of liquid into the intestines associated with diarrhea (one of the most severe symptoms of the disease)," Deno writes. "Marijuana also controls the muscle spasms associated with diarrhea. It also increases appetite and can offset the inefficiency in the Celiac's ability to absorb nutrients from the food you eat."

    "People with celiac in some states in America are able to get access to to medical marijuana if they have chronic pain. The rest of us [celiacs] are left with buying illegally or simply avoiding this one plant that may be the most effective celiac treatment of all!"

    HelloMD.com states:
    "Inflammation can be suppressed by activating the cannabinoid receptors, CB2, on immune cells. Though there have not yet been clinical human trials, this study opens up new avenues to investigate as possible treatment options for autoimmune diseases. Though this study only looked at THC, CBD is also known to help the immune system. CBD helps repair the bodies [sic] ability to recognize the difference between normal internal body functions and foreign entities, keeping the body from attacking itself."

    Remember, Marijuana is not a cure, but is a natural anti-convulsant and can suppress seizure activity. It is also anti-inflammatory, and has helped people with other autoimmune diseases such as rheumatoid arthritis, psoriasis, Type 1 diabetes, multiple sclerosis, and many others.

    I smoked cannabis even before I was diagnosed, and I always found that it settled my stomach. I have since spoken to many other people with celiac disease online and face to face, and I've done a fair amount of research to find out if there are other celiacs who experience the same relief from their symptoms.

    While doing my research, I came across an interesting post on Medhelp.org by Betherie Mommi about a girl with celiac who also suffers with IBS and has a history of chronic pain, nausea and, just like me, eating disorders. With such a weak stomach it's always hard to eat things without discomfort. She goes on to say that she uses medical marijuana becuase the meds that the doctors gave her have not helped with the pain and side effects of the medications, and the marijuana has also helped her appetite. She goes on to give one of the best descriptions of stomach pains, which I also get, but had difficulty explaining: "like velcro made out of razor blades being pulled apart in certain parts of your belly." She goes on to say that it also gave a sense of community back to her life, as you do sometimes feel excluded as a celiac, because there's a lot you have to miss out on. Betherie Mommi was a medical marijuana patient.

    I really notice the effects it has on me, and how it relieves my stomach pains, including providing relief from the confusion and anxiety that I've experienced. I feel that other people shouldn't have to go through what I've had to experience, and I really do believe that this is an exceptional way forward for some people.

    You can find CBD only "vapes", liquids, and waxes, which are also supposed to help, but in my case the THC, even if it is a low dosage, was essential to get rid of the pain.

    What I have described in this article is only what has helped me, after much suffering, and I urge all celiacs to do their own research and speak to their doctors before making a decision. I really believe that this approach could be helpful to so many others, but I also realize that it may not be for everyone.

    Sources:



    User Feedback

    Recommended Comments

    Guest virginia

    Posted

    Have you tried digestive or pancreatic enzymes? That helps me tremendously.

    Link to comment
    Share on other sites
    Guest Sandra Alexander

    Posted

    My diagnosis says, MS and Addison's disease secondary to celiac disease. MS has been benign for 10 years due to cannabis and a gluten free diet.

    Link to comment
    Share on other sites
    Guest Eileen Dueck

    Posted

    A suggestion for Molly. People that have celiac will also most likely have intolerance to any and all dairy products. After realizing I have celiac I also continued with problems. My doctor told me about the dairy problem. I tried it and it was amazing how much it helped.

    Link to comment
    Share on other sites
    Guest Jim

    To all above. As a celiac recommend you check out "gelatin". Suffering "leaky gut" effects, the use of gelatin repaired the gut in about three weeks. It acts like an elastic bandage that glues to the gut. An organic food that is readily available.

    Link to comment
    Share on other sites
    Guest Noname

    Thank you Molly, that was very informative. 

    Link to comment
    Share on other sites
    Guest Festus

    I recently got to try CBG oil as I was suffering IBS from antidepressant discontinuation syndrome. It worked a treat after a large single dose and in maintenance dose needs more a little more than a few drops.

    I am gluten intolerant not celiac, and was glutened just a couple of days ago after eating a fairly big amount of wheat products. I know how stupid I am to eat that. Normally I avoid gluten but can handle around a slice of bread a week without noticeable effect, so will occasionally indulge small amounts. But this time was a big ol' feed of wheat products

    Hence my google search and finding this article, thanks Molly.

    As usual the next day I felt awful. Normally I experience pronounced neurological [ADHD etc] and some minor psychiatric symptoms after a large gluten exposure, and loose stools for a few days. I have other symptoms too like kidney issues etc and minor stuff also over the next month or more. All typical stuff.

