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Blood results
Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for your reply. She has been given a date for her endoscopy, 28th of this month, so hopefully she’ll know for sure if she definitely has coeliac. Needless to say she’s dreading it!!!! -
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Blood results
Russ H replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is more than 10x the standard range, so a strong positive. In the UK for children and adults under the age of 55, at least 10x the standard range is sufficient to be diagnosed without having an endoscopy. The NICE guidelines are are different for children in that a referral to a gastroenterologist is also recommended for diagnosis. https://www.coeliac... -
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Welcome, @annamarie6655, I followed the AIP diet, too. It allows the intestines time to heal. I still avoid a lot of processed foods. Once you get used to eating whole foods, they taste better than processed foods. I couldn't eat pepperoni without becoming ill. Pepperoni is a processed meat that uses "meat glue" to hold its shape. "Meat glue...
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knitty kitty reacted to a post in a topic: Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing
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Welcome to the tribe! Do discuss the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) with your dietician. The AIP diet helps while the intestines are healing, lowering potential to develop other food sensitivities. Be sure to discuss supplementing with vitamins and minerals. Damaged intestines don't absorb essential nutrients well. Supplementing...
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knitty kitty reacted to a post in a topic: How to work through food paranoia
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How to work through food paranoia
MegRCxx replied to MegRCxx's topic in Gluten-Free Foods, Products, Shopping & Medications
Update: Biopsy results in, i have coeliac disease and awaiting advice with the dietitian. Thank you everyone for your help. -
Wheatwacked started following Having the will to be healthy but not the willpower
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Having the will to be healthy but not the willpower
Wheatwacked replied to Crossaint's topic in Coping with Celiac Disease
This is not a weakness. It is a serious threat to your health. I once read an interview with a representitive of a large company. He proudly stated that his wheat based product is more addictive than potato chips. The other issue is cultural. Perhaps this book will help Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together. It is published here... -
cristiana started following Having the will to be healthy but not the willpower
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Having the will to be healthy but not the willpower
cristiana replied to Crossaint's topic in Coping with Celiac Disease
Great advice from @trents. A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly, as you will have noticed, gluten-free bread does taste quite different from regular bread. But I think it was my GP who said... -
cristiana reacted to a post in a topic: Having the will to be healthy but not the willpower
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trents started following Having the will to be healthy but not the willpower
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Having the will to be healthy but not the willpower
trents replied to Crossaint's topic in Coping with Celiac Disease
Welcome to the forum, @Crossaint! Are you living in the same home with your mother? Your experience with the cravings is very common in the celiac community, especially among the recently diagnosed. It might surprise you to hear this but gluten has addictive qualities much like opiates. It plugs into the same pleasure sensors as gluten in the brain... -
captaincrab55 started following Having the will to be healthy but not the willpower
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Crossaint started following Having the will to be healthy but not the willpower
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Was recently diagnosed with Celiac after almost 16 years of suffering. The first week gluten free was amazing, my brain was working, i wasnt as bloated, i even started to not have to use the toilet 12 times in an hour. Excellent! But i keep having uncontrollable cravings for gluten. My mom is an amazing baker, woth no sympathy for my weakness and live for...
- Yesterday
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I wanted to say hello, and add that early in eating gluten free I had to avoid processed foods due to too many ingredients. I also had additional intolerances that needed time to subside. My team suggested I limit gluten free processed foods, as I was having issues with items with too many ingredients. I see Trents explained some of the culprits when he...
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Wheatwacked started following A question - eggs & dairy
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As @trents stated the pancreas does not produce lactase enzyme. Most humans lose the ability to create enough lactase. Some say milk is only for babies. But, by eating brined fermented foods like dill pickles and sourkraut, the Lactobacillus from these foods set up colonies in your gut and excrete lactase so we can eat dairy. Most pickles sold in supermarkets...
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Blood results
Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Her result for the TTG Ab (IgA) was 19. Lab range 0.0 - 0.7. U/ml. -
TTG would refer to a blood antibody test. Not valid if you are already eating gluten free or mostly so. DQH would refer to a genetic test to see if you possess either or both of the two genes that have been connected most strongly to developing active celiac disease. The genetic test is more of a rule out measure than a diagnostic test as about 40% of the...
- Last week
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Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting...
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The doctor was correct--if you are gluten-free the blood panel for celiac disease will not work, you would need to go on gluten challenge in order to be tested. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread...
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It could, but it could also mean that gluten still not being fully eliminated. It's important to get a celiac disease blood panel to help figure this out. For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions that can cause damaged...
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Some Mod asked me about blood tests. Dr said no need, nowhere to go as I am gluten-free alreay. He threw around terms like: TTG 2P DQH. not sure if it relates to gluten-free but he removed a polyp in 2022 and will recheck in 27. so my conclusion is that I am mostly gluten-free but not strict. Much obliged, Jeff
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A question - eggs & dairy
Cilla Panagiotidis replied to Kwinkle's topic in Related Issues & Disorders
When the small intestine does not heal, does that indicate refractive celiac -
Lactase is the enzyme that breaks down lactose. Lactase is produced in the small intestine. It is not produced in the pancreas. https://cymbiotika.com/blogs/health-hub/understanding-what-organ-produces-most-digestive-enzymes "Lactase is found in the brush border of the small intestine of humans and other mammals." https://en.wikipedia.org/wiki/Lactase ...
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Thank you so much for this thorough and informative post. This information does help me to understand my body better. I will commit to a strict gluten free diet. I may not have a diagnosis but I know gluten is causing issues. The worst offender, white bread, causes a reaction within 20-30 minutes. Which I hate because I like sandwiches. Lol. Common sense...
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I went back to consuming dairy after a year of healed villi. What I didn't know is that along with developing celiac, my pancreas was no longer producing enough enzyme to consume lactose. My GI said he often sees this with celiac patients. Some people can go back to dairy with no problems at all and others will develop odd symptoms like ataxia--balance...
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Blood results
Russ H replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you know what the lab's standard range is for the IgA tTG2 result? The Endomysial IgA basically tests for the same antibodies as IgA tTG2 but it uses an older, less sensitive method and the result is positive/negative rather than quantitative. Hence, it is possible to show raised IgA tTG2 antibodies without getting a positive test for Endomysial IgA antibodies...
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