Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  • Record is Archived

    This article is now archived and is closed to further replies.

    Jefferson Adams
    Jefferson Adams

    The Top Ten Physical Complaints from Celiac Patients

    Reviewed and edited by a celiac disease expert.

    Celiac.com 01/16/2015 - Most people with celiac disease suffer from classic symptoms like weight-loss and diarrhea before diagnosis, right? Wrong. In fact, the most common medical issues for people with celiac disease might really surprise you.

    Photo: CC--Kirian FosterA team of researchers who recently looked at data on 770 celiac patients admitted to S. Orsola-Malpighi Hospital from January 1998 to December 2012, found that even though 80% of people with celiac disease have symptoms other than diarrhea, only 1 in 3 people with celiac disease shows classical malabsorption symptoms.

    Celiac.com Sponsor (A12):
    Notably, two out of three people with celiac disease show non-classical symptoms. The majority of people have non-gastrointestinal symptoms. In fact, the top ten medical complaints of people with celiac disease are:

    1. Osteopenia/Osteoporosis—a full 52% of patients with celiac disease suffer from osteopenia/osteoporosis.
    2. Anemia—about one in three celiacs (34%) suffer from anemia.
    3. Cryptogenic hypertransaminasemia—nearly one-third (29%) of people with celiac disease, have what is called cryptogenic hypertransaminasemia.
    4. Diarrhea is, in fact, a common gastrointestinal symptom of celiac disease, but believe it or not, only 27% of people with symptomatic celiac disease experienced diarrhea.
    5. Bloating—20% of celiacs complained of bloating prior to diagnosis.
    6. Aphthous stomatitis—18% of people with symptomatic celiac disease had canker sores as one of their symptoms.
    7. Alternating bowel habit—15% of celiacs with symptoms have alternating bowel habit
    8. Constipation—13% of celiacs have constipation as a symptom.
    9. Gastroesophageal reflux disease—About 12% of people with celiac disease suffer from gastroesophageal reflux disease.
    10. Recurrent miscarriages—just over one in ten (12%) people with celiac disease experience recurrent miscarriages


    User Feedback

    Recommended Comments



    Guest jill

    What is "Cryptogenic hypertransaminasemia"? I don't understand what I find on the web. Some kind of liver dysfunction?

    Link to comment
    Share on other sites
    Guest Luann

    WOW! I had major problems with canker sores for 10 years prior to being diagnosed with celiac. As I look back, now for the last 20 years of being gluten free, I have RARELY had a canker sore! I have never heard there was a connection.

    Link to comment
    Share on other sites
    Guest Wayne

    I, my daughter and granddaughter have some form of celiac.

    Link to comment
    Share on other sites
    Guest Jane B.Haugen

    Posted

    Any gluten by accident or choice goes to my joints, especially hips and knees. Add sugar (gmo) and it is early rigor mortis!

    Link to comment
    Share on other sites
    Guest Susan Copeland

    Posted

    This is the best article I have ever read on non-classical celiac disease. Now if only all of the doctors would read it and take heed. I inherited the gene for celiac disease HLA DQ8. I had been eating gluten free for several years when the GI doctor wanted to biopsy. When he did, it came back negative so he concluded I did not have it even though all of my symptoms said I did. He finally did list celiac disease on my diagnosis based on what I told him. The symptoms described in this article are definitely what I have experienced including the anemia beginning at age 4 that did not respond to oral supplementation of iron or diet high in iron and the osteopenia first and then osteoporosis in my later years. Thank you for this fantastic article.

    Link to comment
    Share on other sites
    Guest dale

    Just adding this to see if anyone else has found this helpful. My daughter was sick passing out for almost two years with stomach pain from celiac. For some reason we don't know why, neither do the doctors but Zophen taken at the beginning of an attack makes the pain

    tolerable and shorter duration. Anyone try this?

    Link to comment
    Share on other sites
    Guest amy

    What exactly is cryptogenic hypertransaminasemia?

    I have googled it, and only get medical garbldey gook back, with no idea what it actually is. Mayo Clinic's web site does not recognize this phrase nor the word hypertransaminasemia.

    Link to comment
    Share on other sites
    Guest Charlene

    Posted

    I didn't see joint pain mentioned? I suffered with several of the classic symptoms and had DH. But I also had terrible pain in my hands and feet.... after a year of total gluten free living, the pain was gone. But according to my rheumatologist, pain is common.

    Link to comment
    Share on other sites
    Guest Christina

    Posted

    It nice to have more info on celiac disease. Sometimes you only get bits and pieces on the disease.

    Link to comment
    Share on other sites
    Guest Ruth Grubbs

    Posted

    If 52% of people with celiac disease have osteopenia or osteoporosis, I wonder how that compares to the general population?

    Link to comment
    Share on other sites
    Guest Helen
    WOW! I had major problems with canker sores for 10 years prior to being diagnosed with celiac. As I look back, now for the last 20 years of being gluten free, I have RARELY had a canker sore! I have never heard there was a connection.

    I still get canker sores from oranges, grapefruit and tomatoes.