    This time on the day after, I again took a large dose of CBG oil and was surprised to experience a quick relief from the glutening. I didnt take the CBG until about 24 hours after the gluten exposure, and initially the symptoms were as bad as usual if not moreso due to the larger consumption of wheat product. However the CBG appeared to stop the train wreck in its tracks. Its 48 hours now since glutened and I feel great, when usually I'm neurotic as hell.

    I'll post again in a week or so, but as of now I cant believe how good the efficacy of CBG oil is on my glutening.

    Link to comment
    Share on other sites
    Guest Festus

    CBG offered some short term help as far a symptom relief, lowered intensity of symptoms and comforting anxiety but dont be fooled into thinking its a cure.

    The longer term issues of glutening are still the same. CBG mostly seem to primarily mitigate inflammation. 

    However, that in itself is quite good and I feel it has a place in the medicine cabinet for symptom relief.

    Link to comment
    Share on other sites
    Guest Sam the man

    Posted

    omg you helped me so much. You are the best writer and I so thankful for this article!

    Link to comment
    Share on other sites
    Guest ToothFairy

    Posted

    Wonder if it would help with sever IBS 

    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Molly Hallström

    Molly lives in London and advocates for medical marijuana to treat celiac disease.


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Kim Hopkins
    Celiac.com 06/24/2009 - If you are like the majority of people diagnosed with celiac disease, it probably took you many years of experiencing debilitating symptoms, talking to multiple doctors who gave you varied theories and diagnoses, thinking that you would never feel better…before you finally got it figured out.  Whether you had a positive experience with your health care professionals or not, hearing the diagnosis can lead to feeling lost and unsure of what to do next.  It can be quite overwhelming.  After all, food plays an important part in our culture – it’s how we share special moments together, celebrate, and nurture one another.  A big sense of loss can overcome someone when they hear that they can no longer eat wheat, barley, rye, and contaminated oats.  Some people say they g...


    Dr. Vikki Petersen D.C, C.C.N
    Gluten-Free But Still Feeling Ill
    This article originally appeared in the Spring 2010 edition of Celiac.com's Journal of Gluten-Sensitivity.
    Celiac.com 10/22/2010 - More and more we’re hearing from frustrated patients who, despite being vigilant about their gluten-free diet, continue to suffer health problems.
    I have been involved in the field of celiac and gluten sensitivity for over 15 years and am delighted by much of the recent increased awareness and attention given to the area.  But I’m also concerned about the lack of assistance given to many patients who have been definitively diagnosed with either celiac disease or gluten sensitivity.  While being correctly given the advice to not eat gluten, they are not provided with a follow-up program to address and treat the secondary effects of gluten sensi...


    Jefferson Adams
    Gluten-Free Marijuana Edibles Gaining Popularity
    Celiac.com 03/28/2014 - Great news for some celiac and gluten-intolerant folks in Colorado! Legal marijuana sales began in Colorado on Jan. 1, 2014, and new shop owners have been surprised to find a strong the market for marijuana edibles. More and more, makers of these edibles are including gluten-free selections.
    In some ways, it seems both natural and inevitable that the rising retail market for gluten-free good and the rising retail market for edible cannabis products should overlap.
    That is what is happening now in Colorado. As marijuana retailers such to meet the demand for weed, they are also rushing to meet the demand for edible cannabis products.
    This, in turn, has many manufacturers across Colorado racing to bake, inject, spray and infuse marijuana into nearly every...


    Jefferson Adams
    Could a New Cannabis Patch Bring Relief from Celiac-Related Nerve Pain?
    Celiac.com 11/27/2017 - For centuries, physicians have used cannabis to treat numerous disorders. Modern research shows that various cannabis compounds can alleviate symptoms from numerous conditions, including neurological disorders, cancer, rheumatism, epilepsy, sexual disorders, pain, among others.
    Many people with celiac disease suffer from neuropathy, which causes nerve pain, among other symptoms. Neuropathy can be difficult to treat. Nerve pain is a debilitating symptom that can significantly impair a patient's quality of life. Could a new cannabis patch change that?
    Some researchers think so. One California-based company, Cannabis Science, is developing an innovative new medicinal patch specifically designed to treat nerve pain. In addition to celiac related neuropathy, the...


  • Recent Activity

    1. - trents replied to jmiller93's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      What do my test results mean?

    2. - jmiller93 replied to jmiller93's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      What do my test results mean?

    3. - trents replied to jmiller93's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      What do my test results mean?

    4. - jmiller93 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      What do my test results mean?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,715
    • Most Online (within 30 mins)
      7,748

    laura ash
    Newest Member
    laura ash
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • jmiller93
      4
    • MomofGF
    • Louise Broughton
      4
    • marip
      5
    • sh00148
      19
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...