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Kids and Celiac Disease
The information and philosophies that you will find in the kids section of this site are based on more than 20 years of research and experience. Many of the articles here are written by Danna Korn, founder of R.O.C.K. (Raising Our Celiac Kids), a free support group started in 1991 for families of kids on the gluten-free diet.
18 articles in this category
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Recent Activity
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- cristiana replied to MTAC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3NEW - 7 year old daughter diagnosed but 'not officially' - negligence from NHS
Hi @MTAC Welcome to the forum. I am so sorry to read about your situation. I'm a UK coeliac so I thought I'd add this to Trent's and Scott's excellent posts. Here the UK my TTG test results frequently lag behind my other annual lab results. I think the longest it took was a couple of weeks, but from memory on this forum I've read at least one... -
- Scott Adams replied to lizzie42's topic in Coping with Celiac Disease12New diagnosis for 3 year old. Help!
To me it seems like a slam dunk diagnosis, and the actual confirmation should be recovery on a gluten-free diet. If her symptoms improve on the diet, it would be final confirmation that she has celiac disease--and likely DH as well. -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease12New diagnosis for 3 year old. Help!
Thank you for all your help! We agreed with the pediatrician that if further testing is necessary we will reintroduce. Given all the evidence I would never put her out for an endoscopy even if recommended by the GI. So today I'm purging the kitchen and cleaning. -
- trents replied to lizzie42's topic in Coping with Celiac Disease12New diagnosis for 3 year old. Help!
The blistery rash is almost certainly dermatitis herpetiformis, a classic indicator of celaic disease and for which celiac disease is the only known cause. There really isn't much doubt that she has celiac disease given all the evidence so far. -
- lizzie42 replied to lizzie42's topic in Coping with Celiac Disease12
New diagnosis for 3 year old. Help!
Thank you! Hers were much higher than 10x plus positive ema. Plus anemia, rash, low vitamin d. The GI appointment isn't till middle of April but the pediatrician said to go ahead and stop gluten as there is no question. We went ahead and she hasn't had gluten for about 36 hours. This morning her rash wasn't blistery for the first morning since it started...
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