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Recent Activity
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- KCGirly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Symptoms and trying to figure this out
Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate. I would have The episodes were every two weeks or so. I stopped taking the semaglutide, but continued to have episodes. GP ran bloodwork all normal, including celiac. Ordered a stomach...- 1
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- emily 1 replied to emily 1's topic in Coping with Celiac Disease5Black Pepper Reactions
Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow. -
- Barcino replied to Onemoreceliac's topic in Related Issues & Disorders17Chronic duodenitis and gastritis post diagnose
I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. -
- trents replied to emily 1's topic in Coping with Celiac Disease5Black Pepper Reactions
I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases... -
- knitty kitty replied to dlaino's topic in Coping with Celiac Disease1Coping with celiac
Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?
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From Wikipedia on Semaglutide: "The most common side effects include nausea, vomiting, diarrhea, abdominal pain, and constipation." How much gluten are you consuming daily? Recently revised recommendations are for the daily ingestion of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks prior to celiac disease testing, either via blood antibody tests or endoscopy/biopsy in order to ensure valid test results. Your GI doc's instructions barely fit into that time window. I hope it is sufficient to yield valid biopsy results. About your episode(s) after reintroducing gluten on 12/23 after starting a gluten free diet on 11/29. You stated at the outset of your narrative that historically these episodes occurred about every two weeks and that was before you trialed the gluten free diet. I would point out that you had only been eating gluten free for three weeks before the episode on 12/23. So, I'm not sure you can attribute that episode to the return to gluten consumption. In addition to celiac disease, there is another gluten-related health issue known as NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Also, can you specify which test or tests for celiac disease were ordered by your GP? There are a number of serum antibody tests that can be run in order to detect celiac disease but many physicians will order the minimum instead of a more extensive panel. What one test misses, another may catch.
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Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate. I would have The episodes were every two weeks or so. I stopped taking the semaglutide, but continued to have episodes. GP ran bloodwork all normal, including celiac. Ordered a stomach emptying test it was normal too. The itchy palms stumped him. So he ordered blood allergy test all came back normal no allergies. He had me go gluten free 11/29. Finally got into a GI doc on 12/16. She wanted me to reintroduce gluten back in my diet on 12/23 and then have scope on 1/8. Well, 5 days in with gluten, I had an episode. I’m not sure I can keep eating gluten for 10 more days. I have PTSD thinking about possibly having an episode(s) again. Anyone going through this? Or have thoughts/suggestions?
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Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.
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I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about.
-
I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well.
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