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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- KCGirly posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Symptoms and trying to figure this out
Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate. I would have The episodes were every two weeks or so. I stopped taking the semaglutide, but continued to have episodes. GP ran bloodwork all normal, including celiac. Ordered a stomach...- 1
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- emily 1 replied to emily 1's topic in Coping with Celiac Disease5Black Pepper Reactions
Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow. -
- Barcino replied to Onemoreceliac's topic in Related Issues & Disorders17Chronic duodenitis and gastritis post diagnose
I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. -
- trents replied to emily 1's topic in Coping with Celiac Disease5Black Pepper Reactions
I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases... -
- knitty kitty replied to dlaino's topic in Coping with Celiac Disease1Coping with celiac
Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?
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Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate. I would have The episodes were every two weeks or so. I stopped taking the semaglutide, but continued to have episodes. GP ran bloodwork all normal, including celiac. Ordered a stomach emptying test it was normal too. The itchy palms stumped him. So he ordered blood allergy test all came back normal no allergies. He had me go gluten free 11/29. Finally got into a GI doc on 12/16. She wanted me to reintroduce gluten back in my diet on 12/23 and then have scope on 1/8. Well, 5 days in with gluten, I had an episode. I’m not sure I can keep eating gluten for 10 more days. I have PTSD thinking about possibly having an episode(s) again. Anyone going through this? Or have thoughts/suggestions?
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Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.
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I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about.
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I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well.
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By knitty kitty · Posted
Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?
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