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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Conflicting results
Would you also agree that being so close to the IgA deficient cut off is significant? We just have been told he’s not as just over into the not deficient category… thank you so much for all the help so far, it’s been so helpful! -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Conflicting results
One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies. -
- trents replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Conflicting results
Statistically, the incidence of IBS and other bowel disorders is higher in the celiac population than it is in the general population. Still, I would take one thing at a time. There is significant reason to believe your son does have celiac disease and there is no nasty prep needed for that endoscopic procedure. Assuming that he does have either celiac disease... -
- Jy11 replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Conflicting results
Thank you, I do feel the likelihood is high which is why I am reluctant to do a colonoscopy as I feel we will find the answer. Whatever the endoscopy says though and even if it were to be negative he will be going gluten free as the positive EMA has to mean something with symptoms and one parent coeliac. But there is a niggling doubt as I try and... -
- Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Conflicting results
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet.
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