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Welcome @aperlo34, The transistion to GFD seems scarier than it is. It took my infant son six months. Adults take longer, six months to two years to heal the gut There are over 200 various symptoms and diseases that result from gluten and the resulting vitamin and mineral deficiencies malabsorption syndrome causes. Most will go away in time...

Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing.

Thanks for the replies. They had a cancellation and now she can se the gastroenterologist tomorrow!

I forgot to say. Some people are allergic to Almonds. If you don’t have that allergy then it should be safe as long as there are no gluten ingredients.

Hi Aussie, I have to apologize “soy” by itself does not contain wheat or gluten like Adam said. Soy can be an allergy in its own for some people. I had soy sauce on my brain when I made that comment. But I do want to say this. I often wonder about the low 20 ppm the govt allows in food. It’s low but for some people this might be an issue. We don’t rea...

I was wondering about Soy. What about almond milk? I'm in Australia and it's hard to find much info sometimes. I've stopped the Japanese soy, as they don't guarantee anything.

I've never had reactions to McDonald's but since being diagnosed celuac I don't go there anymore.

Regular soy ABSOLUTELY has wheat gluten in it!

More likely the Sibo was a symptom of the Celiac malabsorption syndrome.

Looks like the PCP called it. Good for him. Now you need to work on the malnutrition, primarily vitamins and minerals, caused by the years of malabsorption. Virtually all newly diagnosed with Celiac Disease are vitamin D deficient, even though he may get lots of sun, get a 25(OH)D blood test. My son is a professional ocean life guard year round...

I don't think there is any way to be sure, as symptoms of SIBO and celiac disease can overlap each other. I was also treated with antibiotics around the time of my diagnosis, which also made me feel better, but in the end only a gluten-free diet did this for the long-term.

I've not tried that, and I only get their fries and a drink when I eat there.

Vitamin D plays a key role in absorbing and retaining calcium and phosphorous for bone and tooth mineralization. When vitamin D levels are low and the body isn't able to properly absorb calcium and phosphorus, there is an increased risk of bone pain, bone fractures, muscle pain, and muscle weakness. In older adults, severe vitamin D deficiency (levels...

Adding gluten back into his diet a few days before the biopsy will have little or no impact on ensuring a valid biopsy result if he has been off of gluten for months. ShRa, I recommend you do some research of the "gluten challenge" to get a more informed picture with regard to this issue. Many PCPs are not well-informed when it comes to celiac diagnosis and...

If your blood test is soon and you have not been gluten free for long, your doctor may be trying to save you the challenge. Seems like she may be pretty sure you have Celiac Disease already. After you stop eating foods with gluten, your symptoms will likely get better in a few days to weeks. Your small intestine should heal completely in 3 to 6 months...

I talked to PCP again this morning to confirm if he should discontinue gluten diet now or wait until he sees gastroenterologist. PCP advised to discontinue now as he had so many symptoms and to bring some relief to him. She mentioned that gastroenterologist might not do biopsy considering his results but if they would like to then he can have gluten included...

Hi @jjiillee, Call the doctors office and tell them about the improvement with gluten free diet. Diagnosing Celiac Disease is as much an art as it is a science. Many go 10 years of suffering various symptoms before finally being diagnosed.Most celiacs have vitamin deficiency, it is part of the diagnosis. Especially vitamin D. Ask for her to be...

Yes I was asking could the symptoms I listed be related to the sibo only.

A couple of months ago, we stopped at a McDonald's while on a road trip. I ordered a cheeseburger with no bun, just lettuce & tomato on the side. No fried, nothing else. A few hours later, I had symptoms of having been glutened. So, no more stops a McDonald's for me!!!

Soy does not have wheat in it, and soy is gluten-free.

I was not 100% sure about this due to this part of their comment "...and has been now referred to specialist for further advise." If the referral is to a gastroenterologist, then they may want to confirm via a biopsy.

You might want to consider eating lots of yogurt to repopulate your intestines with benificial bacteria after all those antibiotics. I've had good results with Stoneyfield Whole milk vanilla and add a couple handfuls of frozen berries. Potassium, magnesium, vitamins C and K, fiber, and prebiotics—carbohydrates that help promote a healthy gut. The n...

Thank you for your input. That really helped me make a decision.

If you have an official celiac diagnosis, some governments offer stipends for gluten free food purchases and extended follow-up care. Such is available in certain areas of the UK for instance. However, an official diagnosis can also be a handicap if you are paying for private healthcare insurance. For the most part, however, the benefit seems to be psychological...

The doctor is indeed wrong. Thank you for the interesting article and advice. I just really wonder if I can go through 6-8 weeks of pain in terms of digestive problems and possible rash. How valuable is it to have a diagnosis?