Malignant Cancers are a Hidden Danger for Celiacs

Interesting article but lacks a lot. I diagnosed myself as Celiac after having a Celiac Panel and biopsy, the GI doctor told me that I was borderline and did not need to go gluten free. My two year old son was dying and wasting away while multiple doctors told me he had a brain tumor and cystic fibrosis. Turns out I insisted he be tested for celiac disease and subsequently found to be Celiac. Checked the rest of the family and my other children were Celiac too. My health continued to deteriorate including numerous symptoms of neuropathy. After having a brain scan, I was told that plaques on my brain indicated "white matter brain disease". I was told I was dying of ALS and had less than a year to live. I started researching celiac disease and found that people with Dermatitis Herpetiformis are automatically considered Celiac without a Celiac Panel or internal biopsy. My elbows were covered with DH for my entire life, I put two and two together and went gluten free. After one year of having no symptoms I demanded my doctor give me another brain scan, the doctor was amazed that the scans showed no sign of plaques on my brain. All symptoms were gone, dry eyes, glossitis, ringing in the ears, aphasia, ataxia, swollen joints and so on. All symptoms related to vitamin and mineral deficiencies were gone. Before diagnosing myself I lost my gall bladder and suffered hypoglycemia my whole life. I was told I had dementia at 45 but so young nobody would say "Alzheimer's. Doctors diagnosed my mother with Alzheimer's at age 60, I am certain that she was Celiac because when she died, she had a perforated bowel as did my brother at age 58. So the symptoms of celiac disease is not just diarrhea and lethargy but actually all symptoms associated with vitamin and mineral deficiency. Doctors fail to properly diagnose and I believe all people diagnosed with dementia should be tested for celiac disease and check their history for loss of a gall bladder and if a doctor ever said they had arthritis or lyme disease then they are likely to have been misdiagnosed. Doctors killed more of my family members than they ever helped. 

1 hour ago, Guest Craig said:

Interesting article but lacks a lot. I diagnosed myself as Celiac after having a Celiac Panel and biopsy, the GI doctor told me that I was borderline and did not need to go gluten free. My two year old son was dying and wasting away while multiple doctors told me he had a brain tumor and cystic fibrosis. Turns out I insisted he be tested for celiac disease and subsequently found to be Celiac. Checked the rest of the family and my other children were Celiac too. My health continued to deteriorate including numerous symptoms of neuropathy. After having a brain scan, I was told that plaques on my brain indicated "white matter brain disease". I was told I was dying of ALS and had less than a year to live. I started researching celiac disease and found that people with Dermatitis Herpetiformis are automatically considered Celiac without a Celiac Panel or internal biopsy. My elbows were covered with DH for my entire life, I put two and two together and went gluten free. After one year of having no symptoms I demanded my doctor give me another brain scan, the doctor was amazed that the scans showed no sign of plaques on my brain. All symptoms were gone, dry eyes, glossitis, ringing in the ears, aphasia, ataxia, swollen joints and so on. All symptoms related to vitamin and mineral deficiencies were gone. Before diagnosing myself I lost my gall bladder and suffered hypoglycemia my whole life. I was told I had dementia at 45 but so young nobody would say "Alzheimer's. Doctors diagnosed my mother with Alzheimer's at age 60, I am certain that she was Celiac because when she died, she had a perforated bowel as did my brother at age 58. So the symptoms of celiac disease is not just diarrhea and lethargy but actually all symptoms associated with vitamin and mineral deficiency. Doctors fail to properly diagnose and I believe all people diagnosed with dementia should be tested for celiac disease and check their history for loss of a gall bladder and if a doctor ever said they had arthritis or lyme disease then they are likely to have been misdiagnosed. Doctors killed more of my family members than they ever helped. 

Thanks for sharing your story, Guest Craig. It's heartbreaking that there was so much suffering in your family from misdiagnosis. But, what is the connection between what you shared and the topic of the article which you criticize by saying it, "lacks a lot"?

@placey0918

That's really interesting. 

I'd love to have detailed tests for minerals and vitamins - unfortunately that sort of testing isn't routinely done here in the UK, not even under my private consultant which is a shame because I am sure many of my issues were to do with deficiencies.  What you say about zinc is so interesting because I now take it with vitamin C when I feel I am coming down with a cold virus and it seems to stop it in its tracks.  I have had a really good winter for a change! I wonder if I've been deficient all this time?

Thanks for sharing, Craig.

