Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Jefferson Adams
    Jefferson Adams

    Schär's Self-Diagnosing Online Test for Celiac Disease Stirs Controversy

    Reviewed and edited by a celiac disease expert.

    Schär company draws fire for offering a self-diagnosing celiac disease test on their company website.

    Schär's Self-Diagnosing Online Test for Celiac Disease Stirs Controversy - Schar web site on 07/25/2023. Image: Scott Adams
    Caption: Schar web site on 07/25/2023. Image: Scott Adams

    Celiac 08/01/2023 - The Schär company is known for making a wide range of popular gluten-free foods, including gluten-free pastas and breads.

    However, a test the company is offering, for self-diagnosing celiac disease, has come under scrutiny for potentially promoting misdiagnosis of people with the condition. The test, available online on the company’s website, has raised concerns over its accuracy, and the growing trend of promoting self-diagnosis of celiac and other diseases.

    Celiac.com Sponsor (A12):
    Celiac disease is a serious autoimmune condition triggered by gluten consumption. Many cases of celiac disease go undiagnosed, leading to individuals ignoring, or dismissing their symptoms. Early detection is now possible, but self-diagnosis has become a growing trend.

    Schär Questionnaire About Gluten Consumption & Symptoms

    To deliver results, the Schär test asks individuals questions about their gluten consumption and symptoms. While not intended to replace professional diagnosis, the test suggests potential gluten intolerance based on common symptoms like fatigue or headaches. Critics argue that the test may overstate celiac disease risk, even for minor symptoms.

    In a test trial, an individual without any gluten intolerance symptoms took the Schär test. Although it did not detect any potential celiac disease, the individual still sought medical advice due to the questionnaire's prompting.

    This raises concerns about the test's accuracy and reliability, as well as the growing self-diagnosis trend. Medical professionals emphasize the importance of consulting doctors for proper diagnosis, warning against relying solely on online tests.

    Celiac disease is complex and requires thorough evaluation by medical professionals to avoid unnecessary dietary restrictions and health risks. Seeking professional medical advice is crucial for an accurate diagnosis and proper management of the condition.

    Read more at breakinglatest.news



    User Feedback

    Recommended Comments

    Guest Mary E Ficzere

    Posted

     Its still a good idea to take the test, and if concerned, check with their doctor for further testing/ follow up. Could encourage more folks to get evaluated- to see if they have celiac.

    Link to comment
    Share on other sites
    Celiac comments

    I had 2 different celiac tests from the same blood draw. One negative and one positive. Test again is if it seems warranted. I was really sick for 2 years, and unwell before that. I keep thinking what if I had only had the one test that was negative. I felt much better in 3 days of being gluten free, but years for the dermatitis hepataphoris, I know I misspelled that, if moderator can correct, to clear up.  

    Link to comment
    Share on other sites
    anastunya

    Since so many American internists, including adult gastroenterologists, are still gaslighting patients with gluten intolerance, I would follow the advice of pediatric gastroenterologists to go on a gluten free diet for at least six weeks to see if certain symptoms improve. After a few months of feeling better, reintroduce the gluten to see if it makes you ill. I recently had a negative blood test after two weeks of suffering on gluten. I had been off of it seven years. I will not return to suffering because some corrupt system internist making $$$$ “managing” GI disease tells me it’s all in my head! I had to “find the cure” for my GERD and IBD myself. 
    And thanks Schar for the tasty breads! 

    Link to comment
    Share on other sites
    anastunya

    Oops! I spelt Schär wrong! Please correct.

    Link to comment
    Share on other sites
    trents
    3 hours ago, anastunya said:

    Since so many American internists, including adult gastroenterologists, are still gaslighting patients with gluten intolerance, I would follow the advice of pediatric gastroenterologists to go on a gluten free diet for at least six weeks to see if certain symptoms improve. After a few months of feeling better, reintroduce the gluten to see if it makes you ill. I recently had a negative blood test after two weeks of suffering on gluten. I had been off of it seven years. I will not return to suffering because some corrupt system internist making $$$$ “managing” GI disease tells me it’s all in my head! I had to “find the cure” for my GERD and IBD myself. 
    And thanks Schlar for the tasty breads! 

    Two weeks back on gluten would not likely raise antibody levels to give positives. The Mayo Clinic recommends the daily consumption of two slices of wheat bread (or the gluten equivalent) for at least 6 weeks before blood testing for celiac disease.

    Link to comment
    Share on other sites
    Catastrophe

    I asked my husband's gastroenterologist about testing for gluten intolerance.  He said that if a gluten-free diet was working for a patient, he wouldn't ask them to go through weeks of misery just to be able to test them for gluten intolerance.  Sensible man.

