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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Tyoung posted a topic in Related Issues & Disorders0High Folate Levels
I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of... -
- JohannesW85 replied to JohannesW85's topic in Related Issues & Disorders4Do I have celiac/Gluten sensitivity?
Did you take a look at my pics that I uploaded? These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too. Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sen... -
- captaincrab55 replied to Connie Smitj's topic in Coping with Celiac Disease2Hunger, nervous stomach or Hpylori?
Welcome Connie Smitj, Did you have a follow up test to see if the treatment for H Pylori was successful? It's possible to catch it again, especially from a partner. When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori. -
- trents replied to Connie Smitj's topic in Coping with Celiac Disease2Hunger, nervous stomach or Hpylori?
Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
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I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of my levels are now normal, but folate level is >24ng/mL. Has anyone else had similar results? If so were you able to figure out why or how to normalize them? I also have been having constant acid reflux since about two weeks into going gluten free (no acid reflux history prior to) that we are trying to get to the bottom of with no answers. Could that be related? Thank you!! Also wanted to not that I am not eating any gluten free processed food.
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By JohannesW85 · Posted
Did you take a look at my pics that I uploaded? These rashes is not itchy, but I have seen that people have this too that have celiac and it’s not itchy for them either. I have also heard that sulfur burps are a common things with celiac too. Yes it can be something else too but it’s to much symptoms that I have that match with either gluten sensitivity or celiac. Hopefully it’s just gluten intolerance and not celiac. As I said before I have the gen type for celiac and diabetes typ 1 and the those diseases going hand in hand. Thanks again Trent for your time to reply, and I wonder if any body else have kind of the same symptoms that I have? -
By captaincrab55 · Posted
Welcome Connie Smitj, Did you have a follow up test to see if the treatment for H Pylori was successful? It's possible to catch it again, especially from a partner. When I contracted it a second time my wife was tested and was positive for two of the bacteria in H Pylori. -
Welcome to the forum, @Connie Smitj! Can you give us a little more history about your celiac journey? How long ago were you diagnosed and how long have your been gluten free? Do you have other symptoms besides quick onset of hunger after eating and gut pain? How long have these symptoms being happening?
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By Connie Smitj · Posted
I eat a gluten-free diet but hunger pains start within an hour of eating dinner. I had h pylori infection before I was diagnosed. Occasionally I’ll have bouts of pain. Could it come back or is it just celiac disease?
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