Preview of The Gluten Summit - Excerpts From Two Iconic Experts

Welcome to Celiac.com!

You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-M):
Get Celiac.com Updates:

Support Our Content

eNewsletter

Donate
Record is Archived
This article is now archived and is closed to further replies.
By Dr. Tom O'Bryan

November 7, 2013
By Dr. Tom O'Bryan • November 7, 2013

Preview of The Gluten Summit - Excerpts From Two Iconic Experts

Followers 0
Reviewed and edited by a celiac disease expert.
Caption: Dr. Thomas O'Bryan

Celiac.com 11/07/2013 - Several of the world's most prominent scientists, researchers, healthcare practitioners, nutritionists, patients, caregivers and others interested in improving the lives of those living with gluten-related disorders will gather online, November 11-17, 2013, for the first-ever Gluten Summit: A Grain of Truth. An excerpt from two of the iconic speakers is below.

Have you ever wondered what "the Godfather of celiac disease diagnosis" thinks about the fact that celiac disease is generally only recognized and treated if a patient has total villous atrophy (all the shags are worn away)? I went to the source!

Celiac.com Sponsor (A12):
I had the tremendous honor of traveling to Wolfson College, Oxford University in the United Kingdom to interview Dr. Michael Marsh, "the Godfather of celiac disease diagnosis", after whom the Marsh classification of intestinal damage in celiac disease was named.

Dr. Marsh has a powerful message for the world about the critical importance of identifying and treating the early stages of celiac disease in patients before it reaches the end-stage of total villous atrophy (Marsh III). In 2006 Dr. Marsh stood up at the International Celiac Disease Symposium in New York and asked the panel the hard question "If a patient has positive blood tests and a negative biopsy, and you do not recommend a gluten-free diet, and the patient dies of lymphoma in two years, which one of you will be able to say that you practiced a good standard of care medicine?" This was a wake-up call to the world, and five years later non-celiac gluten sensitivity was recognized as a separate condition in a consensus by 16 global experts.

In the first interview he has ever given, in the 21st birthday year of the Marsh classification system, Dr. Marsh speaks out on:

    Why normal villi can also be associated with a state of gluten sensitivity

    Why physicians must not wait for total villous atrophy to occur before treating gluten sensitive patients with a gluten-free diet

    Why a variety of disciplines beyond immunologists must now join together to study the early stages of celiac disease

    Dr. Marsh calls them out!

Dr. Hadjivassiliou - How GLUTEN can affect your NERVOUS SYSTEM!

Dr. O'Bryan: A suggestion that you have made in a number of your papers over the years is that "It is time to move on from gut to brain." Can you tell our listeners what you mean by this?

Prof. Hadjivassiliou: Sure. I think it was a comment in relation to try and escape from the existing belief that sensitivity to gluten is primarily or even exclusively a disease of the gut. You can see why it's always been thought of as a gastrointestinal disease, simply because that's where gluten gets ingested and absorbed. However, we are talking about an autoimmune disease, and therefore the manifestations of an autoimmune disease can be very diverse...It's about time we thought of this as a systemic disease that can affect different parts of the body rather than concentrating solely on the bowel. My main interest was whether patients can manifest exclusively with neurological (nervous system) problems.

Prof. Hadjivassiliou goes on to explain:

    The ratio of patients with nervous system issues vs. intestinal issues

    Why an early diagnosis is CRITICALLY IMPORTANT

    Why neurological patients may take longer to see results when they start a gluten-free diet

    The true impact of an accidental gluten exposure on a person whose nervous system is affected by gluten

Visit Open Original Shared Link for a link to the world's first ever online Gluten Summit, which will take place from Nov.11-17, 2013, to listen to the entire interview with Prof.Hadjivassiliou and many, many more interviews with the experts on gluten-related disorders and diet, and their impact you and your children's health. The Gluten Summit is a unique and FREE event which aims to move the question, "Is gluten the cause?" into today's conversation between patients and healthcare professionals potentially improving the lives of millions now.
excerpts

experts

gluten

iconic

preview

summit
Share
https://www.celiac.com/celiac-disease/preview-of-the-gluten-summit-excerpts-from-two-iconic-experts-r2885/
Followers 0
Go to articles
User Feedback
- 2 Comments
Recommended Comments

Guest Robin

Posted November 19, 2013

Share this comment

Hello ~

Just wanted to send you a HUGE thanks for helping Dr Tom O'Bryan stage this fantastic event. He is an awesome man and a wonderful human being. The speakers he organized were tops in their fields and gave us so much important information, some of it cutting edge, some that has been 'out there' for years but widely unacknowledged. It has been a rare and extremely important summit which will help - and has already - many, many people to at last enjoy good, if not transformed, health.

I now recognise that gluten is a major problem for all humans, in one way or another (systemic). In some of us it just doesn't become obvious until years down the track. Thankfully, we read Dr Davis' book "Wheat Belly" nearly two years ago and have been grain & sugar-free (teeny bits of sugar very occasionally) since then. Have also read Dr Perlmutter's "Grain Brain". We weren't overweight, didn't seem to have any problems but I bet it was affecting our bodies (insulin, brain) so we're extremely grateful to have this knowledge.

Thanks again for being part of this and for supporting Dr Tom.

Kind regards

~ Robin

Link to comment

Share on other sites

Guest Elizabeth

Posted January 22, 2014

Share this comment

All Information change my life and well-being.

