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    Jefferson Adams
    Jefferson Adams

    The Daily Show's Jon Stewart Nails Celiac Disease!

    Reviewed and edited by a celiac disease expert.
    The Daily Show's Jon Stewart Nails Celiac Disease! - Photo: Wikimedia Commons
    Caption: Photo: Wikimedia Commons

    Celiac.com 06/26/2014 - In a segment that was noteworthy for its accuracy, focus and generous time allotment, The Daily Show host, Jon Stewart, opened up about his son’s experiences with celiac disease.

    Photo: Wikimedia CommonsFor the segment, Stewart interviewed actress and gluten-free baker Jennifer Esposito about celiac disease, and about Esposito’s new book, and gluten-free bakery, both named Jennifer’s Way.

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    Esposito talked about her own years-long struggles with chronic symptoms of celiac disease, and with her difficulties in getting a proper diagnosis.

    In what might be one of the most widely watched, in depth talks about celiac disease on major television, the show devoted nearly six minutes to the subject.

    In classic Stewart style, the segment was both accurate and informative, while still remaining true to its comic roots.

    For example, Stewart was quick to point out that “…celiac disease is quite different from, what it’s called, like gluten sensitivity or the more faddish of those types of diets,” he said.

    On the comic side, Stewart noted that, for Jews, celiac disease has been described as “like Passover, but year-round” just without the matzo.
    On the more personal side, Stewart shared what celiac disease meant to him personally through the story of his son’s struggle with the condition.

    “For the boy, he was having these terrible episodes of vomiting. And then he got anemic, and we were absolutely devastated and frightened that he was dying. We couldn’t figure out what was going on.”

    Kudos to Stewart for using his show and his interview with Esposito to promote clear, accurate information about celiac disease.

    Catch the segment below, and be sure to check out the comments section to tell us what you think about such high profile, accurate, and, dare I say, entertaining coverage of celiac disease.



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    Guest Linda

    Posted

    I am 100% grateful that these discussions are being had regarding the seriousness of gluten-related disorders. Jennifer Esposito's work and commitment to improving the lives of people who suffer horrible life-long symptoms is commendable and I applaud her every step of the way.

     

    It is great that Jon has the opportunity to share about his own personal experience and the fear of watching his child suffer with this. There are many of us that are going through the same thing. Jon misstated one thing in the interview and that is below (and in your article)

     

    “…celiac disease is quite different from, what it's called, like gluten sensitivity or the more faddish of those types of diets,†he said.

     

    This statement made it sound like gluten-sensitivity is a"fad diet," which is a slap in the face for those who ALSO feel like they are dying when they ingest gluten. How we wish we had the luxury of being on a fad diet and not something as horrible as gluten sensitivity. The symptoms of gluten-sensitivity are every bit as real as symptoms from celiac disease. While the conditions may be genetically different, both are severe, debilitating, REAL and those with NCGS or celiac are still fighting the same fight. Let's band together on the whole subject of gluten-related disorders.

    Jill, thanks for saying what I was screaming at my computer! Gluten sensitivity is very real.

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    Guest Jill

    Posted

    Jill, thanks for saying what I was screaming at my computer! Gluten sensitivity is very real.

    You're welcome! Yes, gluten-sensitivity is as real as it gets. Nobody would choose to have this. People need to be careful about what they say and how they say it in the media or it will only add to the confusion. These are golden opportunities to support one another and not create a "what I have is worse than what you have..." type of situation.

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    Guest Geri

    Posted

    I am 100% grateful that these discussions are being had regarding the seriousness of gluten-related disorders. Jennifer Esposito's work and commitment to improving the lives of people who suffer horrible life-long symptoms is commendable and I applaud her every step of the way.

     

    It is great that Jon has the opportunity to share about his own personal experience and the fear of watching his child suffer with this. There are many of us that are going through the same thing. Jon misstated one thing in the interview and that is below (and in your article)

     

    “…celiac disease is quite different from, what it's called, like gluten sensitivity or the more faddish of those types of diets,†he said.

     

    This statement made it sound like gluten-sensitivity is a"fad diet," which is a slap in the face for those who ALSO feel like they are dying when they ingest gluten. How we wish we had the luxury of being on a fad diet and not something as horrible as gluten sensitivity. The symptoms of gluten-sensitivity are every bit as real as symptoms from celiac disease. While the conditions may be genetically different, both are severe, debilitating, REAL and those with NCGS or celiac are still fighting the same fight. Let's band together on the whole subject of gluten-related disorders.

