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    Jefferson Adams
    Jefferson Adams

    Six Ways Celiac Disease Can Kill You

    Reviewed and edited by a celiac disease expert.

    Celiac.com 08/13/2014 - Even though some folks suffering from symptoms of celiac disease will claim they would welcome death, most people will not actually die from the immediate symptoms of celiac disease; no matter how bad those symptoms get.

    Photo: Wikimedia Commons--NabokovHowever, left untreated, celiac disease can lead to numerous other conditions, several of which are potentially fatal. Remember, many people experience few, or no classic symptoms of celiac disease. These folks may find it easy to keep eating gluten with relatively few noticeable consequences; at least for a time.

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    So, for people with celiac disease who ignore either their doctors, or their bodies, the risks can be huge. They can even lead to death by one of the following:

    1) Cancer—Nobody wants cancer, and especially nobody wants the type of cancer that can strike people with gut damage that comes with long-untreated celiac disease.

    People with untreated celiac disease are at risk of developing any number of associated conditions, including gastrointestinal cancer at rates of 40 to 100 times those of the general population. Chief among these types of cancer are a type known as Enteropathy-Associated T-cell Lymphoma (EATL). EATL is a gut cancer that often ends in death. People with celiac disease also need to watch out for non-Hodgkins lymphoma.

    2) Thyroid Disease - There is a Open Original Shared Link.

    The good news is that papillary cancer of the thyroid has a high cure rate, with 10-year survival rates estimated at 80% to 90% for any given patient. Still, the dark side is that 10-20% of patients with papillary cancer of the thyroid don’t survive.

    3) Epilepsy - Rare form of celiac disease.

    Patients with an autoimmune disease faced a nearly four-fold higher risk for epilepsy. In some cases, people with epilepsy can suffer from sudden unexpected death (SUDEP).

    SUDEP are still poorly understood, it is possibly the most common cause of death as a result of complications from epilepsy, accounting for between 7.5 to 17% of all epilepsy related deaths and 50% of all deaths in refractory epilepsy.

    4) Heart Failure - Celiac disease doubles the risk of coronary artery disease, which can, in many cases prove fatal.

    5) Diabetes - Diabetes can cause numerous complications, some of which can be fatal. People with celiac disease have higher rates of diabetes than people without celiac disease. Moreover, long-term celiac disease increases death rates in people with diabetes.

    There is also some evidence that a gluten-free diet can lower rates of Type 1 diabetes.

    In the end, for people with T1D, having a celiac disease diagnosis for at least 15 years was associated with a 2.80 times greater risk of death

    6) Obesity - Recent studies suggest that people with celiac disease are likely to be overweight or obese at the time of presentation.

    Studies show that nearly 40% of people diagnosed with celiac disease are actually overweight, not underweight. Also, a full 30% of celiac disease patients are obese at the time of their diagnosis.

    Of course, long term obesity can increase the likelihood of fatality in numerous categories. People treating celiac disease with a gluten-free diet are more likely to have a healthier weight. 

    So, while celiac disease won't kill anyone in the short term, it can have devastating consequences if it remains untreated for a long period of time. Share your thoughts on these ways to die from untreated celiac disease, or add additional insights in the comments section.



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    Guest Momof2in1year

    Posted

    My daughter was diagnosed by blood test at 13 and intestinal biopsy at 15 after episodes of severe anemia.

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    Guest DebbieW

    Posted

    I would like references sited for this information. I find too much fear mongering going on without scientific evidence to back up claims. People are making themselves neurotic trying to avoid minor cross contamination because it might "kill" them. My research indicates that diabetes, obesity, and hypertension alone are much more likely to cause death than consequences of celiac disease. Use your platform responsibly, please, and help people deal realistically with their disease rather than scaring them.

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    Guest Toni2019

    Posted

    I just had my DNA testing and it states I am at high risk for celiac disease. I never knew what it was but upon reading your article, it was scary. Yes, it has a lot of good information. But the fact that I was just diagnosed for endometrial cancer stage 1 and cancer was mentioned as #1, that through me off. Maybe you could tell us what are the ways we can do to prevent it to help us with that disease. Articles I’ve read only mentioned about being Gluten free but ...I guess, this will be something i have to worry about in addition to what I already have? 

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    cyclinglady
    4 hours ago, Guest Toni2019 said:

    I just had my DNA testing and it states I am at high risk for celiac disease. I never knew what it was but upon reading your article, it was scary. Yes, it has a lot of good information. But the fact that I was just diagnosed for endometrial cancer stage 1 and cancer was mentioned as #1, that through me off. Maybe you could tell us what are the ways we can do to prevent it to help us with that disease. Articles I’ve read only mentioned about being Gluten free but ...I guess, this will be something i have to worry about in addition to what I already have? 

    About 30% or more of the total population carries those same high risk genes that could develop into celiac disease, except only a very few do.  That is a tone of people!   If you think you have celiac disease, continue to consume gluten daily and get tested.  All celiac disease testing requires you to be on gluten daily months before a blood draw.  

    Usually, the cancer most common in celiacs is lymphoma in the gut.  I am sorry that you had endometrial cancer.  My girlfriend just went though treatment this year.  She did everything right.  Active, eats well, but sometimes environmental or genetic issues can not be avoided.  

