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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,180 topics in this forum

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    laurelfla
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    ShayBraMom
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  • Posts

    • Scott Adams
      This article might be helpful. See this section of the article: Many People Can Be Diagnosed Using Only Blood Tests and No Biopsy    
    • Scott Adams
      Yes, ginger tea is an ancient Chinese medicinal treatment for stomach issues and inflammation.
    • DebJ14
      Good luck to you.  I would not get past that first slice of bread.  I would be vomiting and have diarrhea within 30 minutes and it would continue for hours and I would feel like I was hit by a truck for days.  My functional medicine doctor told me to stop taking Calcium and to significantly up my Vitamin D, add K2, lots of Magnesium, some boron and collagen.  This was all recommended after taking the Spectracell test for nutrient deficiencies.  Started doing this at 54 when diagnosed and at 72 no issues with the old bones.   
    • Recently diagnosed
      I live in Ottawa Canada and would be interested in a swap with someone who also has a gluten-free house. I’d love to swap out in winter for somewhere warm.
    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease, when it is not addressed with a gluten free diet for many years, typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
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