    Link to comment
    Share on other sites
    Guest sandy
    This is the best article I have ever read on non-classical celiac disease. Now if only all of the doctors would read it and take heed. I inherited the gene for celiac disease HLA DQ8. I had been eating gluten free for several years when the GI doctor wanted to biopsy. When he did, it came back negative so he concluded I did not have it even though all of my symptoms said I did. He finally did list celiac disease on my diagnosis based on what I told him. The symptoms described in this article are definitely what I have experienced including the anemia beginning at age 4 that did not respond to oral supplementation of iron or diet high in iron and the osteopenia first and then osteoporosis in my later years. Thank you for this fantastic article.

    Your biopsy was possibly negative because your were eating gluten free for years before the test resulting in a false negative.

    Link to comment
    Share on other sites



    Guest
    This is now closed for further comments

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • About Me

    Jefferson Adams

    Jefferson Adams is Celiac.com's senior writer and Digital Content Director. He earned his B.A. and M.F.A. at Arizona State University. His articles, essays, poems, stories and book reviews have appeared in numerous magazines, journals, and websites, including North American Project, Antioch Review, Caliban, Mississippi Review, Slate, and more. He is the author of more than 2,500 articles on celiac disease. His university coursework includes studies in science, scientific methodology, biology, anatomy, physiology, medicine, logic, and advanced research. He previously devised health and medical content for Colgate, Dove, Pfizer, Sharecare, Walgreens, and more. Jefferson has spoken about celiac disease to the media, including an appearance on the KQED radio show Forum, and is the editor of numerous books, including "Cereal Killers" by Scott Adams and Ron Hoggan, Ed.D.

    >VIEW ALL ARTICLES BY JEFFERSON ADAMS

     


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Related Articles

    Dr. Rodney Ford M.D.
    This question, “how early can you diagnose celiac disease?” is a major concern for both parents and paediatricians.  This is because, like many diseases, celiac disease comes on slowly.  This means that it can take a long time to make the diagnosis.
    Celiac disease can develop slowly?
    Yes, celiac disease can develop very slowly.  The symptoms can be subtle.  It is a progressive disease.  When you are first born, you cannot have celiac disease as you have never been exposed to gluten.  However, if you have the right genetic make up (that is you have the celiac gene) and the right environmental circumstances (eating gluten and getting gut inflammation), then celiac disease can develop.
    Finding tissue damage
    Celiac disease is a condition that is recognised when you ...


    Scott Adams
    I wrote this response below to address a recent New York Times article: Open Original Shared Link.
    Celiac.com 01/13/2010 - The problem with current diagnosis criteria for celiac disease is that it takes a certain degree of damage to intestinal villi in order to get a formal diagnosis. Since celiac disease with villi damage are just one manifestation of a much broader and more widespread problem--gluten sensitivity--many people who could still develop serious health problems if they continue to eat gluten, will go undiagnosed under the current definition of celiac disease.
    The reality of gluten sensitivity is that around 7 to 12% of the US population test positive for antibodies which are an indicator that their immune system is mounting a response to gliadin, the part of gluten that...


    Jefferson Adams
    Celiac.com 01/02/2012 - To properly diagnose celiac disease doctors must observe classic histological changes to small bowel mucosa. Success rates can vary among clinics and practitioners. A clinical team recently compared biopsy interpretation between different pathology practice types.
    A research team recently assessed variability in small bowel histopathology reporting between different pathology practice settings, and its impact celiac disease diagnosis.
    The researchers included Carolina Arguelles-Grande, Christina A. Tennyson, Suzanne K. Lewis, Peter H. R. Green, and Govind Bhagat.
    The team used a pathologist to blindly assessed biopsies from community hospitals (n=46), university hospitals (n=18) and commercial laboratories (n=38) for differences in histopathology reporting...


    Jefferson Adams
    Can Steroids Help Treat Celiac Disease?
    Celiac.com 05/19/2014 - A research team recently examined the effects of prednisolone and a gluten-free diet on mucosal epithelial cell regeneration and apoptosis in celiac disease.
    The team included Shalimar, P. Das, V. Sreenivas, S. Datta Gupta, S.K. Panda, and G.K. Makharia. They are with the Department of Gastroenterology and Human Nutrition at the All India Institute of Medical Sciences in Ansari Nagar in New Delhi, India.
    For their pilot randomized, controlled trial, the team looked at thirty-three untreated patients with celiac disease. They randomly assigned 17 of them to a gluten-free diet alone, and the other 16 to a gluten-free diet + prednisolone. Gluten intake was 1 mg/kg for 4 weeks.
    The team conducted duodenal biopsies at the start, and at 4 and 8 weeks following...


  • Recent Activity

    1. - Kathleen JJ replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    2. - StaciField replied to StaciField's topic in Related Issues & Disorders
      6

      My bone structure is disintegrating and I’m having to have my teeth removed

    3. - Kathleen JJ replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    4. - cristiana replied to Kathleen JJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology

    5. - Kathleen JJ posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Options - 7 year old boy - Helicobacter pylori and serology


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,058
    • Most Online (within 30 mins)
      7,748

    Jtestani
    Newest Member
    Jtestani
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Popular Now

    • Captain173
      10
    • jjiillee
      5
    • Kristina12
      7
    • StaciField
    • ShRa
      9
  • Popular Articles

    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
    • Scott Adams
  • Upcoming Events

×
×
  • Create New...