Most doctors are sadly lacking in nutrition information.  

I could have told you the exact same thing. Drs and their assistants look at me with a deer in the head light look if I mention I'm celiac just to let them know if I'm having a issue.

My dentist who is amazing went out of his way to make sure my 16 year old recently diagnosed daugther was not exposed to gluten during her dental cleaning and exam. Make sure your dentist is aware ahead of your visit that you have celiacs. There may be gluten im powdered gloves, paste, etc.  He also informed her that celiacs get dry mouth, which she does, which lead to tooth decay. He gave her gluten free Biotene lozenges and mouth gel which work well for her.  Her last dentist was not knowledgable about at all and made fun of her for  eating gluten free oreos. We will never ever go back to him!!!

8 hours ago, Guest Sjb said:

I could have told you the exact same thing. Drs and their assistants look at me with a deer in the head light look if I mention I'm celiac just to let them know if I'm having a issue.

I know the feeling.  My GI's assistant told me flat out that the Dr. would NOT discuss food.  My PCP doesn't know anything about celiac beyond gluten free dieting.  He thinks I should refer any difficulties back to my GI.  It's not just the lack of knowledge that gets me, it's the serious lack of interest!  We're forced to seek help from alternative sources.  Is it any wonder the general public has so little faith in traditional medicine these days?  

21 minutes ago, Guest Heidi said:

My dentist who is amazing went out of his way to make sure my 16 year old recently diagnosed daugther was not exposed to gluten during her dental cleaning and exam. Make sure your dentist is aware ahead of your visit that you have celiacs. There may be gluten im powdered gloves, paste, etc.  He also informed her that celiacs get dry mouth, which she does, which lead to tooth decay. He gave her gluten free Biotene lozenges and mouth gel which work well for her.  Her last dentist was not knowledgable about at all and made fun of her for  eating gluten free oreos. We will never ever go back to him!!!

Today is a "better" time for celiac disease patients.  Dentists were simply not in tune with the potential damage.  Over the decades what proceeded was: lost enamel, cracked teeth, broken teeth requiring extraction.  My mouth became a "mess" after acquiring celiac disease.

What i have learned over the last two drcades dealing with Celiac, and with other collateral damages, is that doctors are bottom feeders and bottom readers. America's sickcare system rakes in over 3 TRILLION a year. And I'm pretty SURE its not from early DIAGNOSIS!

So true!!

I never thought to mention my new celiac to my dentist - thank you for that!

On 9/1/2021 at 9:39 AM, Guest Lotte8 said:

I know the feeling.  My GI's assistant told me flat out that the Dr. would NOT discuss food.  My PCP doesn't know anything about celiac beyond gluten free dieting.  He thinks I should refer any difficulties back to my GI.  It's not just the lack of knowledge that gets me, it's the serious lack of interest!  We're forced to seek help from alternative sources.  Is it any wonder the general public has so little faith in traditional medicine these days?  

Since my Celiac diagnosis 3 years ago, I've been to a Pulmonologist, dermatologist and the dreaded PCP.  He refers me to either the NP or my GI who is hard to get an appointment with.  My husband died during all this and the anxiety and stress I understand can't be good for celiac disease.  I see a therapist who is wonderful but I don't want to be on an antidepressant for the rest of my life.  My diarrhea is crazy and I'm worn out.  Just wanted to vent. Thanks.

Is your diet 100% gluten-free? Do you eat in restaurants? If so, probably not.