iCureCeliac® is a patient-powered research network (patient registry) designed to help researchers better understand, and ultimately, cure celiac disease and non-celiac gluten/wheat sensitivity. iCureCeliac® allows patients to contribute medical information and their experiences living with celiac disease and non-celiac gluten/wheat sensitivity to advance life-changing initiatives in research, education, and advocacy. Your participation will help discover new ways to improve patient lives through better diagnostic tools, treatments for cross-contact and gluten consumption, governmental policy changes, and access to new and innovative clinical trials nationwide which may one day cure celiac disease. Add your data to iCureCeliac® today and help solve celiac disease.
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You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
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By Scott Adams
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About Me
Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.
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Recent Activity
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- Dhruv posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0
Confused with test results
, I m writing this email for my 18 years old son. We are resident in USA from past 18 years. My son is born in India, and I got him here when he was 3 months. He has been playing cricket since he is 4 years. In 2015 we went to india for a vacation, there he had severe stomach pain for 10 days, we went to hospital and they found out gastro! He... -
- Patty harrigan replied to Mary Em's topic in Related Issues & Disorders6
Passing out
That’s exactly what happens to me. I have been unconscious twice, vomiting afterwards for up to 9 hours and then the bone breaking chills start. I have never vomited while unconscious, thank god. It’s an unusual presentation and my doctors were reluctant to think it was due to gluten ingestion. However, I know it was gluten as both times it happened wit... -
- trents replied to Sking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Please help me understand my Celiac Gene Restuls, thank you.
I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient... -
- Scott Adams replied to Sking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Please help me understand my Celiac Gene Restuls, thank you.
A simple blood test should be done, and is usually the first step in diagnosing celiac disease. To do this you need to be eating lots of gluten daily for 6-8 weeks before doing the test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease... -
- Sking replied to Sking's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Please help me understand my Celiac Gene Restuls, thank you.
Trents, Thank you for the informative information. It's interesting that you suggested an infection or something 'triggers' celiac disease. I have been wondering if this happened because I was hospitalized with E-Coli last December and then hospitalized in June with C-Diff. So, they did do the Antibody Testing but never told me anything about...
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