    I hope you are doing well!  

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    Guest Dani

    Posted

    On 8/16/2014 at 6:41 AM, Guest Jefferson said:

    The first paragraph makes clear that "most people will not actually die from the immediate symptoms of celiac disease; no matter how bad those symptoms get." The rest is simply fact based reality. Untreated celiac disease can lead to potentially fatal complications down the road. Sorry if that was a bit much for your sensitivity setting.

    Honestly, this is crazy insensitive, and I’m appalled that you can’t be even a little understanding to someone who likely has celiac disease and naturally gets scared when an article makes it seem like they’re going to die. That’s a completely natural reaction, and it’s completely reasonable that they’ve have some complaints. It’s a website about celiac disease. If an article comes out titled “Six Ways Celiac Can Kill You,” and I have celiac disease and want to know what to look out for, I’m going to read it. Don’t admonish someone with celiac disease for getting frustrated at your bad job.
     

    If you can’t handle as modest a criticism as this, get a different job. Jesus Christ.

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    Guest Dani

    Posted

    On 1/1/2019 at 2:53 AM, Guest DebbieW said:

    I would like references sited for this information. I find too much fear mongering going on without scientific evidence to back up claims. People are making themselves neurotic trying to avoid minor cross contamination because it might "kill" them. My research indicates that diabetes, obesity, and hypertension alone are much more likely to cause death than consequences of celiac disease. Use your platform responsibly, please, and help people deal realistically with their disease rather than scaring them.

    I completely agree. 

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    Guest Jon

    I was diagnosed with celiac at 56 I’m now 60 I know I’m not getting the nutrients because of my lower intestine does absorb nutrients .I am on a gluten free diet Since I was diagnosed are there any ways that I can get the nutrients, thank you 

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    trents

    Gluten free vitamin and mineral supplements should help with that. Have you been tested for vitamin and mineral deficiencies?

    Have you had a followup endoscopy sense being diagnosed to check for healing in the small bowel villi?

    Most people who think they are eating gluten free really aren't according to several recent studies. Particularly those who are still eating out. Frequent cross contamination is probably the #1 factor in preventing healing of the gut.

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    Guest Jenna Marie

    Posted

    Thought I would look up is celiac dangerous to have,,? ,I did not like the coffins either, but the message is to wake some folks up like me,,,, I am not feeling to well this evening,, I took ONE bite of a Christmas cookie made by the Amish,,was not a good idea,, ,, 

    it has been a ruff 2 years,, I started out with an infected tooth,, it got bumped wrestling with my grandkids,, but it probably saved my life,,,tooth got extracted, ,,,did ,er several times, always sent me home,,,, no doctor would take my Medicare,,  I called an old dr. Who helped me back in 2006,,found me to have late stage Lyme,, he saved my life along with some herbalist...soooo all these years later , I called again to see if he was still in practice,,he was,, he did a massive amount of blood work,, again I had a tick born illness,, erlichilosis ...verge of diabetes,,, sleep apnea,,, and celiac disease,..I really didn’t know how dangerous this could be,, I am learning a new way of cooking,,, eating,, this article is sobering,,,I learned a few more things to be concern for,,,,,thank you...

    to all of you I send my well wishes to stay the course,,life is so precious,, I want all of it I can get,,,

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    Guest Grinning Granny

    Posted

    I have just been diagnosed as being diabetic and waiting on blood results for celiac disease. I have been trying to find info on how I can manage both these conditions, as a lot of gluten free foods are still quite high in sugar in comparison to what I can eat as diabetic 

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    trents
    2 hours ago, Guest Grinning Granny said:

    I have just been diagnosed as being diabetic and waiting on blood results for celiac disease. I have been trying to find info on how I can manage both these conditions, as a lot of gluten free foods are still quite high in sugar in comparison to what I can eat as diabetic 

    It is true that most gluten free prepared foods are high in carbs and lower in nutritional value compared to their gluten counterparts. The wheat-based products used enriched an fortified flour as mandated by the FDA but no such requirement exists for gluten-free flours at this point in time in the US.

    Having said that, this may be a good time for you to switch to a low carb diet anyway that focuses on proteins, fats and complex carbs - things with a low "glycemic index". Really, we should all do that as we would be better off and healthier.

    I'm not sure if your were aware of this but you may also find that going on a gluten free diet (if it turns out you do have celiac disease) will probably make an improvement in your blood sugars as well. Some celiacs have found that when they adopt a gluten free diet they no longer needs meds to control their diabetes or they can switch from insulin injections back to oral meds.

    Celiac disease damages the villi that line the small bowel, where all the nutrition from what we eat is absorbed. This results in less efficient nutrient absorption. Sometimes this causes people to eat more trying to make up for the poor absorption.

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    Guest Right

    Posted

    If celiac disease goes undetected/undiagnosed/untreated and destroys the lining of the small intensities the immune system is severely impacted. So much so that a common cold could potentially kill. So technically, no celiac wouldn’t be the final cause of death the common cold would be, but the immune system’s impaired is a direct result of celiac disease. 

    gluten free diet is paramount. I went through a similar situation as mentioned above. At the age of 12 I was on my death bed. Doctors thought I had cancer or aids. It took a months of tests before celiac diseases was diagnosed. This was 17 years ago. 

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  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


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