Would You Try a Vaccine for Celiac Disease?

We vaccinate our kids for a variety of things they may never get. It would be wonderful to do so for something they do have so they can avoid the serious and long term affects that even hidden gluten cause.

I would rather still eat gluten free, but have something available that could be taken prior eating out or special celebrations that would break down (cross-contamination) gluten proteins prior to it reaching the intestines. I don't know that I'd risk side effects of a vaccine, but living a more normal social life without the fear of cross-contamination would make all the difference!

I too would be happy to part of a trial if held in southeast Virginia area.

NEVER!

I would absolutely love to be a part of this!!! I was so sick for years before being diagnosed, now it's come "full circle" so to speak, everything gluten-containing is looking so good!!

I too, am a feel a little hesitant in celebrating a vaccine for food with gluten. I am on various medications and am currently dealing with a problem that is possibly a side effect from one of them. I just don't know currently which med it is. I live in Chicago and recently had the opportunity to get involved in a test to block gluten. I declined because some of the people involved might be given a placebo. I was recently re-tested and found my villi have grown back, why would I or any celiac want to resubmit to such an unhealthy situation. It might be better if some of the readers would rethink their willingness to be a medical guinea pig. And yes the drug companies make big money off of people who have health issues. Case in point Epi pens!

I have a wait and see approach. If I hear that the vaccine has an overall satisfactory result (meaning that 99% of people with celiac disease respond well to the vaccine, I will definitely ask my GP for her thoughts on it and consider getting it. But if the vaccine makes people sicker than what they would experience after eating gluten, I would definitely pass on it. I would give anything to be able to eat whatever I want again and cut down on my grocery bill. But if it isn't meant to be, I'm not going to hold my breath waiting. So we'll see.

A vaccine would certainly make travel and eating out easier, but I would not take the risk because of long-term unknowns. I hope for those interested, though, that it pans out. For the most part, I have come to look at my celiac disease as - the things I can't eat are pretty much the things I shouldn't eat anyway: cake, cookies, bagels, pizza, etc. While label reading to look for hidden sources can be a nuisance, I generally find brands I like, keep tabs on their ingredients, and don't stray too much.

You know, although I am celiac, I find that minute quantities of gluten do not affect me that much. My husband, who is not celiac, doesn't care for most of my gluten-free alternatives; that means a vaccine treatment would be a great help.

Copied from immusanT website: "GFD is not a desirable or healthy diet unless there is a medical need to avoid gluten, as the glycemic content and poor nutritional value may lead to increased risk for metabolic syndrome. A disease-modifying approach that resets the immune system when exposed to gluten would allow patients to return to good health and improved quality of life."

Really? Even as a sole reason this would be reason enough for me not to support this company. I hate when people lie to prove their point. But there are other reasons. Mainly it focuses on gliadin tolerance on antibodies level, and symptoms sometimes appear up to several years before elevated antibodies can be detected. So even if this vaccine works in the eyes of scientists, it might not reduce the symptoms at all, just move you from the celiac patient group into non-celiac gluten intolerance group that is still regarded as mere hypochondriacs by many doctors.

So on my part, no thanks!

The Real Question is: Do you like to Gamble? That is what we are being asked to do with something very precious... your life. This so-called vaccine was created to what? To stop a reaction, prevent a reaction, minimize a reaction? Is this vaccine based on key genetic factors that you may or may not be a match to? Every person here needs to know the answer to this and other questions that will asked by the celiac community. I was diagnosed with celiac disease in 2004 after a severe bout with double pneumonia (my celiac disease turned on by a virus). Since that time, I have had 9 severe reactions to gluten requiring ER visits with each reaction worse than the next. I have had fire department personnel accuse me of drug overdosing because they have never seen a celiac reaction. Family and friends not truly understanding that we cannot eat that "special" dinner, dessert, or imbeb that holiday drink. Medical personnel who also don't get those mysterious symptoms we have and what we all go through on a daily basis. The sadness I feel knowing that I passed this cursed disease on to my daughter and my grandsons. And the fear of what may develop down the road. So back to the question.. Would I volunteer to participate in the vaccine? I´m 63 years old. Not much more I can do in this life. For my daughter and my grandsons, and others born tonight, yes I would.

I am in my 60's and was diagnosed as celiac 7 years ago and I would be first to volunteer for the vaccine! This disease has been very difficult for me to adjust to. I truly miss good bread. Being raised on a farm, we had fresh, homemade bread, cookies, pies and cakes and I miss the memories I experience when eating these gluten rich foods. And don't get me started on the pasta, although that has been improved by leaps and bounds . But sadly the most important reason for me is economics, I just cannot afford the prices of most gluten-free foods.