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I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.

Do talk to your doctor about making changes to your medication. I'm not a medical doctor. I'm a microbiologist. I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.

@Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...

European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...

From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...

Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...

I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.

A gastroenterologist doing an endoscopy. Biopsies would be taken to be examined microscopically. Do your anti-rejection medications cause digestive problems?

Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!

I had a wonderful experience in Istanbul last Spring. Before I left home, I purchased cards written in Turkish explaining that I had celiac and explaining what I could not eat. The restaurant owners were so accommodating and caring. I stayed well the entire time we were in Istanbul.

@Ginger38, Are you taking a B Complex vitamin? Vitamin D? Thiamine in the form TTFD or Benfotiamine? I think increasing my B Complex vitamins and taking additional Thiamine and Vitamin C and zinc helps along with the Lysine.

There's simple dietary changes that can be done to improve Barrett's esophagus. There are vitamins that improve Barrett's esophagus --- most of the B vitamins! Reducing sugary foods and drinks will help. A diet high in simple carbohydrates can deplete Thiamine and other B vitamins needed to process them into energy. Eating green leafy vegetables helps...

Thanks for your reply I’m a nearly 69yr old female. My only medications are Fosamax and Lamotrigine for seizures. Thank you for that drugs.com link! There are soooo many common side effects for Reclast and almost nothing for Fosamax. Since it’s working well and I haven’t had any side effects from Fosamax (stomach bleeding, pain or upset) my d...

But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary.

Thank you!!

Sorry I didn’t get a notification you posted. Thanks for this information! Im Still battling it and the itching that has now developed in my scalp and on my face is unbearable. My hair has broke off. I now have hazing on my cornea and I’m at like week 8 now I think. I came Down with Covid right before Christmas and now I have strep throat!! I think my imm...

Aaaackkk!!! Stop with the Omeprazole! It's not good, especially if taken for a long period of time!!! Gerd and Acid Reflux are actually caused by too little digestive enzymes resulting from nutritional deficiencies in Thiamine B1 and Niacin B3 that are needed to make digestive enzymes. Omeprazole is a proton pump inhibitor that has been shown...

That makes sense then.

Fosamax is a first generation "bone rebuilder" and I have heard there are newer and better things on the market now. I assume Reclast falls in the second category and gets better reviews according to this website: https://www.drugs.com/compare/fosamax-vs-reclast I think some bone rebuilding can happen when a celiac faithfully begins to practice...

@trents I am really not sure lol. I had a doctor who quit with no notice from 2 different practices and I was her patient both times, I just remember her telling me to take it. I guess for the dysphasia or Barrettes Esophagus? I have been taking it for years

@Charlie1946, what are you taking omeprazole for and how long have you been on it?

@trents thank you!

Forgive me if this has already been discussed. I couldn’t find another discussion about it. I was diagnosed with osteoporosis a couple of years ago after having been asymptomatic for celiac for decades. I ignored the celiac diagnosis because I had no issues, but I was ignorant to the long term damage. I am still asymptomatic, but after years of eating g...

I was replying to Charlie1946's most recent post where she asked the question if Omeprazole was the right thing to take.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):