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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- James47 posted a topic in Coping with Celiac Disease0
Long term recovery
Hey everyone I hope all are well and having a good 2025 so far. I am 50 this year and I only got diagnosed with celiac in June 2023. I have followed my diet to the letter since and they said after so many years undiagnosed it would take a long time to recover. Although I feel I have lot more energy and health and wellbeing is a lot better I... -
- trents replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Just got Celiac blood test results back and they seem crazy high!
Welcome to the forum, @TexasCeliacNewbie! The test results you posted strongly point to celiac disease. It is likely that your physician will want to perform an endoscopy with biopsy of the small bowel lining to confirm the results of the celiac antibody bloodwork results you just posted. It is important that you not cut back on gluten consumption until... -
- TexasCeliacNewbie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Just got Celiac blood test results back and they seem crazy high!
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me that otherwise are worrying me that... -
- trents replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
New Guy Here...
So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease? -
- TerryinCO replied to TerryinCO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
New Guy Here...
Here's the test result I was refering to. I may not be understanding this correctly.
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