Stick around the forum and you'll find lots to back up what you already know. 

Wheat is addictive, and a very profitable commodity.  Mention "gluten free" and people get angry, just like an alcoholic.  Lots of money is spent to convince us wheat is good. Did you know Norman Borlaug recieved the Noble Prize for creating the 'modern wheat' that I think is up to 80% of the wheat consumed worldwide, nowadays?

Yes, that white plaque on the brain is similar to those found in epilepsy, too. Others on the forum have had it. Gluten sensitivity and epilepsy: a systematic review

My son was diagnosed in 1976 around 3 months old. There was only one doctor in an area the size of NJ with a clue. After a few months on Nutramigen, then gluten free real food, grew up strong and healty.  A clue I missed was my mom's comment at the time: "You got as good as you gave." I came out of denial at 63.  I counted 19 symptoms that improved, just on GFD, alone; and have been working to undue the malnutrition, since. Pretty sure my wife was Celiac, also, hence the early onset of the child.

Father and one brother died of sepsis because stiches leaked after intestinal surgery. 

Choline:  Gall Bladder, A Vital Organ That is Being Removed At Alarming Rates.  In addition to fat digestion, choline is the base for acetylcholie (nerve transmission) and phosphotidylcholine (mitochondria and cell membranes)

Vitamin D Benefits of vitamin D

21 hours ago, Guest Craig said:

So the symptoms of celiac disease is not just diarrhea and lethargy but actually all symptoms associated with vitamin and mineral deficiency.

At the time, this was called Kwashiorkor.  It wouldn't do to blame Celiac Disease, too much profit at stake and Borlaug was up for the Nobel. Trouble is kwashiorkor has stunted toes and fingers. The Biafra Famine kid in this picture does not.  One day, before he was diagnosed I looked down at my son in his crib and remembered a photo similar from 1970 newspaper and TV news. In 2014 I looked at myself and saw the same body.  I was really sick at that point.

Regarding cancer: Iodine intake in the US is half what it was in 1970 and cancer rates have doubled. That began with the Atomic Age, led by The Wolff-Chaikoff Effect.

High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3963161/

"Our findings suggest that high dose thiamine reduces cancer cell proliferation by a mechanism similar to that described for dichloroacetate."

On 5/8/2023 at 10:31 AM, Guest Interesting said:

Let me start by saying that I agree with your encouragement of celiacs to continue to get regular check ups with regard to their Celiac Disease and to be followed regularly by a physician knowledgeable in the care and treatment of the disease. It is very helpful and responsible for you to do remind everyone of the importance of such visits. 
 

I do take issue with a couple of things though. I have recently read articles from studies whose authors concluded the exact opposite of what you are saying about the incidence of cancers related to gluten damage in celiacs. The conclusions were that the incidence of these cancers is actually much less than originally thought and that the rate of these cancers was statistically insignificant when compared to the non-celiac study participants. While I agree that Celiac patients should continue to have regular follow ups, I do not agree with your scare tactics with out dated or misinterpreted information based on the small scale study you are reciting. People come here to find important information about their serious disease from your publication and expect that they are receiving accurate information but this article is not based on the latest evidence  being published based on scientific proof that is being shared by other publications. It seems that your goal here is to use a small scale study as a scare tactic which is irresponsible and quite offensive. Do better by looking at the entire scope of current research available on a topic rather than taking one small study and writing a quickly sourced inaccurate article. 
 

 

I agree. The studies I’ve read say colorectal cancer is actually lower in celiacs. Also the chances are small in the general population. The chances may be slightly higher in celiac but still not likely. It’s very frustrating and celiac diagnosis and treatment is a total crap storm. One study says one thing and another completely contradicts it. That tells me no one knows what the heck is really going on. Maybe someday everyone will get on the same page. I often ask myself why I read any of this. It’s one scare after another. The stress is probably worse than gluten for our health. There are always people willing to jump in and tell you you are wrong if you disagree instead of entertaining the idea that no one really knows anything about this for sure. 

On 5/8/2023 at 10:31 AM, Guest Interesting said:

Let me start by saying that I agree with your encouragement of celiacs to continue to get regular check ups with regard to their Celiac Disease and to be followed regularly by a physician knowledgeable in the care and treatment of the disease. It is very helpful and responsible for you to do remind everyone of the importance of such visits. 
 

