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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Scott Adams replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Daughter waiting for appointment
It is fine to keep her gluten-free at this point, and she can do a gluten challenge if you decide to get a formal diagnosis and do the endoscopy. You did not mention the reference range for her test result, as they differ depending on the lab, but the fact that she had a positive test AND feel better when avoiding gluten, make it very likely that she has... -
- Scott Adams replied to GeordieGeezer's topic in Food Intolerance & Leaky Gut19
Anybody else have a similar experience...theories welcome as its something which i dont really understand.....
I'm not sure which doctor you mean, but it's an interesting approach that might possibly help people with food sensitivities, and possibly even prevent some cases of celiac disease from developing. I still wonder what might have happened with me had I listened to my allergist many years back who wanted me to only eat wheat once per week. -
- Russ H replied to Captain173's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Can't figure this out
Apart from the symptoms of SIBO there may be other symptoms that you are unaware of because they come on so slowly. It takes a long time to fully recover, especially when diagnosed as an adult. Apart from the classic signs and symptoms, I had all sorts of strange ones that have gradually resolved including: heart arrhythmia, tendonitis, chilblains, body odour... -
- Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Daughter recently diagnosed with Celiac and I am questioning my results...
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- Scott Adams replied to Kristina12's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Considering having a blood test
To be tested for celiac disease using blood screening you need to be eating lots of gluten daily for 6-8 weeks beforehand. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency...
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