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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,181 topics in this forum

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    German Ginger
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    StephanieL
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    mommida
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    cyclinglady
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    • trents
      One of the manifestations of celiac disease that some people experience is a rash known as dermatitis herpetiformis. It has little pustules in the center of the bumps. There is no other know cause for dermatitis herpetiformis other than celiac disease. If properly biopsied during an outbreak, dermatitis herpetiformis can be used to diagnose celiac disease. Not ever dermatologist knows how to properly biopsy dermatitis herpetiformis. But dermatitis herpetiformis is generally very itchy. Concerning the diarrhea and the sulfur burps, it certainly is possible the cause is something besides celiac disease or in addition to celiac disease. Many other health problems are known to be associated with celiac disease. I encourage you to look into MCAS (Mast Cell Activation Syndrome)/histamine intolerance, SIBO (Small Intestine Bacterial Overgrowth), H. pylori and IBS (Irritable Bowel Syndrome). And as I said earlier, there is always the possibility/probability that you are still getting gluten in your diet in unexpected ways.
    • JohannesW85
      Thank you for your reply. Yep, the doctor made a mistake there for sure, but when my other doctor called she said I would wait for the referral to doctor for the gastro it can take months, and so long she thought it would be a good idea to stay gluten free.    I am really concerned about my problems tough and I don’t know if I am eating something with gluten to upset my stomach with the sulphur burps and dihareaa. I have also taken stool samples that I am going to leave on Friday this week and that’s another thing that I am worry about, if it shows something else. I mean, if am ”gluten free” why do I have problems with the stomach still? As I understand, the problem with dihareaa and other problems is when you get gluten in you by mistake for example?    I have this rashes to, going to try to upload them here.  Here is the link to the pictures of the rashes, it’s not itchy.      https://postimg.cc/gallery/p2N8kT7
    • Beverage
      Also, Vera Salt and Ava Jane's taste SO MUCH BETTER. Not sharp, and i need to use a lot less. 
    • Beverage
      I've recently researched a lot about salt lately. Celtics sea salts have minerals, which have been tested to include aluminum, cadmium, iron, lead, and microplastics. I used to use Redmond salt, but it tests as having aluminum, iron, and lead. I finally settled on 2 clean salts: Vera Salt, which you can only order from their web site. Also Ava Jane's which I got from Amazon. These are now the only 2 I use.
    • Beverage
      I had horrible reaction to lisinopril, a severe cough that kept me up all night. The cough is apparently common. I did better with irbesartan, no cough, and it controlled my BP better too. 
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