I do take issue with a couple of things though. I have recently read articles from studies whose authors concluded the exact opposite of what you are saying about the incidence of cancers related to gluten damage in celiacs. The conclusions were that the incidence of these cancers is actually much less than originally thought and that the rate of these cancers was statistically insignificant when compared to the non-celiac study participants. While I agree that Celiac patients should continue to have regular follow ups, I do not agree with your scare tactics with out dated or misinterpreted information based on the small scale study you are reciting. People come here to find important information about their serious disease from your publication and expect that they are receiving accurate information but this article is not based on the latest evidence  being published based on scientific proof that is being shared by other publications. It seems that your goal here is to use a small scale study as a scare tactic which is irresponsible and quite offensive. Do better by looking at the entire scope of current research available on a topic rather than taking one small study and writing a quickly sourced inaccurate article. 
 

 

I think there is a possibility that the processed gluten free replacements could be causing the cancers. Gluten free bread, crackers and all of the other food we eat to feel normal is usually full of junk to make it taste good and also is usually higher in calories and sugar. Those who opt for whole foods may not have this issue. Just a theory. 

I find this interesting.

• "With westernisation however came an increase in the intake of refined carbohydrates and sugar in the Alaskan Inuit. Indeed, compared with the Inuit of Point Hope, the Inuit living in a boarding high school consumed more carbohydrates (48% vs 10% of total calories), less fat (39% vs 55% of total calories) and less protein (14% vs 35% of total calories)."
• "Alaskan natives who had previously had just 1/18th the rate of death due to ischaemic heart disease in the mid-1950s had an identical rate of heart disease mortality by the mid-1980s compared with the USA. Importantly, one of the major dietary changes that occurred in the mid-1950s in Alaskan Inuit was an increase in the intake of carbohydrates and simple sugars."
• "In the 1950s, only five diagnoses of diabetes had been made from eight hospitals serving Alaskan Inuit, ‘Five hospitals had never seen diabetes mellitus in an Eskimo’. More importantly, ‘Vital statistics reports showed 35 deaths due to diabetes in Alaska in the years 1919–1951, but none of these were in Eskimos’. In other words, prior to 1950, diabetes was virtually non-existent in the Alaskan Inuit."    Markedly increased intake of refined carbohydrates and sugar is associated with the rise of coronary heart disease and diabetes among the Alaskan Inuit

37 minutes ago, Wheatwacked said:

I find this interesting.

• "With westernisation however came an increase in the intake of refined carbohydrates and sugar in the Alaskan Inuit. Indeed, compared with the Inuit of Point Hope, the Inuit living in a boarding high school consumed more carbohydrates (48% vs 10% of total calories), less fat (39% vs 55% of total calories) and less protein (14% vs 35% of total calories)."
• "Alaskan natives who had previously had just 1/18th the rate of death due to ischaemic heart disease in the mid-1950s had an identical rate of heart disease mortality by the mid-1980s compared with the USA. Importantly, one of the major dietary changes that occurred in the mid-1950s in Alaskan Inuit was an increase in the intake of carbohydrates and simple sugars."
• "In the 1950s, only five diagnoses of diabetes had been made from eight hospitals serving Alaskan Inuit, ‘Five hospitals had never seen diabetes mellitus in an Eskimo’. More importantly, ‘Vital statistics reports showed 35 deaths due to diabetes in Alaska in the years 1919–1951, but none of these were in Eskimos’. In other words, prior to 1950, diabetes was virtually non-existent in the Alaskan Inuit."    Markedly increased intake of refined carbohydrates and sugar is associated with the rise of coronary heart disease and diabetes among the Alaskan Inuit

No doubt it’s bad. Sugar feeds it all. From what I can tell the gluten free options for are even worse than the regular. I haven’t bought a single loaf of gluten free bread or crackers. I did buy gluten free macaroni and cheese once. I’d rather not have it. I’ll stick to the meat, fruit and vegetables and things that don’t have it but I won’t buy the gluten free processed options including gluten free Oreos. I do without. 

15 minutes ago, LP023 said:

No doubt it’s bad. Sugar feeds it all. From what I can tell the gluten free options for are even worse than the regular. I haven’t bought a single loaf of gluten free bread or crackers. I did buy gluten free macaroni and cheese once. I’d rather not have it. I’ll stick to the meat, fruit and vegetables and things that don’t have it but I won’t buy the gluten free processed options including gluten free Oreos. I do without. 

I don't know. Depriving one's self of gluten free comfort foods may create anxiety that does more harm than the comfort food.