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  • Scott Adams
    Scott Adams

    Unveiling Celiac Disease Misconceptions Revealed in Celiac.com's Latest Poll Results

    Reviewed and edited by a celiac disease expert.

    Is eating in a restaurant that has a gluten-free menu always safe for someone with celiac disease?

    Unveiling Celiac Disease Misconceptions Revealed in Celiac.com's Latest Poll Results - Polling station 6, by gruntzooki is licensed under CC BY-SA 2.0.
    Caption:

    Celiac.com 11/18/2023 - Celiac disease is a complex autoimmune condition triggered by the consumption of gluten, a protein found in wheat, barley, and rye. As awareness of this condition grows, so does the need for accurate information. In a recent poll on Celiac.com, participants were asked various questions about celiac disease. This article aims to dissect and discuss the results of this poll, shedding light on the correct answers, common misconceptions, and the importance of accurate information.

    Worldwide Prevalence of Celiac Disease

    Poll Question: Worldwide, how many people have celiac disease?

    • Around 0.01% - 0%
    • Around 0.1% - 4%
    • Around 1% - 28%
    • Around 5% - 17%
    • Around 10% - 51%

    Celiac.com Sponsor (A12):
    Correct Answer: Around 1%

    Discussion: The correct answer is approximately 1% of the global population. Celiac disease is more common than many people realize, affecting about 1 in 100 individuals worldwide. Surprisingly, 51% of poll participants believed the prevalence to be around 10%, indicating a significant overestimation. This misconception highlights the importance of spreading accurate information to create a more informed and supportive environment for those with celiac disease.

    Diagnosis of Celiac Disease

    Poll Question: How is celiac disease typically diagnosed?

    • Tarot cards - 0%
    • Just by feeling better not eating gluten - 1%
    • Blood antibody tests - 9%
    • Endoscopy where biopsies are taken - 4%
    • Blood antibody tests followed by an endoscopy where biopsies are taken - 86%

    Correct Answer: Blood antibody tests followed by an endoscopy where biopsies are taken.

    Discussion: Diagnosing celiac disease involves a combination of blood tests and an endoscopy with biopsies to confirm the presence of villous atrophy. Despite this clear diagnostic process, 86% of participants correctly identified the need for both blood tests and biopsies. In certain cases where tTg-IgA levels are 10x normal it may be possible to make such a diagnosis, possibly leading to 9% who believed that blood tests alone were sufficient, in general a more comprehensive diagnostic approach is typically necessary for an accurate diagnosis.

    Safety of Eating at Gluten-Free Restaurants

    Poll Question: Eating in a restaurant that has a gluten-free menu is always safe for someone with celiac disease.

    • TRUE - 4%
    • FALSE - 96%

    Correct Answer: FALSE

    Discussion: The vast majority of participants, 96%, correctly identified that eating in a restaurant with a gluten-free menu is not always safe for individuals with celiac disease. Cross-contamination is a significant concern, even in establishments offering gluten-free options. The 4% who chose "TRUE" may underestimate the strict measures needed to prevent cross-contact, emphasizing the need for continuous education on the challenges faced by those with celiac disease.

    Conclusion

    This poll provides valuable insights into the prevailing perceptions and misconceptions surrounding celiac disease. As awareness grows, it is crucial to ensure that information is accurate and accessible. Dispelling myths and providing correct information empowers individuals with celiac disease and fosters a more supportive and understanding community. Education is the key to creating a world where those with celiac disease can navigate their dietary needs with confidence and security.



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    Elizabeth M Blair

    Scott, as always, your column about this poll was very helpful.  I never saw it.  When was it made available to Celiacs?  I have been worrying about cross-contamination in restaurants that my friends insist are safe for people with Celiac. So have been - mostly - avoiding restaurants with supposedly gluten-free menus.  By the way, I have a question for you.  I just read in a gluten-free cookbook that once you receive an endoscopy positive diagnosis you should not only get rid of your toasters and place glass cutting boards over butcher block counters, but also ditch your colander and replace it with a new one in your newly gluten-free kitchen.  Is this necessary?  I love my big red colander. 

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    Scott Adams

    In general I think a good cleaning should work on everything except wooden items, but it seems that some people go further and replace toasters and other items. Feel free to create a post in our forum on this and I'm sure you will get more answers.

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  • About Me

    Scott Adams

    Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives.  He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.


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