Link to comment

Share on other sites

This is now closed for further comments
Get Celiac.com Updates:

Support Celiac.com:

Join eNewsletter

Donate
About Me

Dr. Tom O'Bryan, founder of theDr.com, is an internationally recognized speaker, best-selling author, and autoimmune expert. Bringing insight with compassion and common sense to the complexities of immune health, he is the modern day Sherlock Holmes for chronic diseases.

Having trained tens of thousands of practitioners around the world, his work around wheat-related conditions, identifying triggers for autoimmunity, and eliminating toxins for health have taken center stage.

His empowering message of healing echoes throughout his best selling book The Autoimmune Fix, his latest best seller How to Fix Your Brain, his 9-part Betrayal docuseries, and his podcast event The Gluten Summit - A Grain of Truth.

He demonstrates that changing the microbiome (regenerating a healthy environment in the body), and changing the microbiome within our soil (regenerative agriculture) creates incremental and powerful changes to our health. In fact, these changes are vital to the health of both the patient and the planet.
Celiac.com Sponsor (A17):

Celiac.com Sponsor (A17):

Celiac.com Sponsors (A17-M):
Related Articles
Celiac Presentations at the National Digestive Disease Conference: May 19-22, 2002 - Summary by Laura Yick
Dr. Kelly, who is a refractory sprue specialist, had interesting insights into Celiac Disease. He first described once having a patient say to him that eating at a restaurant or food take out is the gastronomic equivalent of promiscuous and unprotected sex because (you) dont know where food has been, who else its been with, and what you might get from it. Dr. Kelly explained that his job when seeing a patient with possible Refractory Sprue is to first confirm that the patient really has Celiac Disease and is adhering to a gluten-free (gluten-free) diet. He explained that some patients would rather prefer an iron shot than adhere to a gluten-free diet and that sensitivities vary which removes another drive to say gluten-free; however, if symptomatic, he has found that the patient...

Read Full Article...

0 comments

8,538 views
Gluten-free Diet Fueling Tennis Stars
Celiac.com 06/29/2011 - Serbian tennis star Novak Djokovic credits an unbeaten string of victories on the court to his special, gluten-free diet.
Meanwhile, Sabine Lisicki recently attributed her collapse on the threshold of a major upset over third seed Vera Zvonareva in the second round of the French Open to a need for her body to adjust to her new gluten-free diet; which Lisicki adopted after discovering she is intolerant to gluten, a protein in cereal grains.
After physically crumbling within sight of victory, a sobbing Lisicki was carried from the court on a stretcher. The 21-year-old later explained on her website (www.sabinelisicki.com) that her collapse occurred because her body simply let her down. She said that "[d]octors recently discovered that I am intolerant to gluten...

Read Full Article...

2 comments

7,488 views
Actress Fran Drescher Goes Gluten-free
Celiac.com 12/14/2012 - In the latest celebrity gluten-free news, actress and comedian Fran Drescher has joined stars like Lady Gaga and Miley Cyrus, and athletes like Novak Djokovic and Andy Murray, in adopting a gluten-free diet.
Moreover, Drescher is going one step further and making her gluten-free diet a vegan one. However, it's not a desire to shed pounds that led Drescher to join the nearly 3 million people with celiac disease, and numerous others, in making her diet gluten-free. Rather, she was looking for a way to deal with exhaustion. When a doctor suggested prescription medications, Drescher decided that overhauling her diet sounded like a better place to start. So, she resolved to cut gluten, alcohol and animal products from her life. She has since lost 15 pounds, and her...

Read Full Article...

4 comments

12,244 views
Do High Levels of Celiac Disease Antibodies Put Pregnant Women at Risk for Low Birth Weight Babies?
Celiac.com 06/12/2013 - Pregnant women with higher levels of issue transglutaminase (anti-tTG), an antibody common in people with celiac disease, at risk for low fetal and birth weight in their babies, according to a new study in Gastroenterology.
A number of studies before this one have confirmed an association between celiac disease and poor growth fetus growth, but very little study had been done as to how the level of celiac disease might affect fetal growth, birth weight or birth outcome.
In an effort to better understand how the level of celiac disease affects fetal growth, birth weight, and birth outcome, a team of researchers set out to assess the associations between levels of antibodies against tissue transglutaminase (anti-tTG, a celiac disease marker) and fetal growth ...

Read Full Article...

1 comment

8,660 views
Recent Activity
1. 16 minutes ago - trents replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  1
  
  Help with results please. As I have a appt after the New Year.
  
  The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease. The DGP-IgA test is considered...
2. 25 minutes ago - trents replied to John.B's topic in Gluten-Free Foods, Products, Shopping & Medications
  1
  
  Allergy Meds
  
  Check Costco's store brand.
3. 27 minutes ago - trents replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  3
  
  Celiac Maybe a Possibility?
  
  Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common...
4. 36 minutes ago - trents replied to MHavoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  3
  
  On the cusp of facing a new life of managing a life with Celiac Disease
  
  Biopsy results can be negative despite positive serum antibody results for these reasons: 1. Early onset of celiac disease. Inflammation has been happening for long enough to cause damage to the small bowel lining that is observable in the biopsy sample. 2. The damage is in the part of the small bowel lining below the duodenum. The duodenum is the...
5. 49 minutes ago - trents replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
  16
  
  Options - 7 year old boy - Helicobacter pylori and serology
  
  I am not a cigarette smoker and the only time I ever tried to smoke a cigarette was when I was 13 years old and it made me nauseous. I'm sure if I were to have kept at it, I would have developed a tolerance to nicotine such that it would no longer have made me nauseous. But I also imagine that if I quit for a good amount of time and went back to it I would...