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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,178 topics in this forum

  1. Pennyb
    TCA
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  2. Kelgs
    kbtoyssni
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  3. TBLKWL
    rez
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  5. MrsYoung84
    Nantzie
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  6. houseofboys
    kirbymom
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  7. Cam's Mom
    Mtndog
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  8. kenziebug
    Nikki2003
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  9. Bellasmama
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  12. mdzplus2
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  13. Bellasmama
    Kibbie
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  14. betsy7
    Electra
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  15. FeedIndy
    Creative-Soul
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  16. jmoody74
    rez
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  17. Lindsay GFMom
    Ursa Major
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  18. janelyb
    TCA
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  19. Canadian Karen
    angel-jd1
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  20. emtek5
    gf4life
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  21. mom-to-claire
    kirbymom
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  22. girlfromclare
    kirbymom
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  23. KristenQld
    kirbymom
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  25. luckymama
    chrissy
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  26. Guest pdwillis
    KristenQld

    Help With Stomach Pain

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  27. Silver
    TCA
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  • Recent Activity

    1. - Louise Broughton replied to Louise Broughton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    3. - Louise Broughton replied to Louise Broughton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    4. - Savannah Wert replied to Savannah Wert's topic in Coping with Celiac Disease
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  • Posts

    • Louise Broughton
      Thanks. I ve joined coeliac uk but found them particularly unhelpful - they told me to eat gluten for 6 weeks then have an  endoscopy! I m actually a retired hospital dietician so pretty well know what I m doing…… Louise 
    • cristiana
      You are very welcome.😊  Do keep posting if we can help any further, and also if you aren't a member already I would recommend joining Coeliac UK if only for one year - they produce a very good gluten-free food and drink guide, a printed copy and also an app you can use on a smartphone which I am told is very helpful when one shops. I think the one thing I would say is be extra vigilant when eating out.  Never feel afraid to question the service staff.  I think most of my glutenings have happened away from the home.
    • Louise Broughton
      Thank you everyone for your super responses. Louise 
    • Savannah Wert
      Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀
    • trents
      Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful:  It is good that you have identified some other foods that you cannot tolerate at this point as this is so common in the celiac population and it often goes unaddressed for years. You may find that the lactose intolerance disappears as your gut heals. No guarantee, though. Keep an eye out for the development of celiac symptoms in your children as the likelihood of first degree relatives developing active celiac disease is somewhere between 10% and almost 50%. Yes, the studies on this are all over the map. Is your home gluten free or will you be attempting to avoid CC (Cross Contamination) while fixing gluten-containing foods for your family members? It is always best for everyone in the home to commit to gluten free eating in the home environment when one member has celiac disease. 
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