    NCGS or gluten intolerance is every bit as real as symptoms from celiac disease. Mine are severe and debilitating too. Thank you for pointing out what is right and let's get more affordable gluten free foods. Gluten has harmed me beyond words.

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    Guest Amber

    Posted

    I do not have celiac disease, but I care about my health and the health of my family. So, eating gluten free is not a fad diet for me, it is an educated way to stay healthy. Although I can understand and sympathize with people who live with the pain of celiac disease, I cannot understand why it would be so upsetting that non celiac disease sufferers would aspire to healthy eating in the same fashion. I am very interested to hear thoughts.

     

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    Guest celiacMom

    Posted

    Jefferson: something else for you to write about: More than one quarter of children with two copies of a high-risk variant in a specific group of genes develop an early sign of celiac disease called celiac disease autoimmunity (CDA) by age 5. The findings are from The Environmental Determinants of Diabetes in Youth consortium, or TEDDY teddy.epi.usf.edu/. The National Institutes of Health-funded study, published July 2 in the New England Journal of Medicine www.nejm.org/doi/full/10.1056/NEJMoa1313977, also found that participants in Sweden had higher rates of celiac disease than participants in the United States, Finland and Germany, even with the same genetic risks.

    TEDDY is studying celiac disease and type 1 diabetes diabetes.niddk.nih.gov/dm/pubs/type1and2/index.aspx because both are autoimmune diseases with some of the same genetic risk factors.

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    Guest Tracy H.

    Posted

    Yes, I love Jon Stewart, but I think he misspoke including gluten sensitivity as part of the fad dieting (that I think we all hate).

    Understanding of non-celiac gluten sensitivity is where understanding of celiac disease was 20 years ago. Dissing gluten sensitivity does not help people with celiac. We have more power as one united community.

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    Guest Liane

    Posted

    I do not have celiac disease, but I care about my health and the health of my family. So, eating gluten free is not a fad diet for me, it is an educated way to stay healthy. Although I can understand and sympathize with people who live with the pain of celiac disease, I cannot understand why it would be so upsetting that non celiac disease sufferers would aspire to healthy eating in the same fashion. I am very interested to hear thoughts.

    The problem comes down to those who really don't understand much about gluten and just jump on the bandwagon of any "diet" they hear about just because it is popular. Unfortunately, there are those that will go gluten-free just because it is on the news or someone famous is on it, not because they are genuinely concerned about their health or even react to gluten in any way. For them, it is like wearing the latest fashion.

     

    When individuals like this walk into restaurants or other establishments, they sometimes make a big fuss about things being gluten-free. A waiter or server may, for whatever reason, not make any changes to spite them and then watch for a reaction. When no reaction comes, some then start believing that anyone who claims they can't have gluten is faking it. I have met people who got this impression.

     

    In other cases, a person may claim they MUST eat gluten-free but when faced with a yummy treat will give in claiming it isn't a big deal if they eat it once in a while. Again, this makes others believe that those with celiac disease don't really have to be gluten-free all the time. Therefore, they aren't as concerned about our food being gluten-free or avoiding cross-contamination. Again, I have encountered people who do this.

     

    The end results of all this is that those who do truly suffer from celiac disease or gluten-sensitivity are not taken seriously and our health is put at risk. While I don't have celiac disease, my 8 year old does. When people don't trust adults who claim to not be able to eat gluten, how are they going to trust a little girl. But for her, it is debilitating. This is the concern for the celiac disease community. We appreciate that there are more and more option for us, but sometimes too much bad publicity can physically hurt us.

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    Guest Sarah

    Posted

    I have been anemic for numerous years. I had diarrhea and it was suggested I was stressed. I was terribly stressed at work and felt that was the reason. A few years later after numerous surgeries for other reasons my diarrhea stopped. I always felt sluggish and super depressed. I began breaking out in small water blisters on knees and elbows and later my face. My primary had zero idea. When they moved to my scalp my daughter, a hairdresser, had me try many types of shampoos. I was finally sent to a dermatologist. He took a punch biopsy on my forearm and I was diagnosed with celiac. He said I had celiac and it was manifesting itself as an auto immune skin disorder. I removed all gluten and feel better than I have in years. My niece also has been diagnosed as well, but hers is the typical in the gut form. Since being off gluten I have been exposed through contamination at a restaurant who did not take me seriously and laud bread on my meat. I sent it back and was assured it was not the same meat and I ate it. Within twenty minutes my forehead was breaking out. I too am tired of people thinking this is a diet of choice and the foods that are gluten free can be very expensive!!! It's not a choice! Thanks you for bringing this topic up!

