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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- More2Learn replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Celiac Maybe a Possibility?
Thanks, yes, I've gone back and forth. There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews. I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating... -
- kopiq replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.
I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat. -
- kopiq posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.
Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything... -
- trents replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Celiac Maybe a Possibility?
Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result... -
- More2Learn replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Celiac Maybe a Possibility?
These responses are all extremely helpful, ty. Really good reminder about omega 6. I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it. To that end, I try to eat a lot of oysters. I do think it would be a good idea to get the blood test. Two questions: 1- Is there any reason you wouldn't recommend...
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