Nutrient Deficiencies in Adults and Children with Treated and Untreated Celiac Disease

I’ve been gluten free 9 years and dairy free 4 years. I also have Hashimoto. I do regular blood work in 3-6 month intervals to monitor thyroid, iron, zinc, b’s and Vitamin D. I adjust my supplements according to bloodwork but without them there is no way I would have gotten my health back. I eat predominantly a paleo diet, healthy varied and I stay out of the box bag and can/keep processed foods to a minimum. I also take digestive enzymes. IMO most celiacs will continue to struggle with poor vitamin status and should be closely monitored.  

I discovered I had celiac over 6 years ago. Unfortunately, the health care system I use blew me off, but I did get tested by another doctor outside that system. Someone online told me about Ferritin levels, and when I ran my own labs it was 13 ! I did not have to take iron for long, but from time to time I have to take iron. I am gluten free and cow dairy free ( due to another illness, that seemed to happen at the same time- EOE) I probably should be taking a multi and extra D & B's as with most celiac's we do not eat much processed foods which have added nutrition (not healthy, but the vit., added might be helpful).  I recall having a bone scan and showed my bones were weaker, after going 100% gluten-free, the following year bone scan showed no change. The tech said he had never seen anything like that.       

I have been given Vitamin D/Calcium prescription on prescription for life. And even then my vitamin D is often too low

On 7/20/2020 at 8:32 PM, cyclinglady said:

Have you had follow-up testing to determine wither your celiac disease is still active?  

I was diagnosed by endoscopy 17 years ago and have been on a strict gluten-free diet since then.  I just got my second endoscopy and the villi have not healed.  My bloodwork showed "no Celiac Disease."

I have found a way to flood my body with 30+ nutrients from plants and have been feeling amazing. My gut has healed and I’m less sensitive to cross contamination because my body has the nutrients it needs to heal itself. I cannot eat gluten, but it is amazing how I can eat at people’s houses when I couldn’t before. 

On 7/22/2020 at 8:00 AM, Guest Tori said:

I discovered I had celiac over 6 years ago. Unfortunately, the health care system I use blew me off, but I did get tested by another doctor outside that system. Someone online told me about Ferritin levels, and when I ran my own labs it was 13 ! I did not have to take iron for long, but from time to time I have to take iron. I am gluten free and cow dairy free ( due to another illness, that seemed to happen at the same time- EOE) I probably should be taking a multi and extra D & B's as with most celiac's we do not eat much processed foods which have added nutrition (not healthy, but the vit., added might be helpful).  I recall having a bone scan and showed my bones were weaker, after going 100% gluten-free, the following year bone scan showed no change. The tech said he had never seen anything like that.       

I was born with Celiac Disease from the time I was a wee baby. We were poor in southern GA, and my father had at least two or three autoimmune diseases. Type 1 diabetes, MC and maybe Celiac disease. I have photos of myself as a baby with a bloated stomach. I have photos of me crying and holding my stomach and my dress ready to pop. Nobody seemed to notice. Nobody cared. My father was in WWII and the Korean War. He was death warmed over and always sick. He was a human stick with no hair, light complexion and would throw tantrums. Not an easy childhood. We had to survive and I was a side line. We slept in an army barrack while my father built our house with his own hands. We had important fish to fry than to worry about my silent Celiac Disease. I don't remember diarrhea but the photos show I was having abdominal pain and crying. My stomach was always big. It was up one day, down the next. I never knew what was wrong with me. One day I would be okay, the next I would have brain fog, no energy, and I wanted to lie down all the time. I was sick but didn't know why. I took jobs that took no brain power or energy to perform, because I was out of sorts, fatigued, brain fogged and shaky. I was a MESS! I had no idea what was wrong. I went to EVERY doctor imaginable, except a GI specialist. Some doctors called me crazy, some said all I needed was a man and sex, or I was fat. Fat - maybe so when I was bloated all over. Doctors can be mean. The God complex and they don't know everything, especially GI specialists. I learned to live with this undiagnosed disaster all my life until I was diagnosed with Microscopic Colitis. This was in my 62nd year of life. So you can say I've had Celiac Disease all my life. I'm now 66 years old so y'all can do the math. I was diagnosed with Microscopic Colitis and was tested by Dr. Fine's lab that confirmed my allergies to food. That's when I knew I had Celiac and MC. My three big enemies are: MILK  GLUTEN and SOY!

Microscopic Colitis is the tricky one. Everyone is different with MC. What one food is okay with me is not okay with another person with MC. We are all different. It's much more complicated than Celiac Disease. Both are bad but MC is COMPLEX! Chronic Diarrhea all day - 20 to 30 times daily to the bathroom. I take Cholestyramine for the diarrhea. It helps to lead a somewhat normal life, but I am extremely fatigued and extreme brain fog! I basically eat a caveman's diet. I check out all ingredients. No milk, gluten, cheese, soy, soft simple meats, pecans soaked overnight for a smoothie in the morning. Eggs and corn did not show an alarm, so I can eat those. I was told to eat lots of protein for gut healing. We are magnesium deficient, so I take a special Doctor's Magnesium. I also take Vitamin D for healing. Plus potassium and Vit B. I avoid everything with artificial anything and if I don't know an ingredient, it's off my list. I avoid it. I try for only simple safe natural stuff in my food. Ever wonder why the food manufacturers have the largest lobby group in the country. They know they are poisoning us with their food that is slowly killing us, so they need protection. We were healthier when our moms cooked dinner for us every day and night. We ate vegetables, fruit, and simple meats. NO FAST FOOD CRAP! We were healthier when we butchered our own animals. You knew what you were eating. Even when I was a child, food was more basic. My ancestors grew their own food on their farm and butchered their own animals. They were a more robust and healthier bunch back then. Plus you worked and didn't sit around all day on your cell phone. Kids played and wore themselves out. Kids can't or won't play anymore. No exercise.  

Everything I eat has to be soft, so I can heal. My gut has to be a disaster. I may never heal with Celiac and MC along with diabetes. I see my demise as I sit. My father died of a massive stroke at age 50 from complications of Type 1 diabetes and gut issues. His Irish grandfather died at age 34 and his great grandfather died at age 25. They probably had Type 1 diabetes along with gut issues and drank themselves to death. Yea, I know Irish drink, but a lot of times people drink to relieve themselves of having diabetes and other autoimmune diseases with no cure. They had no insulin back when my Irish grandfathers were living. It was a death sentence.

I know I may heal with MC. I've had it only since I was in my early 60s. Not sure if I will heal with Celiac because of how long I've had it. Plus my diabetes that is aggravated by my gut issues. Extreme highs! I feel like a ticking time bomb. Will I ever heal with Celiac and having it all my life? My demise may be right around the corner. What say y'all? I need some answers. Thanks, Dorothy

20 hours ago, Guest Dorothy Olson said:

I was born with Celiac Disease from the time I was a wee baby. We were poor in southern GA, and my father had at least two or three autoimmune diseases. Type 1 diabetes, MC and maybe Celiac disease. ...

 

What is MC?  { I could Google it, but there are probably lots of things that MC stands for. }

On 7/24/2020 at 9:55 AM, Rhyo9 said:

What is MC?  { I could Google it, but there are probably lots of things that MC stands for. 

She mentioned it in first paragraph.

"I learned to live with this undiagnosed disaster all my life until I was diagnosed with Microscopic Colitis."