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    Guest Jefferson

    Posted

    Jefferson: something else for you to write about: More than one quarter of children with two copies of a high-risk variant in a specific group of genes develop an early sign of celiac disease called celiac disease autoimmunity (CDA) by age 5. The findings are from The Environmental Determinants of Diabetes in Youth consortium, or TEDDY teddy.epi.usf.edu/. The National Institutes of Health-funded study, published July 2 in the New England Journal of Medicine www.nejm.org/doi/full/10.1056/NEJMoa1313977, also found that participants in Sweden had higher rates of celiac disease than participants in the United States, Finland and Germany, even with the same genetic risks.

    TEDDY is studying celiac disease and type 1 diabetes diabetes.niddk.nih.gov/dm/pubs/type1and2/index.aspx because both are autoimmune diseases with some of the same genetic risk factors.

    Thanks! I'll look into that.

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    Guest cmh
    The problem comes down to those who really don't understand much about gluten and just jump on the bandwagon of any "diet" they hear about just because it is popular. Unfortunately, there are those that will go gluten-free just because it is on the news or someone famous is on it, not because they are genuinely concerned about their health or even react to gluten in any way. For them, it is like wearing the latest fashion.

     

    When individuals like this walk into restaurants or other establishments, they sometimes make a big fuss about things being gluten-free. A waiter or server may, for whatever reason, not make any changes to spite them and then watch for a reaction. When no reaction comes, some then start believing that anyone who claims they can't have gluten is faking it. I have met people who got this impression.

     

    In other cases, a person may claim they MUST eat gluten-free but when faced with a yummy treat will give in claiming it isn't a big deal if they eat it once in a while. Again, this makes others believe that those with celiac disease don't really have to be gluten-free all the time. Therefore, they aren't as concerned about our food being gluten-free or avoiding cross-contamination. Again, I have encountered people who do this.

     

    The end results of all this is that those who do truly suffer from celiac disease or gluten-sensitivity are not taken seriously and our health is put at risk. While I don't have celiac disease, my 8 year old does. When people don't trust adults who claim to not be able to eat gluten, how are they going to trust a little girl. But for her, it is debilitating. This is the concern for the celiac disease community. We appreciate that there are more and more option for us, but sometimes too much bad publicity can physically hurt us.

    Liane - I agree with you 100%. My son is 10 and 9 mos diagnosed celiac. Everything has changed for him, his teachers say it is like he is on medication. He can focus in class, frustration levels are almost gone, and many more improvements. However, we have run into many many people, even kids who go gluten free for the benefits, say they are gluten free but "today" they are just going to have that burger on the bun. Here is my 10 year old, who finds so much relief in others who are gluten free because they have a "reaction", sitting next to his gluten allergy friend eating a burger or cupcake or whatever it is that my son can't risk having. This is devastating to him, why can they have it just once and he cannot? This is WHY people with celiac disease struggle with the gluten allergy diagnosis. I am happy that everyone, even the fad dieters are bringing gluten-free diet into the limelight but that is a significant lack of understanding or regard to the serious nature of the autoimmune disease itself. This is our biggest challenge right now.

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    Guest carol

    Posted

    Wish the video could still be viewed!!

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    Guest Melissa

    Posted

    I am 100% grateful that these discussions are being had regarding the seriousness of gluten-related disorders. Jennifer Esposito's work and commitment to improving the lives of people who suffer horrible life-long symptoms is commendable and I applaud her every step of the way.

     

    It is great that Jon has the opportunity to share about his own personal experience and the fear of watching his child suffer with this. There are many of us that are going through the same thing. Jon misstated one thing in the interview and that is below (and in your article)

     

    “…celiac disease is quite different from, what it's called, like gluten sensitivity or the more faddish of those types of diets,†he said.

     

    This statement made it sound like gluten-sensitivity is a"fad diet," which is a slap in the face for those who ALSO feel like they are dying when they ingest gluten. How we wish we had the luxury of being on a fad diet and not something as horrible as gluten sensitivity. The symptoms of gluten-sensitivity are every bit as real as symptoms from celiac disease. While the conditions may be genetically different, both are severe, debilitating, REAL and those with NCGS or celiac are still fighting the same fight. Let's band together on the whole subject of gluten-related disorders.

    Thank you for expressing my feelings so well. I was extremely dismayed by the comment (and other comments in the segment) and that is the only reason I rated the article with 3 stars. This segment may have highlighted celiac disease, but it set back the oftentimes extreme gluten sensitivity issue (and oftentimes misdiagnosed as not celiac disease).

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  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


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