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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- ABP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms09 year old- questionable results
My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually. After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE... -
- Scott Adams replied to Gluten is bad's topic in Gluten-Free Foods, Products, Shopping & Medications3Gluten Free ADHD medications
I guess using "GF" instead of "PL" would have been too easy! 😉 -
- Auldtwa commented on Scott Adams's article in Kidney Disease and Celiac Disease3How Celiac Disease Could Increase Your Risk of Kidney Problems
Thanks. I've been taking B12; I may well start with more of the B variations.- autoimmune disorder
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- knitty kitty commented on Scott Adams's article in Kidney Disease and Celiac Disease3How Celiac Disease Could Increase Your Risk of Kidney Problems
@Auldtwa, I have Celiac, type two diabetes and have had kidney stones. Celiac Disease causes malabsorption of essential nutrients, including the eight essential B vitamins. We cannot make B vitamins in our bodies and must absorb them from foods and supplementation. Correcting nutritional deficiencies caused by malabsorption due to Celiac Disease is...- autoimmune disorder
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- Auldtwa commented on Scott Adams's article in Kidney Disease and Celiac Disease3
How Celiac Disease Could Increase Your Risk of Kidney Problems
Did the study include the effect of the celiac gene on oxalate sensitivity? This leads to creation of kidney stones, over and over--one of my kidneys is atrophied from "silent" stones and no longer functioning. I also have Type 2 diabetes and celiac disease. These all have a genetic component. They have the "silent" part in common, too, until late in...- 1
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0December 11, 2024 12:00 AM
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Posts
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My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually. After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9. Most recently her genetic test for celiac was positive. After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi. It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think. I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary. Signed Confused and Concerned Mama
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By Scott Adams · Posted
I guess using "GF" instead of "PL" would have been too easy! 😉 -
I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
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Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
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By StrongerThanCeliac · Posted
Hi, I’ve noticed that it usually takes me about 5-6 days to recover from a glutening. I was just thinking and maybe I’m going crazy. Long story but I wasn’t able to brush my teeth for a couple days after being glutened. Is there a way the gluten could be like stuck in my teeth still and still causing some sort of reaction because I waited too long to brush? Or is that insane
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