    Link to comment
    Share on other sites
    trents
    36 minutes ago, Catastrophe said:

    I asked my husband's gastroenterologist about testing for gluten intolerance.  He said that if a gluten-free diet was working for a patient, he wouldn't ask them to go through weeks of misery just to be able to test them for gluten intolerance.  Sensible man.

    I tend to agree. At the end of the day both conditions require absinence from gluten anyway.

    Edited by trents
    Link to comment
    Share on other sites


    Create an account or sign in to comment

    You need to be a member in order to leave a comment

    Create an account

    Sign up for a new account in our community. It's easy!

    Register a new account

    Sign in

    Already have an account? Sign in here.

    Sign In Now

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Scott Adams
    Scott Adams' Story of His Diagnosis of Celiac Disease
    Celiac.com 07/25/1996 (Updated: 12/29/2020) - Like many people with celiac disease (it's an autoimmune disease and not a wheat allergy or the same as gluten sensitivity, gluten intolerance, or sensitivity to gluten), I spent a lot of years and money and endured many tests and misdiagnoses before doctors finally discovered that I needed to avoid gluten (including all gluten containing ingredients). Gluten is a protein found in gluten containing grains that include wheat, rye, and barley, and is often hidden in processed foods. To treat my celiac disease I had to go on a gluten-free diet for life, which meant that I had to learn to read food labels, and I ate mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, gluten-free breads, and foods that were labeled gluten-free or...


    Scott Adams
    Biopsies Unnecessary for Celiac Diagnosis in Most Children
    Celiac.com 04/13/2020 - Current guidelines set by the European Society for Paediatric Gastroenterology, Hepatology, and Nutrition (ESPGHAN), permit doctors to diagnose celiac disease without upper endoscopy in children and adolescents who meet specific criteria. 
    A team of researchers recently set out to to assess exactly how many pediatric gastroenterologists in Central Europe used the “no-biopsy” approach to make a celiac diagnosis, and how many biopsies could have been avoided. 
    The research team included Petra Riznik, Márta Balogh, Piroska Bódi, Luigina De Leo, Jasmina Dolinsek, Ildikó Guthy, Judit Gyimesi, Ágnes Horváth, Ildikó Kis, Martina Klemenak, Berthold Koletzko,0, Sibylle Koletzko,, Ilma Rita Korponay-Szabó,, Tomaz Krencnik, Tarcisio Not, Goran Palcevski, Éva Pollák,...


    Kit Kellison
    The Most Dangerous Diagnosis
    Celiac.com 05/30/2020 - Recently, I posted a query to ICORS Listserv’s celiac email group listing the following symptoms of hypochondria as found on the Mayo Clinic website:
    Excessive fear or anxiety about having a particular disease or condition. Worry that minor symptoms mean you have a serious illness. Seeking repeated medical exams or consultations. “Doctor shopping,” or frequently switching doctors. Frustration with doctors or medical care. Strained social relationships. Obsessive medical research. Emotional distress. Frequent checking of your body for problems, such as lumps or sores. Frequent checking of vital signs, such as pulse or blood pressure. Inability to be reassured by medical exams. Thinking you h...


    Jeanne Donnelly
    Confessions of an Undiagnosed Celiac
    Celiac.com 03/30/2022 - I am the mother of two teenage children—both recently diagnosed with celiac disease. I manage an International Student Exchange program based in New Jersey. My hobbies include writing fiction and painting and I hold a black belt in Karate.
    Do I have celiac disease? I believe so. As a matter of fact I made myself very sick trying to prove it. What can I say? I was desperate! I spent the past twenty-five years doing everything the doctors told me and I was getting sicker instead of better. All I concentrated on was eating healthy and doing anything that promised to settle my stomach. Nothing worked. Whenever I complained to a doctor they would run a few tests and tell me that I probably had irritable bowel syndrome (IBS). Their advice was to lose weight and w...


  • Recent Activity

    1. - Kathleen JJ replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    2. - StaciField replied to StaciField's topic in Related Issues & Disorders
      6

      My bone structure is disintegrating and I’m having to have my teeth removed

    3. - Kathleen JJ replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    4. - cristiana replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    5. - Kathleen JJ posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,055
    • Most Online (within 30 mins)
      7,748

    malcolmg
    Newest Member
    malcolmg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • Captain173
      10
    • jjiillee
      5
    • Kristina12
      7
    • StaciField
    • ShRa
      9
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...