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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Tracey Thomas replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
New and Frustrated
The hardest part for me is this terrible rash it’s now flaring up since I’m done with steroids. 5 weeks of the rash I’m ready to pull my hair out. Has anyone had this problem this long? I also was so use to just getting up going in kitchen to grab a snack now I’m like what am I gonna eat and I’m frustrated just haven’t found a way to deal with this yet I’... -
- Tracey Thomas replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
New and Frustrated
I take 2000 that’s what my doctor told me to take. Of the B-12 thanks for information though. I’m new to this celeiac so I appreciate any help -
- RMJ replied to Raquel2021's topic in Coping with Celiac Disease3
Blunted villi almost 4 year after diagnosis
I only had the one endoscopy. My GI wasn’t worried that I still had blunted villi. My antibody levels are now normal. I never had specific symptoms, although I generally feel better now, less fatigue. I think not having excess lymphocytes any more would be an improvement. Since you still have symptoms I hope your doctors will still look for a... -
- Raquel2021 replied to Raquel2021's topic in Coping with Celiac Disease3
Blunted villi almost 4 year after diagnosis
Thanks so much for replying. I truly appreciate it. I was diagnosed in December of 2020 after having an endoscopy with biopcies. The biopcies showed the same thing. Mild blunting of the villi and it was also showing lymphocytes. This time is still showing mild blunting and no lymphocytes. No sure If that would be an improvement. The thing I improved on... -
- glucel replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
New and Frustrated
Just checking that you are taking 1000 mcg b 12. The reason I ask is because I take 100 which I thought was a lot at over 4000% of rda even though the body allegedly throws off what is not needed.
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