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  3. I enjoyed common plain ramen before I was diagnosed. It had not occurred that perhaps I could use the small flavoring packet with gluten-free noodles. Comments?
  4. Did your symptoms improve after going on a gluten-free diet?
  5. Thank you for sharing your genetic test results and background. Your results indicate you carry one half of the DQ2 heterodimer (DQA1*05), which is associated with a very low celiac disease risk (0.05%). While most celiac patients have either DQ2 or DQ8, these genes are also present in people without celiac disease, so the test alone doesn’t confirm a diagnosis. ...
  6. @cvz Thank you for sharing your daughter’s story. It sounds like she is managing multiple complex conditions with great care and diligence. It’s encouraging to hear that she is compliant with her gluten-free diet and that her Addison’s disease symptoms are under control. The addition of electrolytes seems like a thoughtful suggestion, especially given her f...
  7. Hello I received this in a genetic lab test I requested from my provider. The patient is positive for DQA1*05, one half of the DQ2 heterodimer. The celiac disease risk from the HLA DQA/DQB genotype is approximately 1:1842 (0.05%). This is less than the 1% risk in the general population. Allele interpretation for all loci based on IMGT...
  8. My daughter, age 48, has Down syndrome, hypothyroidism, Addison's disease, and Celiac disease, which was diagnosed based on blood tests last July. After a small intestine biopsy last fall, we were told that she has severe celiac disease. She is taking both levothyroxine and leothyronine for her hypothyroidism and both hydrocortisone and fludrocortisone...
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  10. Hi Guys, i did repeat biopsy after marsh3b (without erosion) and results are now: normal villi without atrtophy, 25/100 iel and moderate mononuclear inflamation in lamia propria, with occesional granulocytes. Doc says the he saw little erosion on duodenum. Is this good ? I mean is this progress? Please help!
  11. In case you decide to go the route of a gluten challenge for a celiac disease blood test or biopsy: Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
  12. Kosher salt is not usually iodized. Shortly after starting GFD in 2014, I realized I wasn't getting enough iodine. Growing up in the 50's and 60's we ate bread that used iodine as a dough modifier so each slice had about 100 mcg of iodine. A sandwich and glass of milk supplied 300 mcg a day. In the 70's they stopped using iodine as a conditioner in...
  13. Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
  14. Celiac.com 02/27/2025 - For people with celiac disease, maintaining a gluten-free diet is essential to managing physical symptoms like gastrointestinal distress, nutrient malabsorption, and chronic inflammation. However, a growing body...
  15. Thank you for your input! I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns. I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
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  17. Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test.
  18. It is a biopsy but it's not a colonoscopy, it's an endoscopy.
  19. Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not.
  20. The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal...
  21. Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put t...
  22. It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing...
  23. Honestly it was like a solid couple of months. I started sometime in early December and the blood draw was on the 18th of Feb. Again it was almost all the time except a few days here and there with a cheat meal or even a whole day. Overall those it was a paleo diet like 98% of that time. I didn't go gluten free on purpose I was avoiding all grains and felt...
  24. How long had you been practicing a reduced gluten diet by the time you had the blood draw?
  25. I forgot to mention that I wasn’t prepared to take a celiac test so when I took this test I was pretty gluten free except for some cheat meals here and there. But I was about 98% gluten free at that point except I had gluten a few times a few days before this test by coincidence. So I probably skewed the numbers a bit by accident.
  26. Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future.
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